SCD-list September 1997 SCD-list Sun, 14 Sep 1997 Volume 1 : Number 39 In this issue: Re: Food Processor vs. Blender The book beans -------------------------------------------------------------------- SCD MAILING LIST ------------------------------------------------------------------- ---------------------------------------------------------------------- Date: Sun, 14 Sep 1997 00:52:31 -0400 From: Laurie Myhre-Choate <Laurie_Myhre_Choate@compuserve.com> To: "INTERNET:SCD-list@longisland.com" <SCD-list@longisland.com> Subject: Re: Food Processor vs. Blender Message-ID: <199709140052_MC2-2053-B349@compuserve.com> I use a Vitamix, works like a blender and a food processer. It purees an= d grinds and even cleans itself. With a 2 HP motor it is pretty powerful. = We use it most of all for yogurt smoothies and banana nut cake. = Laurie ------------------------------ Date: Sun, 14 Sep 1997 07:44:54 -0500 From: Rachel Turet <rachel@longisland.com> To: SCD-list@longisland.com Subject: The book Message-ID: <l03010d02b0418b9eabb5@[199.171.4.123]> Dear all, I spoke to Elaine yesterday and she wanted me to pass on the following information. It seems that there is a temorary problem with distribution of her book in te USA. Until it is resolved, her book can be purchased by either contacting me or through the following phone # 1-800-332-3663. Although I haven't heard from him recently, I beleive that John Chalmers also has copies of her book available to sell. Rachel ------------------------------ Date: Sun, 14 Sep 1997 14:49:03 -0400 From: "Deborah L. Whitmire" <dlwhitmire@mindspring.com> To: SCD-list <SCD-list@longisland.com> Subject: beans Message-ID: <341C319F.141DB3E1@mindspring.com> Hi All, I've been reading about many people's problems with being able to tolerate beans. I want to share my solution to the associated problems of gas, bloating,etc. 2-3 years ago I began using a product called Beano on gaseous foods such as pinto beans, cabbage, boiled eggs. Voila! Problem was solved. Beano has no taste, but MUST be put on the first bite of the offending food. Is there a reason more people on this diet or with IBD do not use it? I've had Crohn's for 16 years and this has been the only way I've been able to enjoy such foods. With the great results I've had, I've encouraged everyone I know to use this product - even people with no bowel problems, just for the resulting by-product (gas) of eating such foods. I strongly urge people to give this a try. Or, if there is some scientific reason to avoid Beano, would someone let me know? I also use Lactaid (real or generic) with Great Success on dairy foods. Good luck Debbie ------------------------------ End of SCD-list V1 #39 ********************** SCD-list Mon, 15 Sep 1997 Volume 1 : Number 40 In this issue: Re: The book Almonds & Calcium Re: When SCD does not work - then what? pizza shivers Re: When SCD does not work - then what? need advice, support Re: need advice, support Pentasa making almond flour Re: burnt cookies Re: beans and bloating Re: Party? Re: burnt cookies Yoghurt maker Re: Yoghurt maker -------------------------------------------------------------------- SCD MAILING LIST ------------------------------------------------------------------- ---------------------------------------------------------------------- Date: Sun, 14 Sep 1997 21:11:20 -0400 From: John Chalmers <johnc@serv2.fwi.com> To: SCD-list@longisland.com Subject: Re: The book Message-ID: <341C8B38.13DB@mail.fwi.com> Rachel and All Yes I do have books for those interested. The ordering information is found on the web site http://www.fwi.com/cmg/ I generally ship within 24 hours of receipt of the order. John Rachel Turet wrote: > > -------------------------------------------------------------------- > SCD MAILING LIST > ------------------------------------------------------------------- > Dear all, > I spoke to Elaine yesterday and she wanted me to pass on the following > information. It seems that there is a temorary problem with distribution of > her book in te USA. Until it is resolved, her book can be purchased by > either contacting me or through the following phone # 1-800-332-3663. > Although I haven't heard from him recently, I beleive that John Chalmers > also has copies of her book available to sell. > Rachel ------------------------------ Date: Sun, 14 Sep 1997 22:32:02 -0400 (EDT) From: EllenAdams@aol.com To: SCD-list@longisland.com Subject: Almonds & Calcium Message-ID: <970914223002_-1030315410@emout07.mail.aol.com> I just read that almonds and broccoli are good sources of calcium. Does anyone know how much calcium they offer for a given quantity? Ellen ------------------------------ Date: Mon, 15 Sep 1997 12:29:03 +0000 From: jdias@civil.ist.utl.pt (Joaquim Dias) To: SCD-list@longisland.com Subject: Re: When SCD does not work - then what? Message-ID: <v01540b00b042d5ffd307@[192.168.2.168]> >-------------------------------------------------------------------- >SCD MAILING LIST >------------------------------------------------------------------- >Hi, > >After more than 8 months of serious SCD, I have come to the conclusion >that this diet does not help my colon CD at all. > >Now comes the obvious question: What to try next? > >I still belive (or hope) that some diet can (to some extent) help with >this disease, but what diet? > >Where do people go after SCD fails on them? > >- Kurt > >______________________________________________________ >Get Your Private, Free Email at http://www.hotmail.com The fundamental thing (at least for me) is: don't give up, and don't surrender to conventional medicine. It seems that I'm more or less in the same situation you are, and now I'm going to try Macrobiotics, wich is far more atractive to me (I used to be a vegetarian). Someone (let's say, a Macrobiotic "Doctor") told me that usualy IBD can be controled within about 3 months. He told me what to do, and I'm going to do it. We'll see what happens. By the way, I'm going to unsubscribe from the 2 lists now. I woul like to thank everybody in these lists. There was a time when I got lots of useful help from you all. Now, I have to confess that I find most of the messages as boring and pointless chat. I'm still available to everyone who wants to contact me. Healthy days to everyone. Joaquim Dias in Lisbon jdias@civil.ist.utl.pt ------------------------------ Date: Mon, 15 Sep 1997 08:04:18 -0500 From: Maureen Stohlmeyer <mstohlme@iastate.edu> To: SCD-list@longisland.com Subject: pizza Message-ID: <v03102805b042e2896a13@[129.186.242.88]> >-------------------------------------------------------------------- >SCD MAILING LIST >------------------------------------------------------------------- >Hello & thanks to all who answered my questions, > >I have tried several of the book's recipes with varying results. The >basic nut muffins & the stir fry came out great. The zucchini pizza >crust & the almond honey crisps were awful. > >Possibly the problem with the pizza was that I used frozen,thawed grated >zucchini. I will use fresh next time. I have wonderful success with the pizza zucchini. I use fresh zucchini. It's the best recipe I have! ................................................................................ ........................................ Maureen Stohlmeyer College of Agriculture Iowa State University 515-294-4763 137 Curtiss Hall 515-294-5334 FAX Ames, IA 50011 ------------------------------ Date: Mon, 15 Sep 1997 15:40:46 +0200 From: gwozdz <gwozdz@hrz.tu-freiberg.de> To: scd-longisland <scd-list@longisland.com> Subject: shivers Message-ID: <341D3ADD.1E50746B@vwl.tu-freiberg.de> Hi all, I have experienced shivering fits twice lately. Both times I felt constipated and bloated and then got really cold. After an hour or two the shivers were gone. Any idea what the cause might be? Thanks Miroslav Germany ------------------------------ Date: Mon, 15 Sep 1997 09:03:31 -0500 (CDT) From: Elizabeth Liener <exuliz@exu.ericsson.se> To: SCD-list@longisland.com Subject: Re: When SCD does not work - then what? Message-ID: <199709151403.JAA05038@b01d04.exu.ericsson.se> Hi, kale is not a nightshade. Nightshades include eggplant, tomatoe, peppers (green, red, etc) and potato. Regards/Liz > > I've also heard of those who have had success by eliminating vegetables of > the nightshade family. I believe this includes eggplant and kale but I don't > know enough about it to list them for you here. > ------------------------------ Date: Mon, 15 Sep 1997 13:05:30 -0400 From: "Mazer, C. & Blank, J." <103120.612@compuserve.com> To: new SCD <SCD-list@longisland.com> Subject: need advice, support Message-ID: <199709151307_MC2-2084-913F@compuserve.com> Dear listies, I started the SCD on July 29th, and initially had significant improvement: stool frequency down to two a day (from several), with a little diarrhea each time but mostly solid. The bleeding did not stop, though. I was able to cut down from 20mg to 15 mg of prednisone (which I've been on since, plus 12 asacols per day). So, I'm one of those people for whom the diet will probably work, according to Elaine. A couple of weeks ago I got worse: more stool frequency, sometimes up to 10 per day, more diarrhea, more blood and mucus. In short, a flare. This is always disheartening, the more so as I'm still on all those meds. I know Elaine's book says to expect a flare after one to three months, and to bear with it. But how long do you bear with it? And should I up my prednisone dose? Of course, if I do, and the flare clears, I won't know if it was the diet or the pred. And I won't know if the diet is being effective til I cut back on the pred again. I know if I ask my M.D. she'll say to go off the diet, up my pred til I'm symptom free, and go on 6mp. This is tempting, as 6mp has a 70% success rate, but I'm trying to avoid being on an immunosuppressant for the rest of my life! I've cut back to the very basic diet for several days, and have noticed some improvement -- less stool frequency (but still not back down to 2 a day), but just as much diarrhea -- some solid stool, but not much -- and blood. The most annoying sx is the nocturnal BM. It wakes me up, and I always have a real hard time going back to sleep, so I tend to be tired all day, which of course does my flare no good. So, list-comrades, what do I do? Any advice? And especially, does anyone have any experience with these 1-3 month flares? John Blank ------------------------------ Date: Mon, 15 Sep 1997 15:58:59 -0400 From: Bill Miller <miller@bedford.net> To: SCD-list@longisland.com Subject: Re: need advice, support Message-ID: <341D9382.CF7DD88C@bedford.net> Mazer, C. & Blank, J. wrote: > But how long do you bear with it? And should I up my prednisone > dose? Of > course, if I do, and the flare clears, I won't know if it was the diet > or the pred. And I won't know if the diet is being effective til I > cut back on the pred again. I know if I ask my M.D. she'll say to go > off the diet, Wow, does your MD actually think that diet makes a difference? That's incredible. I had no trouble telling the difference between prednesone induced changes and the effect of the diet. Personally, I don't think pred cures anything, but masks the acute stages of the flare-up -- the cure comes from somewhere else, be it diet, less stress or whatever.First, if you up the dose of the prednesone to your typical max (I usually do 40mg), does it typically stop most of the bleeding immediately? If it does, then maybe you can hang at the lower dose for awhile and suffer. Its my opinion that many people overreact to the bleeding, I've lived with bleeding for 3-4 weeks and my blood iron levels didn't get too low. Everyone, however is different. > up my pred til I'm symptom free, and go on 6mp. This is tempting, as > 6mp > has a 70% success rate, but I'm trying to avoid being on an > immunosuppressant for the rest of my life! > There is no reason to have to use it for the rest of your life. If the diet works, you will be able to quit. My experience with quitting wasn't very good, so I've committed to not going on it again. > I've cut back to the very basic diet for several days, and have > noticed > some improvement -- less stool frequency (but still not back down to 2 > a > day), but just as much diarrhea -- some solid stool, but not much -- > and > blood. The most annoying sx is the nocturnal BM. It wakes me up, and > I > always have a real hard time going back to sleep, so I tend to be > tired all > day, which of course does my flare no good. > First, I was quite successful at dividing my pred doses throughout the day -- I was previously taking the whole dose in the morning with the idea that it wouldn't affect my sleep as much. Right now I'm taking 25 mg, -- 10 breakfast, 10 lunch, 5 dinner. I had some sleepless nights because I took too much at dinnertime, after some experimentation I found that 5 mg seems to not keep me up. Anyway, the difference was miraculous. Been there with the nighttime problems. You could eliminate honey and juice for a couple of days. If it helps, I would say that you have a case of candida that is main cause of your flare. This is what I think happened to me, and eliminating the sweets made a difference. Personally, I couldn't sustain the diet without the added carbs of the fruit and honey