SCD-list October 1997 SCD-list Sun, 12 Oct 1997 Volume 1 : Number 67 In this issue: Book availability Re: additional allowable food Re: SCD-list V1 #66 thanks for recipes Re: Chocolate and the SCD diet Re: potential SCD recipes (?) Re: Bleeding Improvement on the Diet? Re: Bleeding Improvement on the Diet? Re: Duplicate Mail, Thanks Rachel Re: Bleeding Improvement on the Diet? Food Recalls Hi everyone Re: Hi everyone Re: Hi everyone Re: Hi everyone plantains Re: Hi everyone Re: Hi everyone Re: Hi everyone Re: Bleeding Milk Allergy? RE: Bleeding Improvement on the Diet? Reaching Elaine Beginning on the Diet Re: Hi everyone Re: Reaching Elaine -------------------------------------------------------------------- SCD MAILING LIST ------------------------------------------------------------------- ---------------------------------------------------------------------- Date: Sat, 11 Oct 1997 18:30:16 -0400 From: John Chalmers <johnc@serv2.fwi.com> To: SCD-list@longisland.com Subject: Book availability Message-ID: <343FFDF8.2625@mail.fwi.com> All I have seen some messages lately regarding the book. The book is available through the web site http://www.fwi.com/cmg/ We try to ship the book within 24 hours. One writer wrote that shipping and handling was $6.50 from another source. I charge $3.50. The shipping and handling charge covers the postage, padded envelope, mailing label, and the trip to the post office. The web site is pretty much a break even proposition so I can assure you that the postage and handling is not generating big profits. In fact, all proceeds go back into helping to get the word out about the SCD. John ------------------------------ Date: Sat, 11 Oct 1997 19:47:47 -0400 (EDT) From: EllenAdams@aol.com To: SCD-list@longisland.com Subject: Re: additional allowable food Message-ID: <971011194734_1376154030@emout16.mail.aol.com> In a message dated 97-10-11 14:22:09 EDT, you write: << Does the SCD diet allow plantains? They're from the banana family, I just haven't seen it mentioned anywhere. Also, how about almond milk (without forbidden sweetner or homemade kind using honey). And date sugar for cooking/baking? >> from page 58 "Coconut milk and almond milk may be tried after six months" I don't see any reference to plantains or date sugar. On page 48 the book says "It is recommended that nothing be eaten other than those foods listed in chapter 9", so I can't claim that Elaine wouldn't have a problem with it, but I figured I'd look into it further. Below is some info on plantains I got from an encyclopedia. In my opinion they wouldn't be a good idea on SCD because the fruit is starchier than a banana. Bananas have to be fully ripe to eat them on SCD because in the earlier, less ripe stages they have a lot of starch. Once they are fully ripe, the starch has converted to sugar and we can digest them. It would appear that plantains do not go through this same metamorphosis. "Plantain is the common name both for a type of banana and a family of annual herbs. The name is most widely applied to a subspecies of the banana, Musa paradisiaca, whose large fruit is starchier than ordinary bananas and must be cooked before it is eaten. Plantains, eaten boiled or fried, or dried and ground into meal or flour, are a staple food in tropical countries where bananas may also be grown." I have no great insights on date sugar. E ------------------------------ Date: Sat, 11 Oct 1997 20:19:59 -0400 (EDT) From: PI5DA@aol.com To: SCD-list@longisland.com Subject: Re: SCD-list V1 #66 Message-ID: <971011201958_2033384497@emout13.mail.aol.com> Mike- Please tell your friend Kerri with CD that she definately has my support. I am new to this listing (only a couple of weeks- that is when I was formally diagnosed with CD and started the SCD diet) I don't know what I would have done without the internet. That's how I found out about the SCD book and diet, and this wonderful support group. I feel like I am not alone and others care and support one another. Perhaps if you have a printer you can print out some of the notes writers post in the list for her. And tell her I, and others I am sure, are wishing her well, and will be thinking of her. Simone St. Petersburg, FL ------------------------------ Date: Sat, 11 Oct 1997 17:42:55 PDT From: "List Serv" <lserv@hotmail.com> To: SCD-list@longisland.com Subject: thanks for recipes Message-ID: <19971012004255.28991.qmail@hotmail.com> Those Fit for Life recipes look great -- especially the pie crust YES -- I'd love more. THANKS Mary ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com ------------------------------ From: prateeksha@infoasis.com (Prateeksha Bogardus) To: SCD-list@longisland.com Subject: Re: Chocolate and the SCD diet Message-ID: <v01550104b0657c3c262d@[206.40.74.33]> >-------------------------------------------------------------------- >SCD MAILING LIST >------------------------------------------------------------------- Hi Susan, So chocolate is your biggest downfall? I looooooove chocolate but I haven't had any since starting the diet 4 mos. ago! And my pain is lessening all the time; my morale is going up, up, up and I have less, less, less craving for chocolate. This diet in order to work, requires 100% commitment. It took me 2 weeks to get myself to that place inside myself where I could commit to giving up all grains, starches and sweets, caffeine, alcohol, chocolate, soy products, but I've done it and am feeling better than I have in years. It's worth it...by a hell of a lot. See for yourself, and ....keep reading the emails and participating...that's what we're here for, to support each other. Good luck choco lady, Prateeksha >Hi; my name is Susan Taylor and am new to this list. I wanted to >introduce myself. I was diagnosed with Crohns and colitis in December >of 1996. I have been reading letters from the Web site since about >January 1997. I have tried to stay on the diet with some success.but >I have to admit that chocolate is my biggest downfall. Just yesterday >I >had this bad abd cramping that lasted for over 5 hours and I wanted to >curl up and die. In my panic I called my doctor who has increased my >prednisone to 40mg/day and put me on 6-MP and flagyl. What do you >think. I am wondering why so much prednisone. Well I guess this is >more than enough information for my hello message. > > > > >_____________________________________________________________________ >Sent by Yahoo! Mail - http://mail.yahoo.com ------------------------------ From: prateeksha@infoasis.com (Prateeksha Bogardus) To: SCD-list@longisland.com Subject: Re: potential SCD recipes (?) Message-ID: <v01550105b0657e84af44@[206.40.74.33]> >-------------------------------------------------------------------- >SCD MAILING LIST >------------------------------------------------------------------- > Hello Simone, Thanks for the recipes. I would love to get a copy of the others as well if you're up for it...you could just send them to me direct. Thanks a bunch, Prateeksha Hello everyone, > >I was looking through all my cookbooks in attempt to find some other recipes >for a variation in cooking/baking. I found some in the FIT FOR LIFE >cookbook, and would like to share them with you. I would like some feedback >if they are forbidden in the diet. I think they would be delicious, although >I haven't yet personally made them yet. > >FRUINOLA > >2 large apples, peeled and coreed 1/4C coarsly ground almonds >1 Tbs currants 2 tsp sweetner ( >the book says maple syrup. Maybe honey instead?) >1/4 C shredded coconut (opt) 1/2 tsp ground cinnamon >1/4 C diced dried figs 1/4 c fresh apple >juice (or cider according to SCD) > >1. Place the apples and currants in food processor and coarsely grind. >2. Mix the apple mixture with the rest of the ingredients. Mix well. > (serves 2) > >CHEWY BREAKFAST PUDDING > >2 large dates >1 apple, peeled, and cut into quarters >1 large frozen banana >3 large dates, diced into chewy bits > >1. Place the first 4 ingredients in blender and puree into thick pudding. >2. Pour mixture into bowl and stir in dates. Eat with spoon. (serves 2 -3) > > >STANDARD FRUIT PIE CRUST > >1/3 C sunflower seeds 1/3 C dried, unsweetend shredded >coconut >1/2 C sesame seeds 1/2 to 1 C raisins (enough to make >to mixture gooey) >1/3 C almonds or pecans 1 C soft pitted dates > >1. Grind the seeds, nuts, and coconut to a fine meal in a food processor. > Add fruit and process, adding additional raisins, as necessary until the >mixture forms into a ball. >2. Press mixture into a 9-in. pie plate. The crust will be nearly 1/4-in. >thick. Refrigerate a couple of hours before using. > >Note: You can substitute any combination of seeds and nuts to equal >quantities in recipe > If mixture does not ball up, add a few Tbs. apple juice, of water. >Variation: For a delicious high-energy treat, roll this mixture into >walnut-size balls or logs, roll in coconut, and freeze. > > >PEACHES AND CREAM PIE > >1 standard fruit pie crust (above) 1/2 C water >5-6 large peaches, peeled 1 tsp. vanilla >extract >3 Tbs fresh orange juice 1/3 C >sunflower oil >1/2 C raw cashew pieces >3 Tbs sweetner (book asks for maple syrup) > >1. Prepare the crust and set in refrigerator or freezer. >2. Sclice peaces in half moons. In a mixing bowl, combine the peaches with >the OJ and set aside. >3. Place cashews in blender with sweetner, water, and vanilla. blend until >creamy and smooth. While tha blender is on LOW, add oil in a thin stream >through the opening lid until the mixture thickens but is slightly runny. >4. Coat bottom of crust with a thin layer of the cashew mixture. Add layer >of peach slices in flower petal fashion, spread the cashew mix again and >continue so until you end with a top layer of peaches. >5. Refrigerate at least 2 hours before serving. (...if you can wait that >long) (serves 8) > > >******I have more recipes. If anyone is interested, I could post some more. > They contain nothing that is forbidden on the diet. >They are: > >PEANUT BUTTER-BANANA PIE >POWER BARS (uses dried bananas) >FRUIT CHEWIES (uses dried bananas) >FALL FRUIT BREAKFAST PUDDING (uses home made Almond Milk [water & almonds]) >COCOBANANA CEREAL (no cerals, only almond milk) >APPLENUT CEREAL (again, no cereals, only almond milk) >FRUIT AND JUICE BASED SAUCES FOR FRUIT SALADS (eg., Creamy peach sauce, >apple-date sauce, pina-banana sauce, applecado sauce...) >SMOOTHIES (eg. strawberry, Dutch apple, strawberry-papaya delight, >banana-peach, mango paradise, watermellon-rasberry, apple-melon, >tutti-frutti, papabanana, appleberry) >BANANA 'MILK' >EASY ZUCCHINI AND VEGATABLES IN A SKILLET >ITALIAN-STYLE ZUCCHINI >SKILLET PEAS AND ROSEMARY >PETITE PEAS WITH THYME AND GARLIC >SWISS CHARD AND TOMATOES >ASPARAGUS BOLOGNESE > > >from Simone :) ------------------------------ From: prateeksha@infoasis.com (Prateeksha Bogardus) To: SCD-list@longisland.com Subject: Re: Bleeding Improvement on the Diet? Message-ID: <v01550103b0657a1ea6ce@[206.40.74.33]> >-------------------------------------------------------------------- >SCD MAILING LIST >------------------------------------------------------------------- Hi, Jane, welcome to the SCD group. The yogurt at the health food stores has lactose in it so you are probably lactose intolerant (like me) and can't drink smoothies made outside your home with anyother kind of yogurt (that has not been fermented for at least 24 hours). Read the book ... fast... and it will educate you about the diet as well as provide you with recipes, and guidelines. With regard to your Candida, why don't you call Elaine again...and ask her about the diet in relation to your Candida? For sure, you probably won't be able to eat anything with fruit, and perhaps have to give up the honey...which is going to limit you on the diet considerably...but that still leaves veggies and meat, poultry and fish! Good luck and do come with your questions...That's what we're here for. Prateeksha >I don't know how to use this listserv as I just signed on a few days ago. > I've never done anything like this on the computer before but I have been >reading everything on this SCD site like crazy. I stumbled across it when I >was on a celiac site and found it immediately interesting because the celiac >diet was not helping me (I couldn't even handle rice). None of their >alternative grains worked for me. I called to order the book and actually >got Elaine on the phone. She was very helpful and I should get my book this >week. From reading the information off the SCD site I've been following the >diet as closely as I can figure out. It has already helped! I do have one >beginning question though - I hate yoghurt! What to do? I have cramps if I >drink a fruit smoothie with yoghurt from the health food store. I've also >been told I have candida. I was discouraged when one of your writers >suggested that someone might have to go off the SCD diet and work on the >candida problem first, although I heard in the book Elaine says the SCD diet >works well for those with candida. I think this forum is a good one and I >hope I can participate. Thank-you for listening! Jane ------------------------------ From: prateeksha@infoasis.com (Prateeksha Bogardus) To: SCD-list@longisland.com Subject: Re: Bleeding Improvement on the Diet? Message-ID: <v01550102b06577cb1b06@[206.40.74.33]> >-------------------------------------------------------------------- >SCD MAILING LIST >------------------------------------------------------------------- Hi Deanna, I also have UC, but no bleeding; however, when I first started the diet (6/15) I could not eat nutflour for about two months! However, the cheesecake made without nut crust, was an everyday staple for me. I also was a vegetarian (for 25 years) and upon starting the diet found I had to eat both fish and chicken to maintain my strength. I had to puree veggies at first and could only eat carrots and squash. Fruit was out, but not grape juice, cut by half with water. And mint tea...that was about it for about 2 mos. And I lost 10 pounds! I have gained it all back since I was able to expand my intake of the foods on the diet. Just go very slow and don't get caught up in variety of foods...stick to what doesn't cause pain, for now, just concentrate on that...what doesn't cause pain...Elaine says the pain is usually the first to go...usually, but not always. You've come to the right place for support...this group has been my "saving grace." Good luck, Prateeksha >Hello Everyone. I'm new to this diet, and this web sight. I must say it is >a relief to have a place to go when I feel really sorry for myself! In other >words, it's nice to know I'm not alone. > >I started the diet 10 days ago, while in the midst of the worse flare up I've >had yet (UC/one and one-half years). I know my doctor is going to suggest >another scope when I go back in two weeks, and I was hoping to have positive >news for her by then so as to avoid this action. > >Therefore, my question is when does the bleeding stop? Currently, I'm only >eating fish and very overcooked vegetables. (I've been a vegetarian for six >years, but have recently incorporated fish into my diet, and last night I >even "stooped" to grill a piece of chicken, simply for variety.) I started >with nut flour, only for two days, but thought it wise to discontinue it >after reading several posts about the products being hard to digest when you >first start the SCD. > >I may be expecting too much too soon, but would appreciate any input on this >subject. > >Thanks. Deanna ------------------------------ From: prateeksha@infoasis.com (Prateeksha Bogardus) To: SCD-list@longisland.com Subject: Re: Duplicate Mail, Thanks Rachel Message-ID: <v01550101b06576e3e47a@[206.40.74.33]> >-------------------------------------------------------------------- >SCD MAILING LIST >------------------------------------------------------------------- I also am receiving duplicate mail and am wondering why? 47 emails today! Help!!!!!!!! Prateeksha >Why am I receiving every post twice? > >First, it is in chronological order, ascending (oldest to newest); then in >chronological order, descending (newest to oldest). > >Rachel: Thanks for the encouragement about resuming yoga. > >Marlena >Philadelphia, PA ------------------------------ Date: Sun, 12 Oct 1997 06:54:27 -0400 (EDT) From: KevandDee@aol.com To: SCD-list@longisland.com Subject: Re: Bleeding Improvement on the Diet? Message-ID: <971012065426_-25875721@emout12.mail.aol.com> Dear Rachel and Prateeksha: Thanks for the advice...guess it's one day at a time! Deanna ------------------------------ Date: Sun, 12 Oct 1997 09:12:39 -0400 (EDT) From: EllenAdams@aol.com To: SCD-list@longisland.com Subject: Food Recalls Message-ID: <971012091238_-858884679@emout09.mail.aol.com> Hey guys! Given that we're all diligently reading labels, I thought you might be interested in something I came across. I hadn't realized that the FDA actually runs analysis on foods on the market and will force a recall of the food if it has undeclared ingredients. They recognize that undeclared ingredients are a health risk to those who could be allergic/sensitive to them. This is the enforcement side of the FDA. They post the issues they uncover to their website. The current report is at: http://www.fda.gov/bbs/topics/ENFORCE/ENF00506.html Below is a sample entry from the report: PRODUCT Country Sorghum Cane Molasses. Recall #F-835-7. CODE Uncoded. MANUFACTURER Rachel Syrup Farm, Dekalb, Mississippi. RECALLED BY Kenneth Hawks Produce, Cana, Virginia, by telephone during the week of August 24, 1997. Ongoing recall resulted from sample analysis and followup by the North Carolina Department of Agriculture. DISTRIBUTION North Carolina. QUANTITY 15 cases were distributed. REASON The product, falsely labeled as "Country Sorghum Cane Molasses", is misbranded as it was found to contain maltose, which is associated with corn syrup and not molasses. ------------------------------ Date: Sun, 12 Oct 1997 08:36:45 -0700 (PDT) From: Susan Taylor <susantaylor1@yahoo.com> To: SCD-list@longisland.com Subject: Hi everyone Message-ID: <19971012153645.1027.rocketmail@send1a.yahoomail.com> Hi. I am new to the list and diet. My name is Susan Taylor and I was diagnosed with Crohns and colitis in December of 1996. I have never done Email before so I could use some pointers. Let me know if anyone gets this message. simply susan _____________________________________________________________________ Sent by Yahoo! Mail - http://mail.yahoo.com ------------------------------ Date: Sun, 12 Oct 1997 12:23:55 -0500 From: Rachel Turet <rachel@longisland.com> To: SCD-list@longisland.com Subject: Re: Hi everyone Message-ID: <l03010d00b066b7f39015@[206.112.46.16]> Dear Sue, You're in. Have you tried the Specific Carbohydrate diet? Rachel ------------------------------ Date: Sun, 12 Oct 1997 12:34:15 -0400 (EDT) From: Kebridan@aol.com To: SCD-list@longisland.com Subject: Re: Hi everyone Message-ID: <971012123414_946397486@emout03.mail.aol.com> Susan - I'm also new to the list and 2 days ago I got brave enough to type a reply and people did get it - got yours! I don't have your problem, I have celiac disease, but the diet is all the same so I'm anxious to see if we stick to it and how it works. Joan if you're reading this I forgot to ask you if you had candida and how you knew? I read recently some M.D. article that said if you were diagnosed with candida is was basically a "junk" diagnosis and just the "in" thing for our generation. I think I also forgot to say that when I eat the nut muffins I get some bloating, gas, and leaky gut. I think I'm going to have to stick to the basics for some time. How about you? Take care, Jane ------------------------------ Date: Sun, 12 Oct 1997 09:40:09 -0700 From: "Rosset" <plrosset@pacificrim.net> To: <SCD-list@longisland.com> Subject: Re: Hi everyone Message-ID: <199710121745.KAA27860@cascade.pacificrim.net> Dear Susan, Welcome to the group. Your posts are coming in. About the cheating with eating chocolate, all I can say