and I got pretty damn sick -- it did work for three days however. In my case, I decided to add low gluten grains to the basic diet and still eliminate honey and juice, and I'm doing pretty well right now. Feel free to e-mail direct if you want... bill miller@bedford.net ------------------------------ Date: Mon, 15 Sep 1997 16:31:16 -0400 From: "Lynn Karakashian"<lynn.karakashian@prudential.com> To: scd-list@longisland.com Subject: Pentasa Message-ID: <85256513.0070B4AA.00@njros1ngw04.metro.prudential.com> --0__=q45MbjkX9rQjZ1iJY7cu3g3enHRqpKMdLaTJmzEmg1R1FXsikvEXsb1s Content-type: text/plain; charset=US-ASCII ---------------------- Forwarded by Lynn Karakashian/EFM/Prudential on 09/15/97 04:35 PM --------------------------- Lynn Karakashian Monday September 15, 1997 04:27 PM Prudential Investments (201) 367-7685 Fax Number: (201) 367-8076 (Embedded image moved to file: PIC01308.PCX) To: scd-LIST @ LONG ISLAND.COM cc: Subject: Pentasa Hello Everyone!!!!! My doctor just prescribed Pentasa to me. He suggested I take 16 pills a day as well as being on the diet. Is anyone else on Pentasa and how much do you take? My inquiring mind would like to know. And have you noticed the difference with the medicine???? Looking forward to hearing from anyone. Stay Healthy!!!! Lynn ------------------------------ Date: Mon, 15 Sep 97 16:56:10 -0500 From: Renee Zobkiw <rz@triplesoft.com> To: <SCD-list@longisland.com> Subject: making almond flour Message-ID: <1337779454-806469@mailhost.triplesoft.com> Does anyone know if grinding almonds in a coffee bean grinder will grind them to the consistency of the almond flour you can mail order? I have been grinding almonds in a small food processor, and am wondering if I could get better results with a coffee grinder... Thanks for your thoughts, <renee> ------------------------------ Date: Mon, 15 Sep 1997 17:56:42 -0400 From: Matthew Cirillo <mcirill@emory.edu> To: SCD-list@longisland.com Subject: Re: burnt cookies Message-ID: <341DAF1A.9A8F38E8@emory.edu> I suppose there are folks who can relate to walking away from milk being boiled to make yoghurt! Yeech, talk about a mess! Anyway, I bought a cheap Casio watch that has both a timer and a stop watch, so no matter where I go, I will hear it go off! Setting a timer in the kitchen just dosen't work, especially if I go downstairs to read my SCD-list E-mail!!! I usually have the timer set at 29 minutes since I've figured that's the ideal time for my muffins which I eat constantly. When are we going to have "the Great SCD Cook-off", to sample each other's fares? Would we bring our foods pre-cooked, or cook them in some large kitchen? Whose muffins are the fluffiest? Does anyone think this would be a fun idea? Is it feasible? Maybe some off-season ski-resort in Canada that has a huge kitchen that isn't being used this time of year. Just think, we wouldn't have to worry about telling each other why we can't eat this or that! And, we could stuff ourselves! Whaddya say, whaddya say? Lets do it! EllenAdams@aol.com wrote: > -------------------------------------------------------------------- > SCD MAILING LIST > ------------------------------------------------------------------- > In a message dated 97-09-12 19:59:50 EDT, you write: > > << > > >Well seems that staying up late has price to it. > > > >The last three nights I've stayed up 'till midnight making SCD > >food. This includes 2 weeks supply of soup, 3-4 weeks of hamburgers, > > >cheese cake, home-made grape jello, yogurt, and last night the > >date-filled cookies (without the dates). Well, last night we > >had a visitor until 11pm and I still wanted to make my cookies > >after since I was taking Friday off from work. After putting in > >my 3rd batch (2 dozen at a time) of cookies, I went downstairs to > >watch TV. Twoo hours later I realized that I had fallen asleep > >and there was a funny smell in the house. I burnt my cookies ! > >What a waste :( > > > >I am sure many of you can relate to this ! > > > >Thanks... Dan. >> > > Dan, > > I can really relate!! It's amazing how much cooking it takes to keep > up with > this (and the related potential for kitchen accidents). Tonight I > came home > from work planning to have meatloaf for supper that I made last > night. I > only needed to make ketchup to go with it. Luckily I had already > bought a > bunch of fresh tomatoes to make it with. I scalded them, peeled them, > > chopped them, and boiled them up. Added seasoning, reduced it a bit, > and > then poured the boiling mass into the blender. I put the top on and > held it > down, turned on the blender, and the force was tremendous! It sprayed > > scalding tomatoes all over me and all over the kitchen. My face and > one arm > were immediately painful. My housemate ended up helping me get ice on > my > face and cleaning up most of the mess. It was pretty traumatic. He > finished > the blending and I had supper (after I changed clothes, put on salve, > cleaned > tomatoes out of my hair....) When I finished supper I decided to > avoid the > kitchen for the rest of the night and get in bed with a book. > > This is the only group I could admit this to! > > My housemate says I should buy a food processor and that way these > things > won't happen. He says that with a food processor, the ingredients are > locked > in and won't push their way out. Is he right? Would this be a wise > investment in my personal safety? (I keep thinking I'll get used to > using > the blender for such things but this is my second disaster) > > Ellen ------------------------------ Date: Mon, 15 Sep 1997 17:58:21 -0400 From: Matthew Cirillo <mcirill@emory.edu> To: SCD-list@longisland.com Subject: Re: beans and bloating Message-ID: <341DAF7D.326D2D86@emory.edu> I had the same experience, that lentils were fine, but beans gave me gas. I have to remember to but sume lentils, and make a nice soup. Rosset wrote: > -------------------------------------------------------------------- > SCD MAILING LIST > ------------------------------------------------------------------- > > ---------- > > From: Matthew Cirillo <mcirill@emory.edu> > > To: SCD-list@longisland.com > > Subject: Re: "skinning" beans > > Date: Wednesday, September 10, 1997 5:06 AM > > > > -------------------------------------------------------------------- > > > SCD MAILING LIST > > ------------------------------------------------------------------- > > Has anyone else had this "bloating" problem? I was having it when I > was > > not quite in the state of remission I find myself, and it scared me > away > > from the beans. More specifically, has anyone out there who has > gotten > > "better" from the diet gone on to eat the beans without any > problems? > > I'd love to eat them again, since they are so cheap compared to > other > > "legal" foodstuffs like almond flour, but I'm scared it might make > me > > sick again... > > Dear Matthew, > I tried the beans after having been on the diet for a few months, and > did > great. Sometimes I'd make the recipe in the book, or I'd cook the > beans > until tender in nothing but water and salt. The plain ones I liked > served > with cheddar cheese and fresh salsa on top. After several months of > success > with the beans, all of a sudden I started noticing the bloating > problem, so > I decided to quit eating them for a while. I tried again 2 or 3 more > times > with a break in between, without success. It would take about 2 weeks > for > the bloating to subside. About a year ago I decided to give the > lentils a > try. Surprisingly, I have absolutely no problem with them. I've been > buying > red lentils, because it looks like they don't have a skin. You can > make > great soups with lentils, and they are also inexpensive. I've been > thinking > of trying the beans again soon, but I'm waiting for a time when I > don't > have much going on in case I have to go through the 2 weeks... My > plan is > to eat a small amount the first day, and if I do OK, then eat a little > more > the next, but not overdo it. > I would also be interested in hearing about other people's experience > with > the beans. > Lucy ------------------------------ Date: Mon, 15 Sep 1997 18:17:35 -0400 (EDT) From: EllenAdams@aol.com To: SCD-list@longisland.com Subject: Re: Party? Message-ID: <970915181402_-732300112@emout01.mail.aol.com> In a message dated 97-09-15 17:54:52 EDT, you write: << Whose muffins are the fluffiest? Does anyone think this would be a fun idea? Is it feasible? >> It sounds like *great* fun, but I'm not sure about the feasibility! ;-) Maybe we should try some smaller, regional get togethers to start? I'd love to meet everyone but plane travel is so hard on me that I'm not so sure about coming to Canada (but I'll say maybe on that). I live near Washington DC (actually in Vienna Virginia). Is there anyone in my area who might want to do a pot luck party or something? Ellen ------------------------------ Date: Mon, 15 Sep 97 16:35:34 MDT From: "Daniel Woods" <dwoods@acs.ucalgary.ca> To: SCD-list@longisland.com (SCD-diet mail list) Subject: Re: burnt cookies Message-ID: <9709152235.AA113496@acs5.acs.ucalgary.ca> Hi, Prateeksha, normally I use the timer on the microwave to remind me of when to check on the food I am cooking/baking. However, after 10pm at night I try not to use it for fear of waking up my toddler when the beeps go off. Trying to get a toddler back to sleep is a long process most of the time. Ellen, sorry about your catsup disaster. I'll remember that when I get to making catsup, when I finally start using tomatoes. I feel pretty good that I am finally using bananas :) They are very good in the cake and muffin recipes. By the way, I use a food processor and blender for different things. I use the blender to make a double batch of the cheese cake (I eat 3 slices daily), which fills right up to the top (this then fits into a 9" square pan very well). To anyone on this list who does not like the many messages sent on a daily basis, may I suggest that you re-subscribe with the *digest* mode. This way you will only get ONE message per day. Thanks... Dan. *************************************************************** * Dan Woods The University of Calgary * * dwoods@acs.ucalgary.ca Calgary, AB, CANADA, T2N 1N4 * *************************************************************** ------------------------------ Date: Mon, 15 Sep 1997 18:33:30 +0000 From: "Ron Leach" <ron@baldhead.com> To: SCD-list@longisland.com Subject: Yoghurt maker Message-ID: <199709152249.SAA07030@baldhead.com> Hello everybody: I'm writing from Toronto, Ontario, Canada and I'm having some difficulty locating a yoghurt maker. Does anybody have suggestions on where I can locate one? Thank you, Ron Leach ------------------------------ Date: Mon, 15 Sep 97 18:59:38 -0500 From: Renee Zobkiw <rz@triplesoft.com> To: <SCD-list@longisland.com> Subject: Re: Yoghurt maker Message-ID: <1337772046-1251768@mailhost.triplesoft.com> >I'm writing from Toronto, Ontario, Canada and I'm having some >difficulty locating a yoghurt maker. >Does anybody have suggestions on where I can locate one? Hi Ron, You may want to check out the yogurt maker by Salton Maxim. Their web page address is listed below. The web page contains specifics about the yogurt maker, along with a picture and info on how to order one. http://www.salton-maxim.com/healthyalt/funfoods.html I bought this yogurt maker after a recommendation from someone on this list and have been extremely happy with it. Best wishes, <renee> ------------------------------ End of SCD-list V1 #40 ********************** SCD-list Tue, 16 Sep 1997 Volume 1 : Number 41 In this issue: Re: Yoghurt maker Re: Yoghurt maker Re: eating away from home Re: Party? Re: Almonds & Calcium Re: need advice, support Re: Yoghurt maker Re: Kurt - What next? Re: When SCD does not work - then what? Re: making almond flour Re: When SCD does not work - then what? Re: Kurt - What next? Welcome to SCD-list Re: When SCD does not work - then what? RE: Request for information Wecome letter Re: Yoghurt maker RE: Pentasa RE: Request for information Re: need advice, support Moosewood house salad dressing Re: Arthritis? Fibromyalgia (Was: probably a dump question) -------------------------------------------------------------------- SCD MAILING LIST ------------------------------------------------------------------- ---------------------------------------------------------------------- Date: Mon, 15 Sep 1997 16:46:44 -0700 From: prateeksha@infoasis.com (Prateeksha Bogardus) To: SCD-list@longisland.com Subject: Re: Yoghurt maker Message-ID: <v01550100b04314c62a8d@[206.40.74.35]> >-------------------------------------------------------------------- >SCD MAILING LIST >------------------------------------------------------------------- > Dear Ron, Does Williams-Sonoma have a store in your area? You can find one there, or in their catalog...the Donvier Standard Electronic Yogurt Maker without timer, catalog #53-1116201 $30.00, catalog only, plus shipping, taxes. 1-800-544-2233 24 Hours. Also, places that are re-sale (used) get a lot of these because people buy them and don't use them (buy from the grocery already made.) Good luck! Prateeksha Hello everybody: >I'm writing from Toronto, Ontario, Canada and I'm having some >difficulty locating a yoghurt maker. >Does anybody have suggestions on where I can locate one? > >Thank you, > >Ron Leach ------------------------------ Date: Mon, 15 Sep 1997 19:44:54 +0000 From: "Ron Leach" <ron@baldhead.com> To: SCD-list@longisland.com Subject: Re: Yoghurt maker Message-ID: <199709152355.TAA07390@baldhead.com> > To: SCD-list@longisland.com > From: prateeksha@infoasis.com (Prateeksha Bogardus) > Subject: Re: Yoghurt maker > Date: Mon, 15 Sep 1997 16:46:44 -0700 > Reply-to: SCD-list@longisland.com > -------------------------------------------------------------------- > SCD MAILING LIST > ------------------------------------------------------------------- > >-------------------------------------------------------------------- > >SCD MAILING LIST > >------------------------------------------------------------------- > > > Dear Ron, > > Does Williams-Sonoma have a store in your area? You can find one there, or > in their catalog...the Donvier Standard Electronic Yogurt Maker without > timer, catalog #53-1116201 $30.00, catalog only, plus shipping, taxes. > 1-800-544-2233 24 Hours. Also, places that are re-sale (used) get a lot of > these because people buy them and don't use them (buy from the grocery > already made.) > > Good luck! > > Prateeksha > Thanks for the information. I'll try to locate a local dealer. Best regards, Ron Leach ------------------------------ Date: Mon, 15 Sep 1997 20:05:48 -0400 (EDT) From: HEBERT2@aol.com To: SCD-list@longisland.com Cc: lynn.karakashian@prudential.com Subject: Re: eating away from home Message-ID: <970915200311_675335814@emout16.mail.aol.com> To Lynn re:gaining weight: I am assuming you're on the SCD diet and don't eat carbohydrates, right??? I was also 95 lbs 'til I got rid of intestinal yeast and parasites using Diflucan (Rx), and herbals. Then, I gained near 15 lbs eating nuts, proteins (meat/fish), lots of winter squash (acorn, spagetti, butter nut, etc.) and lots of vegetables. Also use a lot of Flax oil, and the SCD diet for nut-based breads. My weight is now stable (for last 4 mos.) But none of this would have worked if I hadn't gotten rid of the little beasties first! Good luck. ------------------------------ Date: Mon, 15 Sep 1997 17:29:56 -0500 From: "jcorless" <jcorless@dhc.net> To: <SCD-list@longisland.com> Subject: Re: Party? Message-ID: <199709160129.UAA18334@dhc.net> I think it is a great idea as well. Anyone in the Dallas/Fort Worth area of Texas? ---------- > From: EllenAdams@aol.com > To: SCD-list@longisland.com > Subject: Re: Party? > Date: Monday, September 15, 1997 5:17 PM > > -------------------------------------------------------------------- > SCD MAILING LIST > ------------------------------------------------------------------- > In a message dated 97-09-15 17:54:52 EDT, you write: > > << Whose muffins are the fluffiest? Does anyone think > this would be a fun idea? Is it feasible? >> > > It sounds like *great* fun, but I'm not sure about the feasibility! ;-) > Maybe we should try some smaller, regional get togethers to start? I'd > love to meet everyone but plane travel is so hard on me that I'm not so sure > about coming to Canada (but I'll say maybe on that). > > I live near Washington DC (actually in Vienna Virginia). Is there anyone in > my area who might want to do a pot luck party or something? > > Ellen ------------------------------ Date: Mon, 15 Sep 1997 20:16:45 PDT From: "T G" <tguar@hotmail.com> To: SCD-list@longisland.com Subject: Re: Almonds & Calcium Message-ID: <19970916031645.24586.qmail@hotmail.com> Ellen, Here are the calcium amounts you asked about: 1 cup raw, chopped broccoli 42.2 mg 1 cup frozen, chopped, boiled broccoli 93.8 mg 1 oz (about 24 nuts) almonds 75.4 mg Also, I heard that sesame seeds had a lot so I looked them up too. 1/4 cup dry hulled sesame seeds 49.1 mg For comparison, 1 cup of milk has around 300 mg. Take care, Tina ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com ------------------------------ Date: Mon, 15 Sep 1997 20:31:27 PDT From: "T G" <tguar@hotmail.com> To: SCD-list@longisland.com Subject: Re: need advice, support Message-ID: <19970916033128.14077.qmail@hotmail.com> John, I had the early flare up that Elaine mentions in her book and I remember how frustrating it was. I was so excited about my initial improvement, that I almost had myself believing that I wasn't going to get bad again. I think it lasted almost 2 weeks, and I didn't change anything while it was happening, just sort of rode it out. As for the bleeding. Well, that was my last symptom to go and it took months. It was probably a few months before I started to see improvements and then the bleeding got less and less frequent until it was gone completely. You also asked about increasing your prednisone dose and if you do that how would you know if the diet or the pred is helping you. Well, I guess what you have to decide is would you rather get better now and not know for the next flare how it happened, or would you rather suffer a little now and then next time know right away how to get better. Personally, I would go with using both medication (if it has worked for you in the past) and the diet. I don't really care what is making me better, I just want to be better. But, of course, it's an individual choice. Take care, Tina ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com ------------------------------ Date: Mon, 15 Sep 1997 20:43:06 PDT From: "T G" <tguar@hotmail.com> To: SCD-list@longisland.com Subject: Re: Yoghurt maker Message-ID: <199709160343.UAA24105@f85.hotmail.com> Ron, I live in Hamilton, Ontario, so we are practically neighbours! My Yogurt Maker was a Christmas gift, but I was told that it was purchased at Eaton's. It's a West Bend 1-Quart (Litre) Fresh Yogurt Maker, and I'm very happy with it. Their address, just in case Eaton's doesn't have any is: West Bend of Canada 28 Currie Street Barrie, ON L4M 5N4 Take care, Tina ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com ------------------------------ Date: Mon, 15 Sep 1997 23:38:36 -0600 From: "R. Allan Partridge" <raparch@planet.eon.net> To: SCD-list@longisland.com Subject: Re: Kurt - What next? Message-ID: <341E1B5C.613B@planet.eon.net> Kurt, This may sound frustrating but our experience is that where CD is invloved in the colon, the SCD may take longer to take effect. Back in the early days of the SCD for our daughter, there seemed little or no progress after 8 months. After a very encouraging discussion with Elaine she reminded us that everyone responds differently and yes, some do not respond at all. Further, all should make a personal decisions as to th e management of their own health. I commend you for trying and not bowing to the dictates of "conventional wisdom". Assuming that you want to stick with the SCD I would like to share our experiences with you. Back to Elaine's discussion, her comments were 1) was there fanatical adherence to the diet - in our case - yes (what about you Kurt?) 2) was there any signs of progress, even small, in our case yes - again, Kurt, did you notice anything? even small things such as less tummy grumbling, less pain, no joint pain. Was there anything you experienced Kurt? Elaine's response was that in the early going where the colon is so actively involved there is a needed period to get the colon back to its proper function - that of primarily extracting water and salts. In active disease, the colon becomes a fermentation duct and its balance is thrown out. With Crohn's Colitis (CD of the colon) this can take time. After 8 months or so with meds the diet provided the adjunct to help the progress. (are you on any meds Kurt?) It is now 19 months on the diet and just over a year with meds. Her progress has been steady, but she is not what we would term "in remission" yet. She is close to getting back to her body weight (she was over 40lbs underweight) for her height of 5 7". She has started school again and she is venturing out with here friends. Things are not terrific but they are much better. The bottom line for her was that the diet was the only right way to eat for her condition. It makes so much sense to maximize nutritional potential while minimizing the digestive activity - thus creating the best possible environment for bowel rest without the harmful side effects of TPN, Enteral Feeding, NG tubes, etc. We always remember that this diet works at the microbiological level, so it is not a diet that like others that can be "cheated" on once in a while without punity. To cheat is to setback significant gains that may have taken months to build. hence, the reason that Elaine and others are adamant about sticking to the diet in every respect. Kurt, we understand how frustrating this is but ask yourself, what better way is there to eat? you have to eat something so why not a well thought out and balanced diet such as the SCD. We share many of the meals with our daughter and quite frankly, we do not miss potatoes and rice and the like. Apart from our daughter there is no IBD in our families. We share hers and by extension your anxieties. Whatever you do, you obviously think things through, keep it up.!! Kurt, hang in there and like others told us "this too will pass" All the best, Partridges, Edmonton, Alberta ------------------------------ Date: Mon, 15 Sep 1997 23:07:30 PDT From: "Kurt Jensen" <kurt_j@hotmail.com> To: SCD-list@longisland.com Subject: Re: When SCD does not work - then what? Message-ID: <19970916060731.9449.qmail@hotmail.com> Hi, Thanks for all the mail! A few questions were raised: 1) Did I follow the diet 100%? Yes - fanatically. I have not even been to a resturant for 8 months in fear of bad bacteria. Whenever I visit friends I cook my own food. No cheating. Homemade yoghurt from day 1. 2) Did I talk to Elaine? Yes. She said after a few weeks with no progress just drop the diet - it won't work. She said 30-40% does not improve on the diet. Then she started recommending various medication, that I know all too well. 3) Was I on medication? Yes - Pentasa + prednisolone tapered from 50mg down to 10mg. When reaching 10mg prednisolone I had to go up again. So for 8 months I have not been off prednisolone for one day, and that is the primary goal for me - to get of prednisolone. 4) Did I experience any improvement? No. But it's very difficult to talk about improvement when the medecine alone makes you feel good. 5) Have I tried skipping diary? No. Just eliminating diary from SCD removes the source of "good bacteria" (yoghurt). What other sources are there? (I don't think eating tons of "saurkraut" is the right thing to do). -Kurt ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com ------------------------------ Date: Tue, 16 Sep 1997 06:55:20 -0400 (EDT) From: EllenAdams@aol.com To: SCD-list@longisland.com Subject: Re: making almond flour Message-ID: <970916065520_-964123555@emout10.mail.aol.com> In a message dated 97-09-16 00:09:12 EDT, you write: << Does anyone know if grinding almonds in a coffee bean grinder will grind them to the consistency of the almond flour you can mail order? >> I used a krups coffee mill and it did a nice job, but it still wasn't quite as fine as Hughsons. I started with sliced unblanched almonds and processed for mental count of 8. It turned out sort of like wheat flour. Baked goods with it had a somewhat coarser texture than with Hughsons--you could sense that they had ground nuts in the recipe and needed to chew a bit more--but it wasn't unpleasant, just different, and in some ways a nice change of pace. Part of the difference could have been blanched vs unblanched almonds. The Hughson's flour is so light in color that I'm pretty sure they use blanched almonds. I hope this helps. Ellen ------------------------------ Date: Tue, 16 Sep 1997 07:16:51 -0400 (EDT) From: EllenAdams@aol.com To: SCD-list@longisland.com Subject: Re: When SCD does not work - then what? Message-ID: <970916071651_-1466477979@emout10.mail.aol.com> In a message dated 97-09-16 04:09:52 EDT, you write: << Have I tried skipping diary? No. Just eliminating diary from SCD removes the source of "good bacteria" (yoghurt). What other sources are there? (I don't think eating tons of "saurkraut" is the right thing to do). >> I don't know what other sources there are that are non-dairy. You could consider acidopholis supplements though. Personnally, I'm thinking about eliminating the dairy for a couple of weeks and see what difference it makes. I've had a bad reaction to the yogurt 3 times out of 4 lately. When I ingest it, I quickly get an intensely painful spasming in my lower abdomen and within minutes of that I have a round of diarreah. Nothing else on this diet so far seems to bother me. I'm thinking about getting my calcium from other sources (spinach, broccoli, figs, almonds) and skipping the yogurt. (By the way, I use yogourmet starter and a yogourmet yogurt maker.) I've heard that two weeks is a good trial period to see whether eliminating dairy (but otherwise staying on the SCD) is helpful so I will probably try that and see. Ellen ------------------------------ Date: Tue, 16 Sep 1997 07:50:44 -0500 From: Rachel Turet <rachel@longisland.com> To: SCD-list@longisland.com Subject: Re: Kurt - What next? Message-ID: <l03010d00b0442e00cab4@[199.171.4.147]> Dear Allen, What a remarkable letter. I am frankly