is try to "keep your eyes on the prize." That's what works for me. Keep us posted. Lucy ---------- > From: Susan Taylor <susantaylor1@yahoo.com > > To: SCD-list@longisland.com > Subject: Hi everyone > Date: Sunday, October 12, 1997 8:36 AM > > -------------------------------------------------------------------- > SCD MAILING LIST > ------------------------------------------------------------------- > Hi. I am new to the list and diet. My name is Susan Taylor and I was > diagnosed with Crohns and colitis in December of 1996. I have never > done Email before so I could use some pointers. Let me know if anyone > gets this message. > > > simply > susan > > > > > _____________________________________________________________________ > Sent by Yahoo! Mail - http://mail.yahoo.com ------------------------------ Date: Sun, 12 Oct 1997 11:08:17 -0600 From: aagvani@muse.sfusd.k12.ca.us (Steve Hooker) To: SCD-list@longisland.com Subject: plantains Message-ID: <199710121700.KAA28905@muse.sfusd.k12.ca.us> Simone, This has come up before, and the answer was yes. At the time, it was in reference to plantain chips(which,by the way, are every bit as good as potato chips). If you manage to find them without hydrogenated oil, let me know. With regard to almond milk, we haven't found any at the health food store that was allowable so far. Elaine says in the book that almond milk is ok though, and we sometimes make it for aour son. It is very good for you and tastes great too, but it is a lot of work. You soak almonds in water overnight. The next day, you grind them up in the blender and strain the resulting liquid. As always, sweeten with honey if desired. Date sugar should be fine as long as it is pure. We eat a lot of dates. They are so sweet that it's hard to imagine why they would add sugar to them, but sometimes they do. Steve >Does the SCD diet allow plantains? They're from the banana family, I just >haven't seen it mentioned anywhere. Also, how about almond milk (without >forbidden sweetner or homemade kind using honey). And date sugar for >cooking/baking? > >Thanks, Simone ------------------------------ Date: Sun, 12 Oct 1997 14:11:49 -0400 (EDT) From: EllenAdams@aol.com To: SCD-list@longisland.com Subject: Re: Hi everyone Message-ID: <971012141149_-1764162133@emout03.mail.aol.com> In a message dated 97-10-12 12:34:32 EDT, you write: << Susan - I'm also new to the list and 2 days ago I got brave enough to type a reply and people did get it - got yours! I don't have your problem, I have celiac disease, but the diet is all the same so I'm anxious to see if we stick to it and how it works. >> Actually the SCD is more restrictive than is usually necessary for celiac's disease. The SCD is gluten free but also free of a lot of other stuff! A basic gluten free diet would offer you more foods to choose from and a whole range of flour substitutes that we cannot use on SCD. I only mention this in case you didn't know. You should find relief from the SCD, but if you find it very limiting or difficult to follow you should look into the gluten free diets as a move towards a broader diet that still avoids gluten. This would be better than giving up the diet approach all together if you get frustrated with the SCD. There are many resources for celiacs disease. If you aren't aware of what's out there you might want to send an email to "donwiss @ panix.com". Don has celiac's disease and is very knowledgeable. He personally offers a lot of resources to celiacs through a listserver than he pays for himself. He is generous with information for those who are seeking insight. I'm sure he wouldn't mind hearing from you. I hope you find this helpful. Ellen ------------------------------ Date: Sun, 12 Oct 1997 15:17:47 -0400 (EDT) From: Kebridan@aol.com To: SCD-list@longisland.com Subject: Re: Hi everyone Message-ID: <971012151512_-528263749@emout18.mail.aol.com> Ellen - I was on a celiac diet for over a year without it working. I could not tolerate ANY of the alternative flours - even rice flour. When you work with the celiac "people" their receipes frequently use these flours so I was very limited. I talked with Elaine briefly on the phone and she was not the least bit surprised I could not handle these flours and said rice flour was particularly bad. Wasn't the SCD developed with celiac in mind? Even though there are different diseases for the "intestines" it does seem like this is a weak area of the body for many people. Wish I could do the celiac diet but I'm happy to have found this group. I wonder if there are any other celiacs out there who have this problem? Jane ------------------------------ Date: Sun, 12 Oct 1997 15:54:12 -0400 (EDT) From: EllenAdams@aol.com To: SCD-list@longisland.com Subject: Re: Hi everyone Message-ID: <971012155411_-627873464@emout11.mail.aol.com> In a message dated 97-10-12 15:18:14 EDT, you write: << I was on a celiac diet for over a year without it working. I could not tolerate ANY of the alternative flours - even rice flour. When you work with the celiac "people" their receipes frequently use these flours so I was very limited. >> I know what you mean. When I was first on the SCD, I thought that celiac cookbooks might have recipies I could use on the SCD. No such luck. All the recipes called for various gluten free flours that are unallowed on SCD. I felt like they took the easy way out! (I didn't realize that you had already tried the celiac diet when I read your original post. I thought you were newly diagnosed for some reason). Based on a recent posting, I'm thinking about buying the cookbook "fit for life". It sounds like it offers some interesting options that are legal on the SCD. My favorite "regular" cookbook that has recipes which are legal on SCD is the "Silver Palette Cookbook". I've been trying their entree and soup recipes primarily. They cook with all fresh ingredients so a lot of their recipes are fine as is. Their cream soup recipes often call for creme fraishe which is regular cream mixed with sour cream and left on the counter overnight. In the future I'll probably try to adapt these recipes to use yogurt made with half and half or homemade lactose-free sour cream. I also bought a Jewish cookbook. Some of the passover dessert recipes call for almond flour, and I've been kidding a bachelor friend of mine that he can eat at my house during passover because most of the items he must avoid during passover aren't allowed on SCD! Take care, Ellen ------------------------------ Date: Sun, 12 Oct 1997 16:17:57 -0400 (EDT) From: EllenAdams@aol.com To: SCD-list@longisland.com Subject: Re: Bleeding Message-ID: <971012161753_1099877457@emout08.mail.aol.com> I've been on the diet about a month and a half now. It's made a huge difference in the quality of my life. I hadn't even realized how disabled I was by the pain and bloating until it went away! (I've never actually made it to remission since the onset of my crohns 2.5 years ago). Suddenly, though, I'm getting a bit concerned. I've started bleeding and that was never one of my symptoms. I don't have diarreah (I never did have a big problem with that). The bleeding isn't continuous--just every couple of days--but when it appears there's quite a bit of it. It's bright red with a few clots. I've had some minor pain with it--it feels different than the crohns pain I've endured for so long. I'm not bloated and don't feel really bad. It's just kinda concerning. Should I be worried? I keep trying to tell myself that bleeding is a normal part of crohns and lots of people experience it. I don't get the impression that it indicates some medical crisis but I don't know. Should I rush to see my doctor? Is there anything in particular as far as the diet that I should try? I haven't added any new foods lately. When the bleeding started I was overexerting myself--running up and down the stairs at a friend's house trying to care for her after surgery (I generally don't do stairs--I live on one floor at home). But it hasn't cleared up since I moved back home and stopped racing around. Thoughts? Ellen ------------------------------ Date: Sun, 12 Oct 1997 14:02:43 -0700 From: Pat Sullivan <psullivan@SalesLogix.com> To: SCD-list@longisland.com Subject: Milk Allergy? Message-ID: <E0C18E118B25D1118AC000805F4B98460A1D5D@LOGIXMAIL> I have been on SCD for about 14 days and am very pleased with my bodies response so far. However, in "flare-ups" in the past, I discovered that I could not tolerate Milk, Yogurt, Cheese etc. I thought with eating Homemade Yogurt as per the book, and eating allowed cheeses that I would possibly be able to now eat these. I have tried yogurt mixed with correct dry curd cheese twice and both times felt very tired and weak afterwards, and last nite tried about 1.5 oz's of "allowed" Cheddar Cheese. I got very bloated and nauseous. Is it likely that I am trying these foods too early? That I will be able to tolerate them later? Or has anyone found that they simply have an "allergy" to milk proteins and can't eat these on SCD at all? If so, this is disappointing as it expands the things I can eat so much. Thanks for your input! Pat ------------------------------ Date: Sun, 12 Oct 1997 14:02:50 -0700 From: Pat Sullivan <psullivan@SalesLogix.com> To: SCD-list@longisland.com Subject: RE: Bleeding Improvement on the Diet? Message-ID: <E0C18E118B25D1118AC000805F4B98460A1D60@LOGIXMAIL> Jane, Over the past 10 years have been diagnosed numerous times as having Candida. The anti-fungal medicines, especially the natural ones like capryllic acid and grapefruit seed extract along with drug anti-fungals like Nizoril and Diflucan seemed to help me albeit very gradually. I retrospect, however, the recommended Candida Diet was very destructive to me and I am now convinced, since discovering SCD, dramatically postponed my getting into remmission which usually would take 4 -7 months and would recur 6-18 months later. I have kept detailed journals for 10 years and going back and reading them now in light of SCD almost makes me feel stupid for not seeing the obvious connection between my prolonged and varying symptoms directly corresponding to eating complex carbohydrates. It is so obvious to me now. Oh well! Don't make the same mistake. I have only been on the SCD diet for 14 days after experiencing yet another flare up of what I have been taught to think of as Candida. After looking at things differently after reading Elaines book, I am now convinced that Candida is but a symptom of a deeper issue that SCD addresses. Already in 14 days I am feeling much, much better and can tell I am recovering faster than I have ever recovered on the Candida Diet. I am using the SCD diet with Capryllic Acid and a product called Caps Plus. My recommendation is that you focus on SCD and if you want to add some anti-fungul natural killer substances use these. The Candida Diet, however, is not good if your primary issue is poor digestion of carbohydrates as per SCD. n addition, with the Candida diet, honey and fruit is ACCURSED, I found myself at first with SCD trying these with "fear and trepidation" but to my surprise I had no problem at all. I found with the Candida Diet, I had little energy at all and this is because they don't allow anything that your body can easily and readily make energy from. Plus they push "complex Carbos" that you can't digest but the Microbes can. Unless you have massive problems with Thrush or esophogeal candida you should have no problems with fruit or honey. Good Luck and God Bless! Pat > -----Original Message----- > From: Kebridan@aol.com [SMTP:Kebridan@aol.com] > Sent: Saturday, October 11, 1997 10:22 AM > To: SCD-list@longisland.com > Subject: Re: Bleeding Improvement on the Diet? > > -------------------------------------------------------------------- > SCD MAILING LIST > ------------------------------------------------------------------- > I don't know how to use this listserv as I just signed on a few days > ago. > I've never done anything like this on the computer before but I have > been > reading everything on this SCD site like crazy. I stumbled across it > when I > was on a celiac site and found it immediately interesting because the > celiac > diet was not helping me (I couldn't even handle rice). None of their > alternative grains worked for me. I called to order the book and > actually > got Elaine on the phone. She was very helpful and I should get my book > this > week. From reading the information off the SCD site I've been > following the > diet as closely as I can figure out. It has already helped! I do > have one > beginning question though - I hate yoghurt! What to do? I have cramps > if I > drink a fruit smoothie with yoghurt from the health food store. I've > also > been told I have candida. I was discouraged when one of your writers > suggested that someone might have to go off the SCD diet and work on > the > candida problem first, although I heard in the book Elaine says the > SCD diet > works well for those with candida. I think this forum is a good one > and I > hope I can participate. Thank-you for listening! Jane ------------------------------ Date: Sun, 12 Oct 1997 14:37:25 -0700 From: Moira <moira@megamed.com> To: SCD-list@longisland.com Subject: Reaching Elaine Message-ID: <2.2.16.19971012143518.2ee7aa3a@megamed.com> Does anyone know how to reach Elaine, I would like to consult with her regarding the SCD diet and neurological disorders.Thank you. Moira ------------------------------ Date: Sun, 12 Oct 1997 14:37:27 -0700 From: Moira <moira@megamed.com> To: SCD-list@longisland.com Subject: Beginning on the Diet Message-ID: <2.2.16.19971012143520.3037b096@megamed.com> I have just started my 5 year old autistic son on the diet. Rather than suffering from diarrhea per se, he has high counts of both candida and "bad" bacteria, (from excessive antibiotics for ear infections). Toxins and metabolites from these two things produce neurological symptoms. Do I need to start as carefully as those with actual bleeding/diarrhea? He used to have diarrhea and of course I listened to the doctors and they did not know what to do. Now, he has been on a celiac diet which helped him a lot, however, I am hoping for more improvement on this diet as we get rid of candida and the "bad" bacteria which are feeding on undigested carbohydrates. I would appreciate any suggestions. Yesterday we made the zucchini muffins and he loved them, I don't think I ground the nuts quite enough, we are getting a shipment from Hughson's by Tuesday. I am holding off on the honey/fruits due to candida. Also, I could use breakfast suggestions. We made the chicken soup in the book and he loved it. Will food sensitivities go away? With the leaky gut (from antibiotics) the proteins from foods such as beef got out into his blood and he has antibodies to them. On an ELISA or RAST test, he tested as "allergic" to dairy, gluten, beef, peanuts, yeast, and corn. Do any of these allergies go away? How long does it take for the gut to heal, if you stay on the diet? Moira ------------------------------ Date: Sun, 12 Oct 1997 18:11:58 -0400 (EDT) From: Kebridan@aol.com To: SCD-list@longisland.com Subject: Re: Hi everyone Message-ID: <971012180945_1065806152@emout04.mail.aol.com> Hi Ellen I thought the celiac diet was too good to be true, alas... but I appreciate you recommending it because if it would work I think it's easier. You sound like you're a good cook and basic cooking is a neccessity when you're trying to feed a family and cook for yourself. Jane ------------------------------ Date: Sun, 12 Oct 1997 18:39:30 -0400 From: Benito Rey <brey@interlog.com> To: SCD-list@longisland.com Subject: Re: Reaching Elaine Message-ID: <344151A2.2E51@interlog.com> Moira wrote: > > -------------------------------------------------------------------- > SCD MAILING LIST > ------------------------------------------------------------------- > Does anyone know how to reach Elaine, I would like to consult with her > regarding the SCD diet and neurological disorders.Thank you. Moira Elaine's phone and fax: ph 905 349 3443 fax 905 349 3420 Good luck Benito -- ------------------------------ End of SCD-list V1 #67 ********************** SCD-list Mon, 13 Oct 1997 Volume 1 : Number 68 In this issue: Re: Hi everyone RE: Bleeding Improvement on the Diet? plantains again RE: milk protein intolerance Re: Hi everyone RE:DRY CURD Cottage Cheese/Yogurt maker Re: CCFA and SCD in Dallas Mucous Re: plantains again Re: milk protein intolerance Re: Hi everyone plantains yogurt temp Re: SCD and periods Re: Milk Allergy? Re: Milk Allergy? RE: Mucous Re: CCFA and SCD in Dallas SCD Studies RE: Bleeding Re: Bleeding RE: Hi everyone RE: Milk Allergy? Re: Hi everyone Re: Bleeding Improvement on the Diet? neurological disorders Re: CCFA and SCD in Dallas Re: SCD Studies Simone Simone Recipes Re: yogurt temp RE: Mucous Re: SCD Studies Re: Hi everyone Fruit -------------------------------------------------------------------- SCD MAILING LIST ------------------------------------------------------------------- ---------------------------------------------------------------------- From: prateeksha@infoasis.com (Prateeksha Bogardus) To: SCD-list@longisland.com Subject: Re: Hi everyone Message-ID: <v01550100b066bc6a64d3@[206.40.74.40]> >-------------------------------------------------------------------- >SCD MAILING LIST >------------------------------------------------------------------- Hi Susan, welcome to the SCD support group. Prateeksha >Hi. I am new to the list and diet. My name is Susan Taylor and I was >diagnosed with Crohns and colitis in December of 1996. I have never >done Email before so I could use some pointers. Let me know if anyone >gets this message. > > >simply >susan > > > > >_____________________________________________________________________ >Sent by Yahoo! Mail - http://mail.yahoo.com ------------------------------ From: prateeksha@infoasis.com (Prateeksha Bogardus) To: SCD-list@longisland.com Subject: RE: Bleeding Improvement on the Diet? Message-ID: <v01550101b066bfc82f70@[206.40.74.47]> >-------------------------------------------------------------------- >SCD MAILING LIST >------------------------------------------------------------------- >Jane, > Re The SCD and Candida...on page 27 of Elaine's Book, I quote: "When it is suspected that yeast invasion is widespread (the oral infection, thrush, would be an indicator) it is wise to cut back on honey ingestion at the beginning of the dietary regimen (amount of honey in recipes should be decreased by at least 75%. The amount of honey may be increased as the condition improves." Page 28...Sucrose is a table sugar and...there is a smal amount of sucrose (about 1%-3% in some pastueurized honey but it has been shown to be tolerated by those on the SCD. Unpasteurized honey contains virtually no sucrose since an enzyme in the honey splits whatever sucrose may be present...." So, seems like unpasteurized honey would be the ideal way for all of us to go...and if you have Candida, to start out with minimal amounts. Prateeksha. >Over the past 10 years have been diagnosed numerous times as having >Candida. The anti-fungal medicines, especially the natural ones like >capryllic acid and grapefruit seed extract along with drug anti-fungals >like Nizoril and Diflucan seemed to help me albeit very gradually. I >retrospect, however, the recommended Candida Diet was very destructive >to me and I am now convinced, since discovering SCD, dramatically >postponed my getting into remmission which usually would take 4 -7 >months and would recur 6-18 months later. I have kept detailed journals >for 10 years and going back and reading them now in light of SCD almost >makes me feel stupid for not seeing the obvious connection between my >prolonged and varying symptoms directly corresponding to eating complex >carbohydrates. It is so obvious to me now. Oh well! Don't make the >same mistake. > >I have only been on the SCD diet for 14 days after experiencing yet >another flare up of what I have been