in awe of your courage and tenacity. Makes me really think about and wonder how I'd have handled it if my own body had not responded as quickly and thoroughly to the healing powers of the diet.I'd like to think that I'd have treasured each small improvement and seen it as motivation to continue. Both yours and Tina's letter have touched me deeply and made me realize that progress in this diet is different for everyone and certainly not for lack of effort. I'm so gratefull that in this forum, there are people who can take on challanges of newbies at every level. Love, Rachel ------------------------------ Date: Tue, 16 Sep 1997 08:23:21 -0400 From: SCD-request@longisland.com To: SCD-list@longisland.com Subject: Welcome to SCD-list Message-ID: <19970916122321264.AAA294@mail.longisland.com> -- Hello Everyone, Welcome to the Specific Carbohydrate Diet forum. The agenda here is the discussion of a book called "Breaking the Vicious Cycle" written by Elaine Gottschall. The book contains the diet developed by Dr. Sidney Valentine Haas which has an astoundingly high success rate in the treatment of inflammatory bowel disease. The diet cured Elaine Gottschall's younger daughter over forty years ago of ulcerative colitis after various medical approaches were no longer effective and surgery appeared imminent. Ms. Gottschall entered university at that time in an effort to try and understand how something as simple as a dietary change could reverse a so-called incurable disease. She spent twelve years in the research community at three leading North American universities. This scientific training combined with seven years of consulting convinced her of the effectiveness of the Specific Carbohydrate Diet in reversing many gastrointestinal disorders, especially inflammatory bowel disease. The book, Breaking the Vicious Cycle, is her contribution as a scientific hypothesis upon which future researchers can do further work. For many of us the book is also the source of restored health. If anyone is finding difficulty in locating a copy of the book, it will be available through this list. Many of us who have been on the diet for any length of time have experienced the miraculous healing powers of this diet and are here to share our experience and tips for living with it. In the process, perhaps we can learn a few things ourselves. Some of us have additionally discovered adjunct therapies (exercise, allowable supplements, ect.) and these contributions may be helpful. It is important however to focus on the diet itself. There are many diets and many forms of alternative medicines available that promise to aid those suffering with IBD. For that purpose, there are many lists and web sites out there to provide information on these. This list however, has been formed to promote and discuss the "Specific Carbohydrate diet" exclusively. Forums usually have a chairperson in place to help direct issues that pertain to the subject at hand. As there will be no governing bodies here, it is asked that we individually use self-restraint to ensure that the subject of the SCD remains the primary focus. Most of us here can address questions from newcomers and welcome the opportunity to do so. Elaine is not on the internet. She does plan on being available to answer the tricky stuff and promises to occasionally forward comments to the group. It is our hopes that we can continue to grow and to assist the portion of our society plagued by IBD, towards restored health. Life without pain, bleeding and the constant search for a bathroom is indeed a blessing. Sincerely, Rachel Turet ------------------------------------------------------------------ Introduction to the List Manager -------------------------------- This is the Mailing List Manager for Post.Office version v3.0. The interface is similar to Brent Chapman's "Majordomo". How to Access the List Manager ------------------------------ You can interact with the List Manager by sending commands in the body of an E-mail message addressed to "SCD-request@Longisland.com". (Important Note: Commands in the "Subject:" line are NOT processed.) Available List Manager Commands ------------------------------- The Post.Office Mailing List Manager understands the following commands: (Note: In the descriptions below items contained in []'s are optional. When providing the item, do not include the []'s around it.) subscribe <list> [<address>] Subscribe yourself (or <address> if specified) to the named <list>. unsubscribe <list> [<address>] Unsubscribe yourself (or <address> if specified) from the named <list>. which Find out which lists you are on. info <list> Retrieve the general introductory information for the named <list>. lists Show the lists served by this List Manager server. help Retrieve this message. end Stop processing commands (useful if your mailer adds a signature). ------------------------------ Date: Tue, 16 Sep 1997 08:38:39 -0400 From: "witkowski" <witkowskis@worldnet.att.net> To: <SCD-list@longisland.com> Subject: Re: When SCD does not work - then what? Message-ID: <19970916125110.AAA17041@a-zcusto> ---------- > From: Kurt Jensen <kurt_j@hotmail.com> > To: SCD-list@longisland.com > Subject: Re: When SCD does not work - then what? > Date: Tuesday, September 16, 1997 2:07 AM > > -------------------------------------------------------------------- . Dear Kurt, As per your statement below, give skipping the dairy a whirl . I have been on the diet almost one year minus the dairy.And my colon is fixed 99.9 percent. You could just be one of those people that are allergic to dairy. The diet is still very doable without the dairy, I am proof of that. Try two weeks no dairy and see what happens. I had a major yeast problem before the diet and that is now just fine also. Take Care, Kay > > 5) Have I tried skipping diary? No. Just eliminating diary from SCD > removes the source of "good bacteria" (yoghurt). What other sources are > there? (I don't think eating tons of "saurkraut" is the right thing to > do). > > -Kurt > > > ______________________________________________________ > Get Your Private, Free Email at http://www.hotmail.com ------------------------------ Date: Tue, 16 Sep 1997 14:39:57 +0100 From: hazel.pelham@bbc.co.uk (Hazel Pelham) To: SCD-list@longisland.com (SCD-list) Subject: RE: Request for information Message-ID: <1997Sep16.143451.1772.1455154@pu-smtp.radio.bbc.co.uk> Ted, Thanks for the search info. I didn't have any luck accessing the address you gave. Any idea what I might be doing wrong? Hazel ---------- From: SCD-list To: SCD-list Subject: RE: Request for information Date: 09 September 1997 6:07 -------------------------------------------------------------------- SCD MAILING LIST ------------------------------------------------------------------- hi, you can search the NINE MILLION absracts (some dont have them) to you hearts content at http://ww4.ncbi.nlm.nih.gov/PubMed (case insensitive ) for your search option chose MEDLINE i try things like colitis AND eicosanoid (case sensitive) or colitis AND chelation (the AND seems to be upper case sensistive) or "ulcerative colitis" you'll get too many to read all of them, but look at the MeSH terms at the bottom of each article for clues on what key words are common to your area of interest. ted ------------------------------ Date: Tue, 16 Sep 1997 09:42:37 -0500 From: Rachel Turet <rachel@longisland.com> To: SCD-list@longisland.com Subject: Wecome letter Message-ID: <l03010d01b0444aeb95c2@[199.171.4.131]> Dear All, I've no idea why our list server suddenly decided to re-transmit the welcome letter and instructions. I guess it doesn't hurt to send this out periodically, but I was just wondering if anyone requested it. Rachel ------------------------------ Date: Tue, 16 Sep 1997 09:04:59 -0500 (CDT) From: Elizabeth Liener <exuliz@exu.ericsson.se> To: SCD-list@longisland.com Subject: Re: Yoghurt maker Message-ID: <199709161404.JAA08953@b01d04.exu.ericsson.se> Try this web site: http://www.triplesoft.com/yogurt24/ybasics.html I got my Salton from the internet and I've been pleased. > From SCD-request@longisland.com Mon Sep 15 17:45 CDT 1997 > Comments: Authenticated sender is <ron@baldhead.com> > From: "Ron Leach" <ron@baldhead.com> > To: SCD-list@longisland.com > Date: Mon, 15 Sep 1997 18:33:30 +0000 > MIME-Version: 1.0 > Content-transfer-encoding: 7BIT > Subject: Yoghurt maker > Priority: normal > X-mailer: Pegasus Mail for Win32 (v2.54) > Reply-to: SCD-list@longisland.com > Content-Type> : > text/plain> ; > charset=US-ASCII> > Content-Length: 351 > > -------------------------------------------------------------------- > SCD MAILING LIST > ------------------------------------------------------------------- > Hello everybody: > I'm writing from Toronto, Ontario, Canada and I'm having some > difficulty locating a yoghurt maker. > Does anybody have suggestions on where I can locate one? > > Thank you, > > Ron Leach > ------------------------------ Date: Tue, 16 Sep 97 9:35:22 MDT From: "Daniel Woods" <dwoods@acs.ucalgary.ca> To: SCD-list@longisland.com (SCD-diet mail list) Subject: RE: Pentasa Message-ID: <9709161535.AA151562@acs5.acs.ucalgary.ca> Hi Lynn, I used to take 4 Pentasa a day since May/95. My new doctor here (I moved this year) wanted me to increase it to 8/day if I wanted to do the diet. I had lost 10 pounds since January (new job, new city, new house, ...), and was having more bloating/pain/BM. He wanted me to start nightly tube-feeding, but I took this as a major warning sign (another operation) that I would now start the SCD diet. So, in your case, taking 16/day is up to your doctor and you (and how you feel about it). If it is your first time taking it, and depending on the severity of your symptoms, I would think taking less should be ok (but I dislike doctors and their attitudes towards drugs). It's always your choice, doctors should never be put up on a pedestal. The diet is helping me and I have regained 6-8 pounds (all in the last three weeks) since my first visit with the doctor in May/97. I have just crossed 12 weeks on the diet, and still not introducing too many foods. Nut muffins and cookies are the best, and I also started eating peanut butter (all natural--just peanuts). All the best and continued good health. Thanks... Dan. *************************************************************** * Dan Woods The University of Calgary * * dwoods@acs.ucalgary.ca Calgary, AB, CANADA, T2N 1N4 * *************************************************************** ------------------------------ Date: Tue, 16 Sep 97 12:09:26 CDT From: ted.kyle@vantis.com (Ted Kyle) To: SCD-list@longisland.com Subject: RE: Request for information Message-ID: <9709161709.AA10341@swansong.amd.com> ----- Begin Included Message ----- From SCD-request@longisland.com Tue Sep 16 08:45:44 1997 From: hazel.pelham@bbc.co.uk (Hazel Pelham) To: SCD-list@longisland.com (SCD-list) X-Mailer: Microsoft Mail via PostalUnion/SMTP for Windows NT sorry i left off a 'w' from www4, i fixed it below, by then way read the three abstracts that are returned when you search for colitis AND margarine. these are fairly recent studies done in japan and the UK on the role of diet and colitis. you can search the NINE MILLION absracts (some dont have them) to you hearts content at <A HREF="http://www4.ncbi.nlm.nih.gov/PubMed">http://www4.ncbi.nlm.nih.gov/PubMed</A> (case insensitive ) for your search option chose MEDLINE i try things like colitis AND eicosanoid (case sensitive) or colitis AND chelation (the AND seems to be upper case sensistive) or "ulcerative colitis" you'll get too many to read all of them, but look at the MeSH terms at the bottom of each article for clues on what key words are common to your area of interest. ted ------------------------------ Date: Tue, 16 Sep 1997 14:56:33 -0400 From: Matthew Cirillo <mcirill@emory.edu> To: SCD-list@longisland.com Subject: Re: need advice, support Message-ID: <341ED661.A7DF77BC@emory.edu> I had a flare not that long ago, I started taking prednisone and asacol. Now, about two months later, I'm off the meds (well, I'm STILL tapering off the pred, taking 5mg. every other day) but my diarhea is gone. This seems to be the main obstable, since it seems that all the high-water content foods in the diet are essential to building strength, yet they don't help in getting rid of the diareah. So, I suggest (from my experience, I'm no expert except with my own body) sticking with the meds and the diet, and waiting it out. I've alos observed what appears to be "cycles" where I come into remission. Maybe your cycle is due for remission! The only reason I'm not at 0mg. with the prednisone is that if I stop too soon, I "crash", and get headaches. I expect to be off all drugs again by the end of September. All the best to you, from someone who has been there! Mazer, C. & Blank, J. wrote: > -------------------------------------------------------------------- > SCD MAILING LIST > ------------------------------------------------------------------- > Dear listies, > > I started the SCD on July 29th, and initially had significant > improvement: > stool frequency down to two a day (from several), with a little > diarrhea > each time but mostly solid. The bleeding did not stop, though. I > was > able to cut down from 20mg to 15 mg