taught to think of as Candida. >After looking at things differently after reading Elaines book, I am >now convinced that Candida is but a symptom of a deeper issue that SCD >addresses. Already in 14 days I am feeling much, much better and can >tell I am recovering faster than I have ever recovered on the Candida >Diet. I am using the SCD diet with Capryllic Acid and a product called >Caps Plus. > >My recommendation is that you focus on SCD and if you want to add some >anti-fungul natural killer substances use these. The Candida Diet, >however, is not good if your primary issue is poor digestion of >carbohydrates as per SCD. > >n addition, with the Candida diet, honey and fruit is ACCURSED, I found >myself at first with SCD trying these with "fear and trepidation" but to >my surprise I had no problem at all. I found with the Candida Diet, I >had little energy at all and this is because they don't allow anything >that your body can easily and readily make energy from. Plus they push >"complex Carbos" that you can't digest but the Microbes can. Unless you >have massive problems with Thrush or esophogeal candida you should have >no problems with fruit or honey. > >Good Luck and God Bless! > >Pat > >> -----Original Message----- >> From: Kebridan@aol.com [SMTP:Kebridan@aol.com] >> Sent: Saturday, October 11, 1997 10:22 AM >> To: SCD-list@longisland.com >> Subject: Re: Bleeding Improvement on the Diet? >> >> -------------------------------------------------------------------- >> SCD MAILING LIST >> ------------------------------------------------------------------- >> I don't know how to use this listserv as I just signed on a few days >> ago. >> I've never done anything like this on the computer before but I have >> been >> reading everything on this SCD site like crazy. I stumbled across it >> when I >> was on a celiac site and found it immediately interesting because the >> celiac >> diet was not helping me (I couldn't even handle rice). None of their >> alternative grains worked for me. I called to order the book and >> actually >> got Elaine on the phone. She was very helpful and I should get my book >> this >> week. From reading the information off the SCD site I've been >> following the >> diet as closely as I can figure out. It has already helped! I do >> have one >> beginning question though - I hate yoghurt! What to do? I have cramps >> if I >> drink a fruit smoothie with yoghurt from the health food store. I've >> also >> been told I have candida. I was discouraged when one of your writers >> suggested that someone might have to go off the SCD diet and work on >> the >> candida problem first, although I heard in the book Elaine says the >> SCD diet >> works well for those with candida. I think this forum is a good one >> and I >> hope I can participate. Thank-you for listening! Jane ------------------------------ Date: Sun, 12 Oct 1997 21:22:39 -0400 (EDT) From: PI5DA@aol.com To: SCD-list@longisland.com Subject: plantains again Message-ID: <971012212052_-1831230840@emout15.mail.aol.com> After reading Steve's and E's response about plantains, I am a bit confused. Have you, Steve eaten plantains without aversive reactions? Also, if you want plantain chips, why don't you make them yourself by frying them? There's a fried carrots recipe in the book, so I guess plantains get fried the same way. I had fried bananas once (but they were rolled in sugar& cinnamon, though...the good old days, huh?) I am doing so well so far on the diet that I am afraid of trying something that may disagree with me. I often have nighmares that I forgot, and ate 'forbidden' foods. I wake up scared and relieved that it was just a nightmare. Imagine having nighmares about eating bagels and cereal...how bizzare!! Simone ------------------------------ Date: Sun, 12 Oct 1997 21:38:08 -0400 (EDT) From: PI5DA@aol.com To: SCD-list@longisland.com Subject: RE: milk protein intolerance Message-ID: <971012213337_-1897925233@emout12.mail.aol.com> Pat, I have avoided dairy products for months thinking they're out to get me. After my doctor diagnosed my with CD less than a couple of weeks ago, he told me no matter what I do, stay away from ALL dairy products. I told him that I am starting the SCD diet, and allows home made yougurt and hard cheeses w/out lactose. He did not object to the diet except the lactose part. He insisted that with many people with IBD, their system can not tolerate milk protein, not just lactose. He advised it is best to stay away from them than be sorry. Well, I didn't listen to him, and have been eating sharp cheddar cheese and parmesan. I can't find anyone who even heard of dry curd cheese in South and Central Florida, let alone find some. I don't even know where to begin with the yogurt business. No retailer in the area sells yougurt makers, or if one does is like a million dollars. And I'm afraid to try it on my own. I don't know how fool-proof it is yet. Anyway, so far I have not had any problems with the cheeses, so I may not be milk protein intolerant. But you may be. It is possible. Have you consulted your doctor about it? I wish you the best with this. Regards, Simone ------------------------------ Date: Sun, 12 Oct 1997 22:03:11 -0400 (EDT) From: Kebridan@aol.com To: SCD-list@longisland.com Subject: Re: Hi everyone Message-ID: <971012215912_39019426@emout03.mail.aol.com> I'm still new at using this but I wanted to reply to Pat. Thank-you for sharing your candida experience with me. You gave it much more of a try than I did. I was mixing nystatin powder as an anti-fungal but gave it up when I wouldn't stick with the diet. I too was exhausted and had young children at the time. I'm just starting the SCD diet and you're just ahead of me so please stay posted because I can relate to some things you talk about. I hope someone can help you with the reaction to the yogurt and allowable cheese. I also get sick if I eat store bought yogurt or any milk products so I don't know if I should invest in a yogurt machine. I've heard that because it ferments ( I'm not sure that is the correct term) longer I might be able too, although you still have a problem. Someone else said that they did the diet with great success and just left out the yogurt, while others say they felt it was a key component in getting well. May I ask - what intestinal disorder do you have? Thanks again for your info. Jane ------------------------------ From: prateeksha@infoasis.com (Prateeksha Bogardus) To: SCD-list@longisland.com Subject: RE:DRY CURD Cottage Cheese/Yogurt maker Message-ID: <v01550100b066d785c324@[206.40.74.47]> >-------------------------------------------------------------------- >SCD MAILING LIST >------------------------------------------------------------------- Simone, In the book, Elaine gives resources for dry curd cottage. Bet they'll ship it to you if you can't find it locally. It is also referred to as Baker's Cheese, and Farmer's Cheese. Many second hand stores have yogurt makers and also garage sales would be a good source if you can't afford the Yogurmet some people are using and don't want to make it in the oven, using the oven light and placing a thermometer on the rack to check to see when the temp gets to between 100 and 110 degrees F. One thing I have learned on this diet, I have to be RESOURCEFUL!!!!!!! Don't give up! Prateeksha >Pat, > >I have avoided dairy products for months thinking they're out to get me. >After my doctor diagnosed my with CD less than a couple of weeks ago, he told >me no matter what I do, stay away from ALL dairy products. I told him that I >am starting the SCD diet, and allows home made yougurt and hard cheeses >w/out lactose. He did not object to the diet except the lactose part. He >insisted that with many people with IBD, their system can not tolerate milk >protein, not just lactose. He advised it is best to stay away from them than > be sorry. > >Well, I didn't listen to him, and have been eating sharp cheddar cheese and >parmesan. I can't find anyone who even heard of dry curd cheese in South >and Central Florida, let alone find some. I don't even know where to begin >with the yogurt business. No retailer in the area sells yougurt makers, or >if one does is like a million dollars. And I'm afraid to try it on my own. > I don't know how fool-proof it is yet. > >Anyway, so far I have not had any problems with the cheeses, so I may not be >milk protein intolerant. But you may be. It is possible. Have you > consulted your doctor about it? I wish you the best with this. > >Regards, > >Simone ------------------------------ Date: Sun, 12 Oct 1997 21:09:44 -0700 From: painsolv@smartt.com To: SCD-list@longisland.com Subject: Re: CCFA and SCD in Dallas Message-ID: <3.0.1.32.19971012210944.006c1000@smartt.com> John: You state, at the end of the below-reprinted message, that "we are dealing with one of the most powerful establishments" in the world. Pray tell: which establishment IS more powerful than the "Medical-Industrial Complex", (as I've decided to call the most pervasive, culturally-invasive, body-mutilating, anti-Nature "Mafia" on the planet) ? At 09:03 AM 10/11/97 -0400, you wrote: >-------------------------------------------------------------------- >SCD MAILING LIST >------------------------------------------------------------------- >All, > >The subject of the SCD and the medical establishment and CCFA is of great importance. >We have a significant grass roots movement now that needs to grow even stronger. > >I remember when Elaine came to Fort Wayne, I called in advance to the leader of the >support group for cystic fibrosis. I wanted her group to know about the Elaine's talk >and they could come to one of the presentations if they chose to. The lady told me that >she would have to check with the doctors to determine if they would allow the group to >hear about this information. I think you can guess the result. This practice is fairly >common. It is a form of censorship but I do not think they realize that censorship is >taking place. I think they believe they are protecting their group. > >In the long run, I think we need an organization which has a mission to perpetuate the >SCD. That would include making information available, be a clearing house for >questions/answers and take a proactive role in promoting the SCD. > >The CCFA is, in my mind, in the fund raising business. They are well organized and do a >good job of raising funds. If bowel diseases were ever cured, I suspect the CCFA would >change its name and mission and continue to raise funds for another cause. This has >happened in the past - remember polio. > >The medical profession, similarly is in the medicine and operation business. The >doctors are well trained and they are good at it. Unfortunately, the best answers are >not always medicines and operations. Keep in mind that doctors have been trained for >many years in school. They have been thoroughly immersed in the medication/operation >methods. To them, anything that deviates from that training is suspect at best. > >We will not turn the corner on this overnight. We are dealing with one of the most >powerful establishments in the world. > >John > > >Rachel Turet wrote: >> >> -------------------------------------------------------------------- >> SCD MAILING LIST >> ------------------------------------------------------------------- >> Dear Liz, >> How frustrating! There are none so blind as those who will not see. Well, >> all we can do is continue to TRY to pass the word. I even have people in my >> life close to me, who have IBD, who have seen my health go from poor to >> great, and who tell me that the diet just looks like too much trouble. >> Whatcha gonna do? >> Rachel > > ------------------------------ Date: Mon, 13 Oct 1997 12:02:03 +0200 From: gwozdz <gwozdz@hrz.tu-freiberg.de> To: scd-longisland <scd-list@longisland.com> Subject: Mucous Message-ID: <3441F19B.90B95350@vwl.tu-freiberg.de> Hi everybody! I have been on the scd since mid april. My UC improved first but about 2 months ago it got really worse. I opted for cortisone the first time (hydrocortisone, to be applied rectally) and resumed taking salofalk (mezazaline) again. Now my condition is getting better, I have much more energy and my stool has normalized except for the mucous. The first bm in the morning is formed with only a bit of mucous, but it irritates my bowel and I have several successive bm with only bits of stool (no diarrhea) and more liquid mucous. It seems to be the irritation of the rectum that is bothering me most at the moment, but compared with my situation during my relapse it is much better though very annoying. Elaine writes that relapses often occur after 2-3 months on the diet and then improvement is steady, so I am positive to be on the track of recovery now. I would appreciate comments on my irritated rectum and mucousy but formed stool. Thanks Miroslav Germany P.S. One comment on the posts dealing with medical authorities ignoring a dietary approach of treating IBD because of (allegedly) missing scientific proof. In his book "Sick stomach, sick bowel ..." Dr. Lutz mentions a clinical trial with IBD patients in Germany that showed that patients on a low carbohydrate diet (max. 70-80g a day) compared to a group treated with drugs showed the most significant improvement. I can¥t remember details now, but the trial showed that the diet helped (after 11/2 - 2 years in some cases) in up to 80 % of the cases. The diet group showed the best results. ------------------------------ Date: Mon, 13 Oct 1997 08:04:41 -0400 (EDT) From: EllenAdams@aol.com To: SCD-list@longisland.com Subject: Re: plantains again Message-ID: <971013080440_1367381565@emout04.mail.aol.com> In a message dated 97-10-12 21:22:59 EDT, you write: << I often have nighmares that I forgot, and ate 'forbidden' foods. I wake up scared and relieved that it was just a nightmare. Imagine having nighmares about eating bagels and cereal...how bizzare!! >> I have the same nightmares! You've described it just right. In my dreams I'll eat something I shouldn't in a social situation--not because I'm cheating, just because I'm distracted--and then I'll wake up in a panic and be relieved that it wasn't true. Ellen ------------------------------ Date: Mon, 13 Oct 1997 08:09:14 -0400 (EDT) From: EllenAdams@aol.com To: SCD-list@longisland.com Subject: Re: milk protein intolerance Message-ID: <971013080914_-1227517378@emout05.mail.aol.com> In a message dated 97-10-12 21:38:42 EDT, you write: << Anyway, so far I have not had any problems with the cheeses, so I may not be milk protein intolerant >> I'm not sure about milk myself. I've had a very mixed reaction to it. On friday I'm having an ELISA/ACT test. It's a test to determine which foods you have an immune response to. I understand they test separately for lactose and milk protein. I'll let you guys know when I get the results! Ellen ------------------------------ Date: Mon, 13 Oct 1997 05:23:06 -0700 From: Moira <moira@megamed.com> To: SCD-list@longisland.com Subject: Re: Hi everyone Message-ID: <2.2.16.19971013052059.2eff8414@megamed.com> Dear List, I would like to have some ideas for kids, would love to hear from parents who have their child on this diet. Thanks, Moira ------------------------------ Date: Mon, 13 Oct 1997 07:10:10 -0600 From: aagvani@muse.sfusd.k12.ca.us (Steve Hooker) To: SCD-list@longisland.com Subject: plantains Message-ID: <199710131302.GAA02900@muse.sfusd.k12.ca.us> Simone, The following is an excerpt from a file which is available on Mik's site. It's called something like "Our questions and Elaine Gottschall's answers". You could also ask Elaine of course.The site, if you haven't checkedit out, is: http://www.inform.dk/djembe/scd/ >If you can be sure there is no sweetener added to plantain >and banana chips >then they are OK. Steve ------------------------------ Date: Mon, 13 Oct 1997 10:46:03 -0400 (EDT) From: SHADOWPUP@aol.com To: SCD-list@longisland.com Subject: yogurt temp Message-ID: <971013104443_-492972527@emout06.mail.aol.com> i just made my first batch of yogurt yesterday. after 8 hours of fermentation, i decided to check the temperature (i dont trust anything), and it read 116 degrees. i am using the yogurtmet yogurt maker. elaines book says the temp should be between 100-110. do you think this is ok? thanx - Joan ------------------------------ Date: Mon, 13 Oct 1997 11:32:55 -0700 From: Dempsey <stellar1@pacbell.net> To: SCD-list@longisland.com Subject: Re: SCD and periods Message-ID: <34426957.66DA@pacbell.net> I have not skipped any periods while on the SCD but, a long time ago, when my weight dipped really low, I did. I also skipped some periods while I was doing a really physically stressful Outward Bound course in Maine. I'm not sure if these apply to you, but if your weight has dropped on the SCD, it could effect your period. How about otherwise? Like, if you have a lot of energy, but lose your period for awhile, I think that would be different than losing it while you feel lousy. But as far as I know, body fat is the single biggest element in women's periods disappearing. Denise ------------------------------ Date: Mon, 13 Oct 1997 11:37:58 -0700 From: Dempsey <stellar1@pacbell.net> To: SCD-list@longisland.com Subject: Re: Milk Allergy? Message-ID: <34426A86.4A8@pacbell.net> Pat, I had the same response as you to the dairy products. But after about six months on the diet, I was able to start again. What a difference some months can make on the SCD! During the time I couldn't eat them, I had a blood test done (ELISA) for food allergies. I did not test at all sensitive to dairy products. These tests are not always accurate, but now that I can eat dairy again, I feel like in my case they were. If you are curious and have about $135 to spare, you may want to look up Meridian Labs on the internet. You get a doctor to order the blood test and then send it in a mailer envelope to their lab. It takes about two weeks to get the results. denise ------------------------------ Date: Mon, 13 Oct 1997 13:37:03 -0500 (CDT) From: Elizabeth Liener <exuliz@exu.ericsson.se> To: SCD-list@longisland.com Subject: Re: Milk Allergy? Message-ID: <199710131837.NAA28656@b01d04.exu.ericsson.se> Well, that's very encouraging that initially you couldn't do dairy, but later you could. Maybe there's hope! > From SCD-request@longisland.com Mon Oct 13 13:34 CDT 1997 > Date: Mon, 13 Oct 1997 11:37:58 -0700 > From: Dempsey <stellar1@pacbell.net> > X-Mailer: Mozilla 3.0 (Win95; U) > MIME-Version: 1.0 > To: SCD-list@longisland.com > Subject: Re: Milk Allergy? > Content-Transfer-Encoding: 7bit > Reply-to: SCD-list@longisland.com > Content-Type> : > text/plain> ; > charset=us-ascii> > Content-Length: 837 > > -------------------------------------------------------------------- > SCD MAILING LIST > ------------------------------------------------------------------- > Pat, > > I had the same response as you to the dairy products. But after about > six months on the diet, I was able to start again. What a difference > some months can make on the SCD! During the time I couldn't eat them, I > had a blood test done (ELISA) for food allergies. I did not test at all > sensitive to dairy products. These tests are not always accurate, but > now that I can eat dairy again, I feel like in my case they were. If > you are curious and have about $135 to spare, you may want to look up > Meridian Labs on the internet. You get a doctor to order the blood test > and then send it in a mailer envelope to their lab. It takes about two > weeks to get the results. > > denise > ------------------------------ Date: Mon, 13 Oct 1997 11:34:59 -0700 From: "Glenn L. Rung" <backpack@cyberlynk.com> To: <SCD-list@longisland.com> Subject: RE: Mucous Message-ID: <01bcd806$b641cbe0$LocalHost@backpack> This is a multi-part message in MIME format. ------=_NextPart_000_0004_01BCD7CC.09E2F3E0 Content-Type: text/plain; charset="iso-8859-1" Content-Transfer-Encoding: quoted-printable Gwozdz, I don't have any suggestions on how to