of prednisone (which I've been on > since, plus 12 asacols per day). So, I'm one of those people for whom > the > diet will probably work, according to Elaine. > > A couple of weeks ago I got worse: more stool frequency, sometimes up > to > 10 per day, more diarrhea, more blood and mucus. In short, a flare. > This > is always disheartening, the more so as I'm still on all those meds. > I > know Elaine's book says to expect a flare after one to three months, > and to > bear with it. > > But how long do you bear with it? And should I up my prednisone > dose? Of > course, if I do, and the flare clears, I won't know if it was the diet > or > the pred. And I won't know if the diet is being effective til I cut > back > on the pred again. I know if I ask my M.D. she'll say to go off the > diet, > up my pred til I'm symptom free, and go on 6mp. This is tempting, as > 6mp > has a 70% success rate, but I'm trying to avoid being on an > immunosuppressant for the rest of my life! > > I've cut back to the very basic diet for several days, and have > noticed > some improvement -- less stool frequency (but still not back down to 2 > a > day), but just as much diarrhea -- some solid stool, but not much -- > and > blood. The most annoying sx is the nocturnal BM. It wakes me up, and > I > always have a real hard time going back to sleep, so I tend to be > tired all > day, which of course does my flare no good. > > So, list-comrades, what do I do? Any advice? And especially, does > anyone > have any experience with these 1-3 month flares? > > John Blank ------------------------------ Date: Tue, 16 Sep 1997 13:01:40 -0700 From: "Rosset" <plrosset@pacificrim.net> To: "SCD-list" <SCD-list@longisland.com> Subject: Moosewood house salad dressing Message-ID: <199709162008.NAA25534@cascade.pacificrim.net> This recipe came out of the Moosewood Restaurant Cookbook. MOOSEWOOD HOUSE SALAD DRESSING 1 cup veg. oil (mild, not olive) 2 Tbl lemon juice 1 tsp honey 6 spinach leaves 2 Tbl chopped parsley 1 tsp fresh basil, or 1/4 tsp dried 1tsp fresh marjoram, or 1/4 tsp dried 1/2 tsp salt 1 garlic clove, pressed 1 cup yogurt Blend all ingredients except the yogurt. Slowly add the yogurt, don't overmix or will separate. This will keep refrigerated for up to a week. I've found that it does separate after a day or two, so just stir before you use it. ------------------------------ Date: Tue, 16 Sep 1997 22:39:26 +0200 From: "Svend-Aage Andersen" <sv-aage@post3.tele.dk> To: "SCD" <SCD-list@longisland.com> Subject: Re: Arthritis? Fibromyalgia (Was: probably a dump question) Message-ID: <19970916203756.AAA32066@warfactory> Dear Ellen Please, send me the list about the symptoms of fibromyalgia. Thanks in advance Yvonne sv-aage@post3.tele.dk ------------------------------ End of SCD-list V1 #41 ********************** SCD-list Wed, 17 Sep 1997 Volume 1 : Number 42 In this issue: Re: Yoghurt maker Re: Arthritis? Fibromyalgia (Was: probably a dump question) Re: Arthritis? Fibromyalgia (Was: probably a dump question) Re: When SCD does not work - then what? Your SCD-list unsubscribe request Re: Thanks Re: Your SCD-list unsubscribe request RE: Request for information Re: Your SCD-list unsubscribe request Re: Your SCD-list unsubscribe request Re: Your SCD-list unsubscribe request Re: Your SCD-list unsubscribe request Re: Your SCD-list unsubscribe request Has anyone out there with UC been really cured...back on normal diet RE: Pentasa Acetaminophen without fillers -------------------------------------------------------------------- SCD MAILING LIST ------------------------------------------------------------------- ---------------------------------------------------------------------- Date: Tue, 16 Sep 1997 20:58:59 -0400 (EDT) From: EllenAdams@aol.com To: SCD-list@longisland.com Subject: Re: Yoghurt maker Message-ID: <970916205639_1196011065@emout11.mail.aol.com> In a message dated 97-09-16 05:18:57 EDT, you write: << I'm writing from Toronto, Ontario, Canada and I'm having some >difficulty locating a yoghurt maker. >Does anybody have suggestions on where I can locate one? >> You can order a yogourmet yogurt maker by calling 514-562-8525. They are in Montreal. Perhaps they can recommend a local distributor. The yogourmet yogurt maker makes 2 liters at a time in one large container suitable for storing the yogurt in the fridge. I highly recommend buying an additional yogurt container so you can start your next batch as you are finishing the first. I find this much more convenient than the type that uses little jars. Ellen ------------------------------ Date: Tue, 16 Sep 1997 21:02:30 -0400 (EDT) From: EllenAdams@aol.com To: SCD-list@longisland.com Subject: Re: Arthritis? Fibromyalgia (Was: probably a dump question) Message-ID: <970916210133_1096114619@emout07.mail.aol.com> The information that I am passing along is just a description of the symptoms (below). I typed it all in so that Arlene (who is in Instanbul) could get some insight into her situation. As far as diet, the consistent theme in my reading on the subject is to give up sugar and all other refined carbohydrates. I am on the SCD diet for my crohns disease and so only looked into the dietary aspects of fibromyalgia to make sure that a diet such as SCD wasn't contraindicated in any way (it's not). I have found that the SCD is improving my crohns and either that or other things I'm doing are improving my fibro! Ellen The original list, typed in from a brochure is included below. In addition, I have typed in an edited portion from the book "Fibromyalgia: A Comprehensive Approach". It offers more detail in some areas than the other list. I have a lot of literature and names/addresses of organizations as well. Let me know if you want more info. No two people experience fibromyalgia in exactly the same way. This makes it very difficult to diagnosse, but there is one physical finding that is definitive. People with fibromyalgia have a sore or painfully tender feeling in some or all of the eighteen "tender points". The American College of Rheumatology says that if you hurt when at least eleven of these eighteen tender points are pressed, and you ache all over, then you have FM. Another diagnostic criterion is the presence of pain in all four quadrants of the body--left and right sides above the waist, left and right sides below the waist, for at least three months. Pain is not all there is to fibromyalgia. Disordered sleep afflicts about 75 percent (some researchers say up to 94 percent) of all people with fibromyalgia. People who have fibromyalgia usually report that they sleep lightly, are awakened by the slightest sound, and do not feel rested and refreshed in the morning. When they awaken in the morning these people feel tired, achy, and stiff. Some people think this lack of restful sleep causes FM; others think that FM pain causes the lack of restful sleep. [Note from Ellen: There was a study where healthy individuals were deprived of delta sleep and they developed the symptoms of FM. I think the sleep problem is the source and the best point of attack. For me, if I can sleep well, I feel better in all respects.] About half of FM patients complain of migraine or tension heachaches. About a quarter of FM patients suffer from temporomandibular joint (TMJ) disorder, a painful condition thought to be related to the muscles and ligaments surrounding the hinges of the jaw but not the joint itself. More than half of the people with FM suffer from irritable bowel syndrome (IBS). The most common symptom is crampy diarrhea that is often confused with colitis or Crohns disease. But IBS can also make itself known by causing constipation, abdominal pain, abdominal gas, and nausea. FM can involve gastresophageal reflux--a sour tasting reverse flow of partially digested food to the back of the throat that people sometimes call acid stomach or heartburn. Many people think the worst part of fibromyalgia are the memory and reasoning problems that often come with it. People afflicted with this cognitive dysfunction complain of being unable to remember things they have just been told, or to think a problem through to its conclusion. Others speak of "brain fog," a feeling that clouds inhabit the brain, that there is a fog surrounding them that keeps them from really being in the world. Other symptoms sometimes present with fibromyalgia: --Premenstrual syndrome (PMS) and painful menstruation --Numbness and tingling sensations --Muscle twitching --Water retention and swelling--especially of the hands, face, and feet. --Dry eyes and mouth --Dizziness --Skin sensitivity--itching and burning --Impaired coordination --Urinary urgency and/or burning --Chest pain and pressure beneath the breast bone --Intermittent hearing problems and low-frequency hearing loss All of these symptoms can be triggered or make worse by weather changes, cold or drafty environments, hormonal changes before menstruation or during menopause, stress, depression, anxiety, and physical overexertion. * * * * * * * * * This is exerpted from a brochure by the Fibromyalgia Association of Greater Washington Inc. What is Fibromyalgia Syndrome? Fibromyalgia syndrome (or FMS for short) is a complex, chronic condition which causes widespread pain and profound fatigue, as well as a variety of other symptoms. As its name suggests, fibromyalgia primarily affects the soft tissues of the body. Unlike arthritis, fibromyalgia does not cause pain or swelling in the joints; rather, it produces pain in the soft tissues around joints and throughout the body. The pain of fibromyalgia usually consists of diffuse aching or burning, often described as head-to-toe. Its severity varies from day to day and can change location, becoming more severe in parts of the body that are used the most. In some people, the pain can be intense enough to interfere with ordinary, daily tasks, while in others it causes only mild discomfort. FMS pain is often accompanied by muscle spasm. The fatique of fibromyalgia also varies from person to person. It ranges from a mild, tired feeling to the exhaustion of a flu-like illness. Like pain, it also tends to come and go. Other Symptoms In addition to pain and fatique, FMS may produce one or more of the following classic symptoms: Sleep Disturbances: Despite sufficient amounts of sleep, FMS patients may awaken feeling unrefreshed, as if they have barely slept. Alternatively, they may have trouble falling asleep or staying asleep. The reasons for the non-restorative sleep and other sleep difficulties of fibromyalgia are unknown. However, early FMS research in sleep labs documented disruptions in the deep (delta) sleep of some fibromyalgia patients. Stiffness: In addition to pain, body stiffness may prove a nagging problem for persons with FMS. Such stiffness may be particularly apparent in the early morning, after prolonged periods of sitting or standing in one position, or with changes in temperature or relative humidity. Increased Headaches or Facial Pain: Fibromyalgia patients may experience frequent migrain, tension, or vascular headaches. Headache pain may also consist of referred paint to the temporal area (temples) or behind the eyes. Approximately one-third of patients with FMS are thought to have pain and dysfunction of the temporomandibular joint, or TMJ which produces not only headaches but also jaw and facial pain. Abdominal Discomfort: Many persons with FMS experience digestive disturbances, abdominal pain, bloating, constipation and/or diarrhea. These symptoms, as a whole, are usually called irritable bowel syndrome. Irritable Bladder: FMS patients may complain of increased frequency of urination or increased urgency to urinate. Paresthesia: Numbness or tingling (for example, in the hands or feet) sometimes accompanies FMS. Also known as paresthesia, the sensation can be described as prickling or burning. Cold Hands or Feet: An unusual sensitivity to cold in the extremities, accompanied by color changes, is sometimes experienced by persons with fibromyalgia. This condition is known as Raynaud's Phenomenon. Skin Complaints: Nagging symptoms, such as itchy, dry, or blotchy skin may accompany FMS. Fibromyalgia patients may also experience a sensation of swelling, particularly in the extremities, like fingers. A common complaint is that a ring no longer fits on a finger. Such swelling, however, is not equivalent to the joint inflammation of arthritis; rather, it is a localized anomaly of fibromyalgia whose cause is currently unknown. Chest Pains: Although some persons with FMS may be initially misdiagnosed with heart disease, the chest pains associated with fibromyalgia usually result from muscle pain which occurs where the ribs meet the chest bone. Cognitive Disorders: Persons with fibromyalgia report a number of cognitive symptoms which tend to vary from day to day. These include difficulty concentrating, "spaciness", memory lapses, and being overwhelmed easily. Depression and Anxiety: Although FMS patients are frequently misdiagnosed with depression or anxiety disorders, these conditions are often a result of the chronic pain of FMS rather than the cause of those symptoms. ------------------------------ Date: Tue, 16 Sep 1997 21:11:09 -0400 (EDT) From: EllenAdams@aol.com To: SCD-list@longisland.com Subject: Re: Arthritis? Fibromyalgia (Was: probably a dump question) Message-ID: <970916210726_1461082045@emout05.mail.aol.com> Sorry guys! I didn't actually mean to post this to the SCD list. I've been getting a lot of requests for the info and I must have made some error. Ellen ------------------------------ Date: Tue, 16 Sep 1997 18:37:49 -0700 From: Dempsey <stellar1@pacbell.net> To: SCD-list@longisland.com Subject: Re: When SCD does not work - then what? Message-ID: <341F346D.432B@pacbell.net> I too am one of the folks who had to give up all dairy to make the diet work. I do take acidopholus supplements to get good bacteria, which I do really believe is extremely important. I used to eat dairy, no problem, so I fully expect, when my gut heals more, I will again be able to tolerate it. Denise ------------------------------ Date: Tue, 16 Sep 1997 22:47:36 -0400 From: SCD-request@longisland.com To: SCD-list@longisland.com Subject: Your SCD-list unsubscribe request Message-ID: <19970917024736869.AAA89@mail.longisland.com> -- This message acknowledges your request to be removed from the SCD mailing list. Thank you for your participation. If you would like to subscribe at a later date, please send message containing "subscribe" in the body to: SCD-request@longisland.com ------------------------------ Date: Tue, 16 Sep 1997 22:06:25 -0600 From: "R. Allan Partridge" <raparch@planet.eon.net> To: SCD-list@longisland.com Subject: Re: Thanks Message-ID: <341F5741.3743@planet.eon.net> Rachel, Thank you for the kind words, it is our daughter's tenacity and committment to the diet that keeps my wife and I going. She has been a stirling example for us and despite her feelings of worthlessness at times I always admire her fight. As well, the support of many like you, Lucy and others.. "there is greater value in the sum than in the parts" Regards, Partridge Family, Edmonton, AB ------------------------------ Date: Tue, 16 Sep 1997 23:19:37 -0700 From: Dempsey <stellar1@pacbell.net> To: SCD-list@longisland.com Subject: Re: Your SCD-list unsubscribe request Message-ID: <341F7679.7DC@pacbell.net> Did anyone besides me get this message from the list server? I never requested to unsubscribe. Denise SCD-request@longisland.com wrote: > > -------------------------------------------------------------------- > SCD MAILING LIST > ------------------------------------------------------------------- > -- > > This message acknowledges your request to be removed from the SCD mailing list. > > Thank you for your participation. > > If you would like to subscribe at a later date, please send message containing > "subscribe" in the body to: > > SCD-request@longisland.com ------------------------------ Date: Wed, 17 Sep 1997 11:04:10 +0100 From: hazel.pelham@bbc.co.uk (Hazel Pelham) To: SCD-list@longisland.com (SCD-list) Subject: RE: Request for information Message-ID: <1997Sep17.105818.1772.1461450@pu-smtp.radio.bbc.co.uk> Ted, Found it! Thanks very much and best of luck with your investigations. Cheers Hazel ---------- From: SCD-list To: SCD-list Subject: RE: Request for information Date: 16 September 1997 7:09 -------------------------------------------------------------------- SCD MAILING LIST ------------------------------------------------------------------- ----- Begin Included Message ----- From SCD-request@longisland.com Tue Sep 16 08:45:44 1997 From: hazel.pelham@bbc.co.uk (Hazel Pelham) To: SCD-list@longisland.com (SCD-list) X-Mailer: Microsoft Mail via PostalUnion/SMTP for Windows NT sorry i left off a 'w' from www4, i fixed it below, by then way read the three abstracts that are returned when you search for colitis AND margarine. these are fairly recent studies done in japan and the UK on the role of diet and colitis. you can search the NINE MILLION absracts (some dont have them) to you hearts content at http://www4.ncbi.nlm.nih.gov/PubMed (case insensitive ) for your search option chose MEDLINE i try things like colitis AND eicosanoid (case sensitive) or colitis AND chelation (the AND seems to be upper case sensistive) or "ulcerative colitis" you'll get too many to read all of them, but look at the MeSH terms at the bottom of each article for clues on what key words are common to your area of interest. ted ------------------------------ Date: Wed, 17 Sep 1997 07:30:33 -0500 From: Rachel Turet <rachel@longisland.com> To: SCD-list@longisland.com Subject: Re: Your SCD-list unsubscribe request Message-ID: <l03010d00b0457ce05eac@[199.171.4.149]> Dear Denise, I got the same message and wrote the list server last night for an explanation. I have no clue why it went out. If I don't get an answer today, I'll call them, Did you also get the introduction letter again this week. I'll have to find out what's going on. Obviously we're still subscribed, so there must be something else going on. Maybe someone who unsubscribed used the SCD address in the body of the message instead of their own. Rachel ------------------------------ Date: Wed, 17 Sep 1997 09:21:42 -0400 (EDT) From: EllenAdams@aol.com To: SCD-list@longisland.com Subject: Re: Your SCD-list unsubscribe request Message-ID: <970917091851_-496516246@emout13.mail.aol.com> In a message dated 97-09-17 02:16:50 EDT, you write: << Did anyone besides me get this message from the list server? I never requested to unsubscribe. >> I think we all got it! ;-) (Although I did wonder for a minute) It seems like the listserver is acting up in some way. I just hope it doesn't unsubscribe all of us! Ellen ------------------------------ Date: Wed, 17 Sep 1997 09:41:12 -0500 From: Rachel Turet <rachel@longisland.com> To: SCD-list@longisland.com Subject: Re: Your SCD-list unsubscribe request Message-ID: <l03010d02b04599801843@[199.171.4.125]> " I just hope it doesn't unsubscribe all of us!" Dear Ellen, Me too!! I'm in contact with the listserver & we seem to be fine. They'll let me know for sure, but what I think happened is that someone tried to unsubscribe & instead of using their own name in the body of the message they named the list. FYI, the listserver let me know that we currently have 114 members on the list (where is everybody??) I went into this list with basically a novice level understanding of computers and lists and in the hopes that the important "stuff" will be handled by the listserver. I think that they are doing a decent job. There always seem to be some kind of complaints going on, one persone says there are too many messages, another complains about repetition. Someone even called us "boring" recently, but I for one, would be very upset if this list was lost. I find the exchanges stimulating, informative and mostly compassionate and loving. Rachel ------------------------------ Date: Wed, 17 Sep 1997 09:34:27 -0700 From: prateeksha@infoasis.com (Prateeksha Bogardus) To: SCD-list@longisland.com Subject: Re: Your SCD-list unsubscribe request Message-ID: <v01550101b04553c70ee7@[206.40.74.43]> >-------------------------------------------------------------------- >SCD MAILING LIST >------------------------------------------------------------------- >" I just hope it doesn't >unsubscribe all of us!" > >Dear Ellen, >Me too!! I'm in contact with the listserver & we seem to be fine. They'll >let me know for sure, but what I think happened is that someone tried to >unsubscribe & instead of using their own name in the body of the message >they named the list. FYI, the listserver let me know that we currently have >114 members on the list (where is everybody??) I went into this list with >basically a novice level understanding of computers and lists and in the >hopes that the important "stuff" will be handled by the listserver. I think >that they are doing a decent job. There always seem to be some kind of >complaints going on, one persone says there are too many messages, another >complains about repetition. Someone even called us "boring" recently, but I >for one, would be very upset if this list was lost. I find the exchanges >stimulating, informative and mostly compassionate and loving. >Rachel Rachel, Ellen, Having been on the list for about 2 mos., I have never been bored and I, also, would be very upset if this list were lost. I feel enormously supported as well as informed, with my illness and for the first time, not alone! My emotional health has improved along with my physical...much needed. Viva le list! Prateeksha ------------------------------ Date: Wed, 17 Sep 1997 09:34:17 -0700 From: prateeksha@infoasis.com (Prateeksha Bogardus) To: SCD-list@longisland.com Subject: Re: Your SCD-list unsubscribe request Message-ID: <v01550100b0455316e569@[206.40.74.43]> >-------------------------------------------------------------------- >SCD MAILING LIST >------------------------------------------------------------------- >Did anyone besides me get this message from the list server? I never >requested to unsubscribe. > >Denise > >SCD-request@longisland.com wrote: >> >> -------------------------------------------------------------------- >> SCD MAILING LIST >> ------------------------------------------------------------------- >> -- >> >> This message acknowledges your request to be removed from the SCD >>mailing list. >> >> Thank you for your participation. >> >> If you would like to subscribe at a later date, please send message >>containing >> "subscribe" in the body to: >> >> SCD-request@longisland.com I also have not requested to unsubscribe! Prateeksha ------------------------------ Date: Wed, 17 Sep 1997 15:03:34 -0400 From: Laurie Myhre-Choate <Laurie_Myhre_Choate@compuserve.com> To: "INTERNET:SCD-list@longisland.com" <SCD-list@longisland.com> Subject: Has anyone out there with UC been really cured...back on normal diet Message-ID: <199709171504_MC2-20BD-2E39@compuserve.com> Hi, = It seems that most of you on this diet have pretty severe IBD problems. = My husband who is on the diet has UC, but usually proctitis. He has been on= the diet 6 months and has had just as many flareups as when not on the diet...although he recovers much much quicker. He has been taking dipent= um and it controls this problem very well(with a few flareups a year where h= e then takes rowasa short-term). The dipentum controlled his UC even when not on the diet. = Recently a car accident messed up his back pretty good. He starting taki= ng Ultram for the pain which did not do a whole lot. He finally got off of = it as he was feeling sick a lot and getting headaches. The withdrawl was ju= st terrible. He did not sleep for over 3 days! = He is trying to bear the pain and is in physical therapy. I know he hate= s this diet for the food choices and has lost a lot of needed weight. I guess I am trying to weight the advantages and disadvantages of this diet= for someone who doesn't have a severe problem in that the medication controls it with no apparent side effects. Are the long terms effects of= Dipentum so bad that he should stick it out with this diet...or should he= go back to a regular diet and just really try to limit the non SCD stuff.= = I need your input as I am just trying to help him any way I can. = Thanks. Laurie ------------------------------ Date: Wed, 17 Sep 1997 16:38:35 -0400 From: "Lynn Karakashian"<lynn.karakashian@prudential.com> To: SCD-list@longisland.com Subject: RE: Pentasa Message-ID: <85256515.00711874.00@njros1ngw04.metro.prudential.com> Hi Dan, Thanks for the words of encouragement. I seem to be feeling fine. My doctor has me on the 16 pills of Pentasa a day plus using Rowasa suppositories every night. He plans to do a colonoscopy on me in the next two weeks. Needless to say, I am not looking foward to it. But, I truly believe in the diet and notice a difference if I cheat just the slightest bit. Keep up the good spirits and thanks for you response and words of encourgagement. We all need them and believe me....they are mentally very effective. Regards, Lynn dwoods @ acs.ucalgary.ca Tuesday September 16, 1997 11:35 AM Please respond to SCD-list@longisland.com To: SCD-list @ longisland.com cc: (bcc: Lynn Karakashian/EFM/Prudential) Subject: RE: Pentasa -------------------------------------------------------------------- SCD MAILING LIST ------------------------------------------------------------------- Hi Lynn, I used to take 4 Pentasa a day since May/95. My new doctor here (I moved this year) wanted me to increase it to 8/day if I wanted to do the diet. I had lost 10 pounds since January (new job, new city, new house, ...), and was having more bloating/pain/BM. He wanted me to start nightly tube-feeding, but I took this as a major warning sign (another operation) that I would now start the SCD diet. So, in your case, taking 16/day is up to your doctor and you (and how you feel about it). If it is your first time taking it, and depending on the severity of your symptoms, I would think taking less should be ok (but I dislike doctors and their attitudes towards drugs). It's always your choice, doctors should never be put up on a pedestal. The diet is helping me and I have regained 6-8 pounds (all in the last three weeks) since my first visit with the doctor in May/97. I have just crossed 12 weeks on the diet, and still not introducing too many foods. Nut muffins and cookies are the best, and I also started eating peanut butter (all natural--just peanuts). All the best and continued good