stop your problem, but I just = wanted to say that I have the exact same problem that you do. I found = that when I reduce (don't eliminate) the amount of fruit and vegetables = that I consume, that my bowel movements become more soiled and stay that = way. I also found that I had to eliminate all coffee and ungrounded nuts = from my diet. The only fruit juice that my system tolerates is unsweeted = pinaple juice. The other juices cause me problems. I eat a lot of = cheese, meat, eggs, and broccoli. For some reason broccoli really slows = down the pace of bowel movements for me when other vegetables cause me = problems when I eat too much them. I ended up going back on Rowasa (mesalamine) also. Glenn ------------------------------ Date: Mon, 13 Oct 1997 11:10:37 -0700 From: "Glenn L. Rung" <backpack@cyberlynk.com> To: <SCD-list@longisland.com> Subject: Re: CCFA and SCD in Dallas Message-ID: <01bcd803$4ed4c640$LocalHost@backpack> This is a multi-part message in MIME format. ------=_NextPart_000_001A_01BCD7C8.A275EE40 Content-Type: text/plain; charset="iso-8859-1" Content-Transfer-Encoding: quoted-printable To all, All the messages I've seen on this subject lately reminds me of the movie, "Lorenzo's Oil." For those of you that have seen this movie, it was great! The medical establishment refused to believe this oil could arrest a deadly disease in the nervous system that attacked children with a certain recessive gene. Lorenzo was afflicted with this disease so his father (not a medical professional (much like Elaine)) desperately started looking for a cure to the disease. He finally developed an oil that when ingested, totally arrest the disease. He tried to get the medical establishment to embrace the use of this oil, but met with complete resistance from these supposedly elite medical professional who were looking for a cure for the deadly disease. So, Lorenzo's father started giving this oil to other parents in his support group who also had children with the disease. The disease was completely arrested in 100% of the children. But still, the medical establishment wouldn't remove their blinders because no double blind study had been done with the oil. These idiots finally changed their minds when all of the parents of these children stood up in unison and stated that the disease in their children had been arrested. It seems that we will have to do the same thing with SCD to get the CCFA to remove their blinders. These people are supposed to be dedicated to saving lives, but ego and greed ends up consuming them instead. Sadly, the victims of the disease (us and many others) are merely pawns in the chess game of greed and the disbelief that people with no medical degree (Elaine) could actually have solutions to medical problems. Just my opinion. Glenn ------------------------------ Date: Mon, 13 Oct 1997 13:39:14 -0500 (CDT) From: Elizabeth Liener <exuliz@exu.ericsson.se> To: SCD-list@longisland.com, SCD@MAELSTROM.STJOHNS.EDU Subject: SCD Studies Message-ID: <199710131839.NAA28660@b01d04.exu.ericsson.se> Hi all, I'm thinking about writing a letter to CCFA asking them why they choose to omit information about SCD. But I first want to ask if anyone knows if any formal studies have been done to see what percentage of people on SCD are helped. I have heard that up to 75% who try the diet are helped. But where does this statistic come from? And to what degree are the people helped? Does everyone reach a remission? Regards/Liz ------------------------------ Date: Mon, 13 Oct 1997 11:52:08 -0700 From: Pat Sullivan <psullivan@SalesLogix.com> To: SCD-list@longisland.com Subject: RE: Bleeding Message-ID: <E0C18E118B25D1118AC000805F4B98460A2E12@LOGIXMAIL> Ellen, I am new to the diet and this list but the book did say something about setbacks that seem to happen around 2 months on the diet? Could be related somehow. Pat > -----Original Message----- > From: EllenAdams@aol.com [SMTP:EllenAdams@aol.com] > Sent: Sunday, October 12, 1997 1:18 PM > To: SCD-list@longisland.com > Subject: Re: Bleeding > > -------------------------------------------------------------------- > SCD MAILING LIST > ------------------------------------------------------------------- > I've been on the diet about a month and a half now. It's made a huge > difference in the quality of my life. I hadn't even realized how > disabled I > was by the pain and bloating until it went away! (I've never actually > made > it to remission since the onset of my crohns 2.5 years ago). > > Suddenly, though, I'm getting a bit concerned. I've started bleeding > and > that was never one of my symptoms. I don't have diarreah (I never did > have a > big problem with that). The bleeding isn't continuous--just every > couple of > days--but when it appears there's quite a bit of it. It's bright red > with a > few clots. I've had some minor pain with it--it feels different than > the > crohns pain I've endured for so long. I'm not bloated and don't feel > really > bad. It's just kinda concerning. > > Should I be worried? I keep trying to tell myself that bleeding is a > normal > part of crohns and lots of people experience it. I don't get the > impression > that it indicates some medical crisis but I don't know. Should I rush > to see > my doctor? Is there anything in particular as far as the diet that I > should > try? I haven't added any new foods lately. When the bleeding started > I was > overexerting myself--running up and down the stairs at a friend's > house > trying to care for her after surgery (I generally don't do stairs--I > live on > one floor at home). But it hasn't cleared up since I moved back home > and > stopped racing around. > > Thoughts? > > Ellen ------------------------------ Date: Mon, 13 Oct 1997 12:08:59 -0700 From: "Glenn L. Rung" <backpack@cyberlynk.com> To: <SCD-list@longisland.com> Subject: Re: Bleeding Message-ID: <01bcd80b$7604d7c0$3b3b36ce@backpack> This is a multi-part message in MIME format. ------=_NextPart_000_0006_01BCD7D0.C9A5FFC0 Content-Type: text/plain; charset="iso-8859-1" Content-Transfer-Encoding: quoted-printable Ellen, I've had bleeding on and off throughout my chrones during the last six years. The worst part of my disease was within 12" of the rectum. My doctor said that when the blood is red that the problem is closer to the rectum rather than farther up the digestive track.The closer that the bleeding is to the beginning of the digestive track, the darker and blacker the blood becomes. The one advantage of having bleeding episodes closer to the rectum is that medication can be supplied directly to the affected area via suppositories or enimas. My bleeding was rather bad when I was first diagnosed with the disease 3 years ago, so my doctor put me on on an enima (60ml of Rowasa) which I administered once a night before I went to bed. I stayed on the the enima for two and a half years. The area from about 6-12" from my rectum looked like raw hmburger meat before I went on the enima, but on my most recent scope checkup the doctor told me that the whole area had completely healed with no scarring. Now I use Rowasa suppositories on an as needed basis. If I start to bleed from straining too much or for any other reason, I use the suppositories for a few days to a week and the bleeding goes away. If you've been straining to poop, this could also cause bleeding. Since your bleeding just started I don't believe that your problem is extremely serious, but it would be best to have your doctor check it out anyway. Glenn ------------------------------ Date: Mon, 13 Oct 1997 12:12:58 -0700 From: Pat Sullivan <psullivan@SalesLogix.com> To: SCD-list@longisland.com Subject: RE: Hi everyone Message-ID: <E0C18E118B25D1118AC000805F4B98460A2E1B@LOGIXMAIL> Jane, I don't know exactly the right label to put on my intestinal disorder as yet as I only recently decided that it must be something other than, or causative of, a Candida infection. I have finally gone to a "real GI doc" who is running all the standard tests trying to put a label on it. All I know is I get flare ups of nausea, intestinal discomfort and then chronic diahrea and a weird sense of anxiety and brain fog and fatigue. My personal opinion is that I have a leaky gut (which is also a test I am having run to determine if true) and inflammation of my GI tract from poor digestion of complex carbos and bacterial and fungal overgrowth due to that. Actually, that has been the revelation for me with SCD. The yeast is caused by my inability to digest complex carbos and not caused somehow by a defective, weak immune system which I could never seem strengthen somehow, no matter how many "immune boosting" supplements I would take, etc. etc. > -----Original Message----- > From: Kebridan@aol.com [SMTP:Kebridan@aol.com] > Sent: Sunday, October 12, 1997 7:03 PM > To: SCD-list@longisland.com > Subject: Re: Hi everyone > > -------------------------------------------------------------------- > SCD MAILING LIST > ------------------------------------------------------------------- > I'm still new at using this but I wanted to reply to Pat. Thank-you > for > sharing your candida experience with me. You gave it much more of a > try than > I did. I was mixing nystatin powder as an anti-fungal but gave it up > when I > wouldn't stick with the diet. I too was exhausted and had young > children at > the time. I'm just starting the SCD diet and you're just ahead of me > so > please stay posted because I can relate to some things you talk about. > I > hope someone can help you with the reaction to the yogurt and > allowable > cheese. I also get sick if I eat store bought yogurt or any milk > products so > I don't know if I should invest in a yogurt machine. I've heard that > because > it ferments ( I'm not sure that is the correct term) longer I might be > able > too, although you still have a problem. Someone else said that they > did the > diet with great success and just left out the yogurt, while others say > they > felt it was a key component in getting well. May I ask - what > intestinal > disorder do you have? Thanks again for your info. Jane ------------------------------ Date: Mon, 13 Oct 1997 13:03:01 -0700 From: Pat Sullivan <psullivan@SalesLogix.com> To: SCD-list@longisland.com Subject: RE: Milk Allergy? Message-ID: <E0C18E118B25D1118AC000805F4B98460A2E24@LOGIXMAIL> Denise, That is encouraging. I will get that test done. Thanks. Pat > -----Original Message----- > From: Dempsey [SMTP:stellar1@pacbell.net] > Sent: Monday, October 13, 1997 11:38 AM > To: SCD-list@longisland.com > Subject: Re: Milk Allergy? > > -------------------------------------------------------------------- > SCD MAILING LIST > ------------------------------------------------------------------- > Pat, > > I had the same response as you to the dairy products. But after about > six months on the diet, I was able to start again. What a difference > some months can make on the SCD! During the time I couldn't eat them, > I > had a blood test done (ELISA) for food allergies. I did not test at > all > sensitive to dairy products. These tests are not always accurate, but > now that I can eat dairy again, I feel like in my case they were. If > you are curious and have about $135 to spare, you may want to look up > Meridian Labs on the internet. You get a doctor to order the blood > test > and then send it in a mailer envelope to their lab. It takes about > two > weeks to get the results. > > denise ------------------------------ Date: Mon, 13 Oct 1997 16:21:51 -0400 (EDT) From: Kebridan@aol.com To: SCD-list@longisland.com Subject: Re: Hi everyone Message-ID: <971013162143_338799309@emout01.mail.aol.com> Pat, Let me know how your tests turn out. I took all those supplements too (looked like a vitamin junky) - I went to a progressive health center - it didn't work. Now I get nausea when I take a multi-vitamin from the health food store (wheat, starch, sugar free) If you're still taking alot of vitamins you might try cutting back or stopping for a little while. I know Elaine recommends a particular kind, might try that. I certainly can relate to brain fog and fatigue. Brain fog seems to go away quickly when you start the diet but I have a feeling the fatigue will take longer. My stomach is gowling and making alot of noise - I think it's wondering about the change in diet! Take care, Jane ------------------------------ Date: Mon, 13 Oct 1997 16:27:06 -0400 (EDT) From: Kebridan@aol.com To: SCD-list@longisland.com Subject: Re: Bleeding Improvement on the Diet? Message-ID: <971013162536_-1395103153@emout17.mail.aol.com> Thank-you Prateeksha for your advice about the honey - I have gone very easy on that but I don't want that "hypoglycemic" feeling I had on the candida diet, so I enjoy the fruits etc. Jane ------------------------------ Date: Mon, 13 Oct 1997 13:51:08 -0700 From: Moira <moira@megamed.com> To: SCD-list@longisland.com Subject: neurological disorders Message-ID: <2.2.16.19971013134911.21afd1ea@megamed.com> At 01:37 PM 10/13/97 -0500, you wrote: >-------------------------------------------------------------------- >SCD MAILING LIST >------------------------------------------------------------------- Rachel, Is there any data on schizophrenic and/or other neurological disorders, and how the SCD diet has helped them? Thanks, Moira > > ------------------------------ Date: Mon, 13 Oct 1997 13:51:10 -0700 From: Moira <moira@megamed.com> To: SCD-list@longisland.com Subject: Re: CCFA and SCD in Dallas Message-ID: <2.2.16.19971013134912.21af3f6e@megamed.com> What does CCFA stand for? ------------------------------ Date: Mon, 13 Oct 1997 23:25:57 +0200 From: Odd Oivind Bergstad <oddb@stovner.vgs.no> To: SCD-list@longisland.com Subject: Re: SCD Studies Message-ID: <1.5.4.32.19971013212557.0068e194@vgs.sn.no> At 13:39 13.10.97 -0500, you wrote: >I'm thinking about writing a letter to CCFA asking them why they >choose to omit information about SCD. But I first want to ask >if anyone knows if any formal studies have been done to see >what percentage of people on SCD are helped. I don't know, but together with some other people I am planning to do a survey about SCD in Internet. Due to much work ( I work 113% now..) this will unfortunately take some time. Odd D8ivind ------------------------------ Date: Mon, 13 Oct 1997 17:15:37 -0400 (EDT) From: SHADOWPUP@aol.com To: SCD-list@longisland.com Subject: Simone Message-ID: <971013171448_1958727200@emout09.mail.aol.com> Hi Simone - there are 4 recipes of yours i would like to have: Peanut Butter-Banana Pie Power Bars Fruit Chewies Applenut Cereal you can either post or email direct at Shadowpup@aol.com thanx- Joan ------------------------------ Date: Mon, 13 Oct 1997 15:14:28 -0700 From: "Linda Schaaf"<lschaaf@baxglobal.com> To: SCD-list@longisland.com Subject: Simone Message-ID: <8825652F.007A00D1.00@baxworld.com> Hello Simone, When you send the recipes to Joan, cc me in please. These sound good. email to lschaaf@baxglobal.com Thanks Linda ---------------------- Forwarded by Linda Schaaf/AMERICA/BAX on 10/13/97 03:11 PM --------------------------- SHADOWPUP@aol.com on 10/13/97 02:15:37 PM Please respond to SCD-list@longisland.com To: SCD-list@longisland.com cc: (bcc: Linda Schaaf/AMERICA/BAX) Subject: Simone -------------------------------------------------------------------- SCD MAILING LIST ------------------------------------------------------------------- Hi Simone - there are 4 recipes of yours i would like to have: Peanut Butter-Banana Pie Power Bars Fruit Chewies Applenut Cereal you can either post or email direct at Shadowpup@aol.com thanx- Joan ------------------------------ Date: Mon, 13 Oct 1997 15:09:31 -0700 From: "Rosset" <plrosset@pacificrim.net> To: "SCD-list" <SCD-list@longisland.com> Subject: Recipes Message-ID: <199710132317.QAA22228@cascade.pacificrim.net> Dear Simone, Feel free to post any recipe directly to the group. We all like to see new recipes. Thanks! Lucy ------------------------------ Date: Mon, 13 Oct 1997 18:27:09 -0500 From: Rachel Turet <rachel@longisland.com> To: SCD-list@longisland.com Subject: Re: yogurt temp Message-ID: <l03010d00b0685e7e6f0d@[206.112.46.15]> If the yogurt looks and tastes OK after the 24 to 36 hours fermentation and the temp has remainded over 90, Id guess it is just fine. Rachel ------------------------------ Date: Mon, 13 Oct 1997 15:18:47 -0700 From: painsolv@smartt.com To: SCD-list@longisland.com Subject: RE: Mucous Message-ID: <3.0.1.32.19971013151847.0069c39c@smartt.com> Dear Glenn: At 11:34 AM 10/13/97 -0700, you wrote: > Gwozdz, I don't have any suggestions on how to stop your problem, >but I just wanted to say that I have the exact same problem that you do. I >found that when I reduce (don't eliminate) the amount of fruit and >vegetables that I consume, that my bowel movements become more soiled and >stay that way. I also found that I had to eliminate all coffee and >ungrounded nuts from my diet. Yes, coffee is a real bitch re speeding up BM's ... basically, coffee is a toxin, I've concluded. Luckily I'm one of those rare people who really dislikes the taste of coffee, even the "ritzy" high-priced ones, so I can cast such grand aspersions! ;-) >The only fruit juice that my system >tolerates is unsweeted pinaple juice. Have you tried fresh-squeezed grapefruit juice? Especially with any protein meal? That's what my ND once suggested, and I found it really worked well. But specifically GRAPEFRUIT, no other citrus will do (incl. pineapple, I found for myself ... "results may differ" for you?) >The other juices cause me problems. Like I say, FRESH (not made in a factory, but on your kitchen counter) + GRAPEFRUIT ... have you tried THAT? >I eat a lot of cheese, meat, eggs, and broccoli. For some reason broccoli >really slows down the pace of bowel movements for me when other vegetables >cause me problems when I eat too much them. I found most cruciferous vegetables (e.g. broccoli, raw cabbage, brussels sprouts) worked very well for my colitis to slow things down when I was in a sub-acute stage. Dietmar >I ended up going back on >Rowasa (mesalamine) also. Glenn ------------------------------ Date: Mon, 13 Oct 1997 15:20:19 -0700 From: painsolv@smartt.com To: SCD-list@longisland.com Subject: Re: SCD Studies Message-ID: <3.0.1.32.19971013152019.0069c39c@smartt.com> At 01:39 PM 10/13/97 -0500, you wrote: >-------------------------------------------------------------------- >SCD MAILING LIST >------------------------------------------------------------------- > >Hi all, > >I'm thinking about writing a letter to CCFA asking them why they >choose to omit information about SCD. But I first want to ask >if anyone knows if any formal studies have been done to see >what percentage of people on SCD are helped. I have heard that >up to 75% who try the diet are helped. But where does this statistic >come from? And to what degree are the people helped? Does everyone >reach a remission? > I would say "no" to the last question; bsed on both my own personal results, and Elaine's clear statement (either on Mik's site, or in her book) that approx. 20% of people will NOT get the desired results with the SCD. Dietmar >Regards/Liz > > ------------------------------ Date: Mon, 13 Oct 1997 18:47:01 -0400 (EDT) From: B4FL@aol.com To: SCD-list@longisland.com Subject: Re: Hi everyone Message-ID: <971013184430_846424814@emout20.mail.aol.com> Moira, My son has been on the diet now for about a year and a half. What kind of ideas are you looking for? I will be glad to supply you with any information I have. Barb ------------------------------ Date: Mon, 13 Oct 1997 16:03:15 -0700 From: Moira <moira@megamed.com> To: SCD-list@longisland.com Subject: Fruit Message-ID: <2.2.16.19971013160124.2ca70778@megamed.com> What fruits are good to start with? I have had my son on a candida diet for so long, I feel a little paranoid about fruits. How much fruit can he have? ------------------------------ End of SCD-list V1 #68 **********************
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