health. Thanks... Dan. *************************************************************** * Dan Woods The University of Calgary * * dwoods@acs.ucalgary.ca Calgary, AB, CANADA, T2N 1N4 * *************************************************************** ------------------------------ Date: Wed, 17 Sep 1997 16:35:27 -0700 From: "Rosset" <plrosset@pacificrim.net> To: "SCD-list" <SCD-list@longisland.com> Subject: Acetaminophen without fillers Message-ID: <199709172339.QAA31723@cascade.pacificrim.net> Dear All, I recently found that pure acetaminophen (Tylenol) is available in powdered form, if you ask the pharmacist for it. They will need to tell you how much to take. The main filler used in the capsules is cornstarch. Lucy ------------------------------ End of SCD-list V1 #42 ********************** SCD-list Thu, 18 Sep 1997 Volume 1 : Number 43 In this issue: Re: Pentasa Re: Has anyone out there with UC been really cured...back on normal diet Re: Has anyone out there with UC been really cured...back on normal diet Re: Has anyone out there with UC been really cured...back on normal diet Re: When SCD does not work - then what? Re: coconut -------------------------------------------------------------------- SCD MAILING LIST ------------------------------------------------------------------- ---------------------------------------------------------------------- Date: Wed, 17 Sep 1997 20:55:36 -0400 From: Lisa Massicotte <lmassico@xcelco.on.ca> To: SCD-list@longisland.com Subject: Re: Pentasa Message-ID: <34207C08.5A45@xcelco.on.ca> Lynn Karakashian wrote: > > ---------------------- Forwarded by Lynn Karakashian/EFM/Prudential on > 09/15/97 04:35 PM --------------------------- > Lynn Karakashian Monday September 15, 1997 04:27 PM > Prudential Investments (201) 367-7685 Fax Number: (201) 367-8076 > (Embedded image moved to file: PIC01308.PCX) > To: scd-LIST @ LONG ISLAND.COM > cc: > Subject: Pentasa > > Hello Everyone!!!!! > > My doctor just prescribed Pentasa to me. He suggested I take 16 pills a > day as well as being on the diet. Is anyone else on Pentasa and how much > do you take? My inquiring mind would like to know. And have you noticed > the difference with the medicine???? > > Looking forward to hearing from anyone. Stay Healthy!!!! > > Lynn > > --------------------------------------------------------------- > > Name: PIC01308.PCX > Part 1.2 Type: zz-application/zz-winassoc-pcx > Encoding: base64 I have been taking 2 g of pentasa plus prednisone for about a year They , plus the SCD have helped a lot . mike ------------------------------ Date: Thu, 18 Sep 1997 10:41:21 -0400 From: Bill Miller <miller@bedford.net> To: SCD-list@longisland.com Subject: Re: Has anyone out there with UC been really cured...back on normal diet Message-ID: <34213D90.62359E0B@bedford.net> Laurie Myhre-Choate wrote: > -------------------------------------------------------------------- > SCD MAILING LIST > ------------------------------------------------------------------- > Hi, > > It seems that most of you on this diet have pretty severe IBD > problems. My > husband who is on the diet has UC, but usually proctitis. He has been > on > the diet 6 months and has had just as many flareups as when not on the > > diet...although he recovers much much quicker. He has been taking > dipentum > and it controls this problem very well(with a few flareups a year > where he > then takes rowasa short-term). The dipentum controlled his UC even > when not on the diet. So, my question is: If there are flare-ups, how can it be said that dipentum is controlling the symptoms? Something to think about... What you describe seems to be an relatively successful treatment plan. To keep the flares under control without prednesone or other big hitters is excellent. In my opinion, you should avoid these drugs at all cost, since prednesone is extremely damaging and in the long run will make the UC worse by screwing up the intestinal flora balance (again my opinion). Dipentum never seemed to do anything for me, but I am unaware of any documented long term side effects, however it is my personal belief that it does have negative effects -- it is a foreign substance, just like processed foods. After discontining all maintenence drugs (dipentum, imuran) two years ago, my energy went up, without any increase in flareup frequency or duration. Does your husband see a alternative health practitioner? If he quits the diet, what are you going to do next? The net is not a complete resource for health issues, especially for the beginner. You should just pay the $20-40 a visit and get some professional advice and all your questions answered. Without my last chiropractor, I would have probably had my colon removed by now -- MDs had me that screwed up. But, I needed the personal attention to really begin to understand my body, when a symptom was bad, when it was good (headaches and diareaha, for example, are not always bad, but natural in the course of treatment). To stick with the SCD, well, these opinions are forthcoming from others I'm sure. If you decided to add foods, Ithink the most detrimental substances to colitis (in this order): all simple sugars, wheat and other high gluten grains. When I eliminated these from my diet, I noticed an immediate change in my symptoms. I'll be happy to answer any more questions on or off-list is you want. Bill ------------------------------ Date: Thu, 18 Sep 97 09:58:01 CDT From: ted.kyle@vantis.com (Ted Kyle) To: SCD-list@longisland.com Subject: Re: Has anyone out there with UC been really cured...back on normal diet Message-ID: <9709181458.AA10586@swansong.amd.com> Does your husband see a alternative health practitioner? If he quits hi bill bill wrote: "Without my last chiropractor, I would have probably had my colon removed by now -- MDs had me that screwed up. Bill" what do chiropractors do for UC ? ted ------------------------------ Date: Thu, 18 Sep 1997 15:11:12 -0400 From: Bill Miller <miller@bedford.net> To: SCD-list@longisland.com Subject: Re: Has anyone out there with UC been really cured...back on normal diet Message-ID: <34217CCF.BDADF52F@bedford.net> Ted Kyle wrote: > -------------------------------------------------------------------- > SCD MAILING LIST > ------------------------------------------------------------------- > > Does your husband see a alternative health practitioner? If he quits > hi bill > > bill wrote: > "Without my last chiropractor, I would have probably > had my colon removed by now -- MDs had me that screwed up. Bill" > > what do chiropractors do for UC ? > > ted Sorry, I forgot that chiros are mostly misunderstood by the masses. The training has dramatically changed, and I'd say they have a better understanding of nutrition and the body than most MDs -- the good schools are not for med school drop outs. Many specialize and receive in depth training in herbs, accupunture, chinese medicines, applied reflexology, nutrition and others. There are a lot of bone crackers, but if you find one that specializes in the field of your interest (my last was into allergies, accupunture, herbals, supplimentation and applied reflexology) your are getting a well trained alternative practitioner who can also advise on drugs and is trained to read and understand the medical literature. Sure this guy kept my back in line, which was helpful, but he knew that diet, supplimentation and herbs were what was going to get me off drugs and healthy. (And I got off the drugs in 4 months!) Bill ------------------------------ Date: Thu, 18 Sep 1997 14:53:10 -0700 From: "Rosset" <plrosset@pacificrim.net> To: "SCD-list" <SCD-list@longisland.com> Subject: Re: When SCD does not work - then what? Message-ID: <199709182210.PAA22126@cascade.pacificrim.net> ---------- > From: EllenAdams@aol.com > To: SCD-list@longisland.com > Subject: Re: When SCD does not work - then what? > Date: Tuesday, September 16, 1997 4:16 AM > > -------------------------------------------------------------------- > SCD MAILING LIST > ------------------------------------------------------------------- Dear Ellen, I also had a problem with the yogurt when first starting out on the diet. I'm thinking that maybe it's better to slowly ease into the yogurt if you're having problems with it, especially if you weren't much of a yogurt eater before. If that doesn't work, you could always take a break from it and test again later. I feel that if cheese and butter are well tolerated, there shouldn't be any need to eliminate all dairy. Just my opinion, of course. Lucy Ellen wrote: > I don't know what other sources there are that are non-dairy. You could > consider acidopholis supplements though. Personnally, I'm thinking about > eliminating the dairy for a couple of weeks and see what difference it makes. > I've had a bad reaction to the yogurt 3 times out of 4 lately. When I > ingest it, I quickly get an intensely painful spasming in my lower abdomen > and within minutes of that I have a round of diarreah. Nothing else on this > diet so far seems to bother me. I'm thinking about getting my calcium from > other sources (spinach, broccoli, figs, almonds) and skipping the yogurt. > (By the way, I use yogourmet starter and a yogourmet yogurt maker.) I've > heard that two weeks is a good trial period to see whether eliminating dairy > (but otherwise staying on the SCD) is helpful so I will probably try that and > see. > > Ellen ------------------------------ Date: Thu, 18 Sep 1997 15:05:28 -0700 From: "Rosset" <plrosset@pacificrim.net> To: "SCD-list" <SCD-list@longisland.com> Subject: Re: coconut Message-ID: <199709182210.PAA22132@cascade.pacificrim.net> Someone recently asked about bloating problems with coconut. I have been real happy with Tree of Life Unsweetened Coconut Shreds available at most health food stores in 6 oz. bags. I had problems with unsweetened coconut I bought in bulk. Lucy ------------------------------ End of SCD-list V1 #43 ********************** SCD-list Fri, 19 Sep 1997 Volume 1 : Number 44 In this issue: Re: When SCD does not work - then what? Re: When SCD does not work - then what? looking for L.A. resources Re: Is SCD a cure ? Re: looking for L.A. resources Re: Is SCD a cure ? Dextrose /Maltodextrin Re: Dextrose /Maltodextrin diet research ,etc -------------------------------------------------------------------- SCD MAILING LIST ------------------------------------------------------------------- ---------------------------------------------------------------------- Date: Fri, 19 Sep 1997 08:51:53 -0400 From: Matthew Cirillo <mcirill@emory.edu> To: SCD-list@longisland.com Subject: Re: When SCD does not work - then what? Message-ID: <34227569.E41473DE@emory.edu> There are other sources of "good" bacteria that can balance the flora of bacteria in your digestive tract besides yoghurt. The only one that comes to mind right away is saurkraut, if you can eat it! Actually it's not so bad once you get past the first mouthful... I think I heard somewhere (probably from this listserver) that it actually has more acidophilous - or it's equivalent - than yoghurt. I prefer the yoghurt, since I'm not dairy-intolerant. Rosset wrote: > -------------------------------------------------------------------- > SCD MAILING LIST > ------------------------------------------------------------------- > > ---------- > > From: EllenAdams@aol.com > > To: SCD-list@longisland.com > > Subject: Re: When SCD does not work - then what? > > Date: Tuesday, September 16, 1997 4:16 AM > > > > -------------------------------------------------------------------- > > > SCD MAILING LIST > > ------------------------------------------------------------------- > Dear Ellen, > I also had a problem with the yogurt when first starting out on the > diet. > I'm thinking that maybe it's better to slowly ease into the yogurt if > you're having problems with it, especially if you weren't much of a > yogurt > eater before. If that doesn't work, you could always take a break from > it > and test again later. I feel that if cheese and butter are well > tolerated, > there shouldn't be any need to eliminate all dairy. Just my opinion, > of > course. > Lucy > > Ellen wrote: > > > I don't know what other sources there are that are non-dairy. You > could > > consider acidopholis supplements though. Personnally, I'm thinking > about > > eliminating the dairy for a couple of weeks and see what difference > it > makes. > > I've had a bad reaction to the yogurt 3 times out of 4 lately. > When I > > ingest it, I quickly get an intensely painful spasming in my lower > abdomen > > and within minutes of that I have a round of diarreah. Nothing else > on > this > > diet so far seems to bother me. I'm thinking about getting my > calcium > from > > other sources (spinach, broccoli, figs, almonds) and skipping the > yogurt. > > (By the way, I use yogourmet starter and a yogourmet yogurt maker.) > > I've > > heard that two weeks is a good trial period to see whether > eliminating > dairy > > (but otherwise staying on the SCD) is helpful so I will probably try > that > and > > see. > > > > Ellen ------------------------------ Date: Fri, 19 Sep 1997 08:52:06 -0500 From: Gerry & Rene Jantzi <gjantzi3@airmail.net> To: SCD-list@longisland.com Subject: Re: When SCD does not work - then what? Message-ID: <3.0.3.32.19970919085206.0068a360@mail.airmail.net> My favorite recipe for saurkraut: Wash the saurkraut very, very well. chop one large onion and add all to the crockpot. Just cover the mixture with chicken broth and add a quarter cup of dry white wine. Sprinkle a little salt and pepper to taste, and maybe some of your favorite chicken flavoring seasonings, in moderation. Layer pork chops on the top and let it cook all day. You can substitute sausages (only SCD allowable) but those you would add in the last hour. Drain and serve. We have never found anyone who hated saurkraut that did not change their mind when they tasted "Ren=E9s Saurkraut". Enjoy, Gerry ------------------------------ Date: Fri, 19 Sep 1997 10:10:50 -0400 (EDT) From: MSWday@aol.com To: SCD-list@longisland.com Subject: looking for L.A. resources Message-ID: <970919100751_1528687191@emout03.mail.aol.com> is there anyone living/shopping in los angeles who is on the scd? i could use a source for supplies (dry curd cottage cheese, nut flour, etc...) mike p.s. what is happening to the list?? I've been lurking for months now and finally decide to "tap" in. there doesn't seem to be as much activity lately. I hope everyone wasn't "unscr.." accidentally ------------------------------ Date: Fri, 19 Sep 1997 10:18:07 -0400 (EDT) From: RosaKuhn@aol.com To: rachel@longisland.com, SCD-list@longisland.com Subject: Re: Is SCD a cure ? Message-ID: <970919101638_-2101212637@emout15.mail.aol.com> I am wondering, Rachel, what medications you are on. I have been on the diet for 11 months--in remission for 8--and am on Dipentum, Asacol and 6MP. My doctor would like to wean me from everything (I think) but the 6MP. I find that I am tired most of the time which I am not sure if I should attribute to the 6MP or the lack of certain foods in the diet. Would you happen to know anything about this? The last time he lowered my dose of 6MP, I wasn't on the diet and the UC flared up again. Thanks. Rosa ------------------------------ Date: Fri, 19 Sep 1997 15:17:57 -0500 From: Rachel Turet <rachel@longisland.com> To: SCD-list@longisland.com Subject: Re: looking for L.A. resources Message-ID: <l03010d01b0488dc83558@[208.226.99.65]> Dear Mike, I checked with the listserver and no'ones been deleted. I guess everybody'e been real busy. They have no idea why everone got the unsubscribe message. The woman there said everyone on all their list servers got the same message and she has no idea why. Sorry I can't help you on the shopping situation. I live clear across the other side of the US in LI, NY. Good luck and lets hear more from you. Rachel ------------------------------ Date: Fri, 19 Sep 1997 15:21:58 -0500 From: Rachel Turet <rachel@longisland.com> To: SCD-list@longisland.com Subject: Re: Is SCD a cure ? Message-ID: <l03010d02b0488e88626b@[208.226.99.65]> Dear Rose, I was on azulphadine for more than 8 years. I took myself off all meds (one pill at a time) about a year and a half ago with no ill effects. I'd been totally symptom free for a year at the time. I've also been diagnosed with fibromyalgia, and for me I think that thats why I'm tired a lot. I also have spondylitis ( a form of arthritis associated with UC) and it doesn't let me sleep real well so I'm sure that is also a contributing factor. Good luck to you. Rachel ------------------------------ Date: Fri, 19 Sep 1997 15:03:52 -0700 From: "lGene M. Justman" <genemash@plinet.com> To: SCD-list@longisland.com Subject: Dextrose /Maltodextrin Message-ID: <3422F6C8.761F@plinet.com> Fri. Sep. 19th From genemash@plinet.com To:SCD-request@longisland.com Well I think I finally got the formula, Does anyone know if foods with either Dextrose or Maltodextrin are permissable the book is pretty vague in this area? ------------------------------ Date: Fri, 19 Sep 1997 18:35:38 -0400 (EDT) From: EllenAdams@aol.com To: SCD-list@longisland.com Subject: Re: Dextrose /Maltodextrin Message-ID: <970919183503_-1096679647@emout11.mail.aol.com> In a message dated 97-09-19 15:50:07 EDT, you write: << Does anyone know if foods with either Dextrose or Maltodextrin are permissable the book is pretty vague in this area? >> Hmmm. I see what you mean. On p.59 it explains that you should not purchase and use Dextrose in your own food preparation because purchased Dextrose might actually contain a mixture of assorted sugars, but it does not address whether it would be okay as a listed ingredient in packaged foods. Dextrose by definition should be a monosaccharide which would imply that it would be okay. I'm not precisely sure what maltodextrin is but Maltose is a disaccharide sugar and therefore wouldn't be allowed. Hopefully someone who knows more than I can address this question. Ellen ------------------------------ Date: Fri, 19 Sep 1997 15:59:14 PST From: ACB <benkea@MAILHOST.PAC.DFO.CA> To: scdlist2 <SCD-list@longisland.com> Subject: diet research ,etc Message-ID: <3714591519091997/A03819/VANHQ1/11B99BFB0D00*@MHS> > I believe there are about 200 people on this diet (or at least >there are about 200 people calling Hughson's for almond flour for this diet). Ellen, I believe there are way more than 200 people on the diet. My estimate is in the thousands. If 200 get their flour from that one place, think about how many people don't even know about that company, and all over the world too. Anyway, I like some of your ideas about how we could get a study done, but unfortunately, I think it won't happen in the near future. It's interesting that an HMO did a study on the Zone. If you hear about any results, please let me know. (I'm not on this list anymore). Thanks, Anna benkea@mailhost.pac.dfo.ca ------------------------------ End of SCD-list V1 #44 ********************** SCD-list Sat, 20 Sep 1997 Volume 1 : Number 45 In this issue: Support Group Re: When SCD does not work - then what? Resources in LA Re: Pine Nuts & Substituting Yogurt for Cream Re: Resources in LA Re: Resources in LA Re: Re: Is SCD a cure ? mexican layer dish -------------------------------------------------------------------- SCD MAILING LIST ------------------------------------------------------------------- ---------------------------------------------------------------------- Date: Fri, 19 Sep 1997 22:37:07 -0400 From: John Chalmers <johnc@serv2.fwi.com> To: SCD-list@longisland.com Subject: Support Group Message-ID: <342336D3.4478@mail.fwi.com> Hi All Last Wednesday night I attended our support group meeting in Fort Wayne. I have been working with people there for a number of years to try to get them to use the diet. The meeting was what we call a rap session with each in attendence getting a chance to tell or talk about something of interest. I heard a number of people talking about their operations and medications. This is really discouraging to me. One young lady told of facing surgery in the next couple of months. Her surgeon has given her a choice between a resection and having her colon removed. She has been on the SCD for short periods of time but by her own admission, her addiction to sugar has prevented her from staying on the diet. The last couple to speak had driven up from Anderson, Indiana (about a 2 hour drive). The lady told the group of her great success using the SCD and that she and her husband were planning to start a SCD group. She says they have never done anything like that before but are going to figure it out and do it. Pretty neat! Our November meeting is going to be devoted to the SCD. The bonus is all the refreshments for the meeting will be consistent with the SCD. By the way, these types of refreshments have been a big hit with our group in the past. John ------------------------------ Date: Sat, 20 Sep 1997 04:23:20 PDT From: "Kurt Jensen" <kurt_j@hotmail.com> To: SCD-list@longisland.com, gjantzi3@airmail.net Subject: Re: When SCD does not work - then what? Message-ID: <19970920112320.21636.qmail@hotmail.com> >My favorite recipe for saurkraut: > >Wash the saurkraut very, very well. chop one large onion and add all to >the crockpot. Just cover the mixture with chicken broth and add a quarter >cup of dry white wine. Sprinkle a little salt and pepper to taste, and >maybe some of your favorite chicken flavoring seasonings, in moderation. >Layer pork chops on the top and let it cook all day. Gerry, I am sure no bacteria - good or bad - would survive that... - Kurt ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com ------------------------------ Date: Sat, 20 Sep 1997 11:05:02 -0400 (EDT) From: STVESTONE@aol.com To: SCD-list@longisland.com Subject: Resources in LA Message-ID: <970920105605_710323993@emout01.mail.aol.com> Mike I live in LA but have not found the DCCC. Good Luck. For almond flour, Hughson Nut Company is the way to go. And they're in California so shipping is less. (209) 883-0403 Steve ------------------------------ Date: Sat, 20 Sep 1997 11:23:44 -0400 (EDT) From: EllenAdams@aol.com To: SCD-list@longisland.com Subject: Re: Pine Nuts & Substituting Yogurt for Cream Message-ID: <970920111729_485579028@emout20.mail.aol.com> Pine nuts are the edible seeds of a pine tree. Are they allowed on the SCD? I thought they were listed somewhere in the book, but I can't find the reference. I've been reading a lot of wonderful soup recipes lately that call for 1 cup of heavy cream blended in at the end. Has anyone experimented with substituting yogurt made with cream in such a recipe? Do you need to add a bit of honey to take the sharp edge off the yogurt? Ellen ------------------------------ Date: Sat, 20 Sep 1997 10:53:07 -0700 From: prateeksha@infoasis.com (Prateeksha Bogardus) To: SCD-list@longisland.com Subject: Re: Resources in LA Message-ID: <v01550100b0495954491b@[206.40.74.47]> >-------------------------------------------------------------------- >SCD MAILING LIST >------------------------------------------------------------------- > > >Mike > >I live in LA but have not found the DCCC. Good Luck. >For almond flour, Hughson Nut Company is the way to go. And they're in >California so shipping is less. (209) 883-0403 > >Steve Mike, Steve, Is there a "Whole Foods" Grocery Store in LA? In the Bay Area, in Marin County, where I live, they are the only grocery store I have found that carries the Friendship Farmer's Cheese. Wild Oats carries one, but it is firm like brick or cheddar, although called "Farmer's Cheese" and does not resemble the softness or texture of the Friendship, which is recommended in the book. In the book, page 146, there is a resource telephone number for California. I called it and was told that number is Domestic Cheese Dairies who are a distributor for Friendship Farmer's Cheese. I asked them who in the Bay Area they distribute to and found "Whole Foods" which is very near me. You could call them at 415/ 826-7080 to get this information. Also, I called the New York State - Friendship Dairies, in Friendship, N.Y., page 147 in the book, and talked to Dave Butine re the "cream" that is listed as an ingredient. He said that the cream is added before the cheese is "made" and has less than l/2 of 1 percent lactose in it. I personally find this particular brand of Farmer's Cheese, which I consume about 2 pounds/week (mixed with my homemade yogurt for breakfast) and in the cottage cheese recipe, which I eat almost daily, to be the most comforting two things I eat. As they go down, my digestive tract feels so soothed. Good luck in finding the Friendship Farmer's Cheese! Prateeksha ------------------------------ Date: Sat, 20 Sep 1997 11:01:52 -0700 (PDT) From: Tom Robinson <tomr@vader.inow.com> To: SCD-list@longisland.com Subject: Re: Resources in LA Message-ID: <199709201801.LAA12516@vader.inow.com> Mike and Steve, Here in the San Francisco Bay Area, and maybe in southern California as well, dry curd cottage cheese is more often called baker's cheese. Also, several weeks ago there was a post that gave the name of a store in San Francisco that was willing to ship DCCC to customers. Tom > > -------------------------------------------------------------------- > SCD MAILING LIST > ------------------------------------------------------------------- > > > Mike > > I live in LA but have not found the DCCC. Good Luck. > For almond flour, Hughson Nut Company is the way to go. And they're in > California so shipping is less. (209) 883-0403 > > Steve > -- ---------------------------------------------------------------- Tom Robinson <tomr@inow.com> ---------------------------------------------------------------- ------------------------------ Date: Sat, 20 Sep 1997 16:04:22 -0400 (EDT) From: RosaKuhn@aol.com To: SCD-list@longisland.com Subject: Re: Re: Is SCD a cure ? Message-ID: <970920160338_2030607656@emout08.mail.aol.com> Rachel, I thank you for your reply. I tried to send something earlier today, but I don't know if it worked. Thanks again. Rosa ------------------------------ Date: Sat, 20 Sep 1997 19:23:52 -0400 (EDT) From: SHADOWPUP@aol.com To: SCD-list@longisland.com Subject: mexican layer dish Message-ID: <970920192048_1398282006@emout09.mail.aol.com> has anyone come up with layering cooked, mashed beans, avocado, onion, cheese, tomatoes, green pepper, ground beef and homemade salsa? sounds good Joan ------------------------------ End of SCD-list V1 #45 **********************
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