Excerpts from the SCD-list January 1998 >>> Dempsey <stellar1@pacbell.net> 01/19 8:45 PM >>> Hello everybody, I am one of the people who have had such success on the SCD that I am now so busy enjoying a regular life, I have wandered away from participating in the list as much as I used to. One of the pitfalls of getting healthier! I have been on the diet since March 97, going on eleven months now. I am someone whom the diet has helped very much. I know there has been a lot of discussion on the list about whether the diet is enough. My opinion is that for those whom it works for, it works very well. If it doesn't, then it may not be worthwhile for you to be on the diet. Elaine recommends a month on the diet to see if it helps. If it doesn't perhaps you need something else, or a personal variation (which could no longer truly be called the SCD, by the way). I myself had to eliminate many so-called "okay" foods for a long time. I even gave up honey, all dairy and all fruit except apples for several months. Now I can eat everything. I even had some "cheats" over the holidays, namely some chocolate and white sugar, and didn't have a single symptom from my transgressions, which is really amazing to me. I never dreamed I would have such good bowel health again in my life. By the way, my condition has been IBD. I've been in remission since last August. I have gone through many many patterns of up and down during this past year, with relapses and bouts of flu-like symptoms. But from my experience, I want to encourage everyone to stay optomistic and keep trying. Don't give up and don't ever cheat until you have at least been symptom free for a long time (of course, Elaine recommends staying on the diet for a year after you last symptom) and know you could handle it emotionally if you backslide into a relapse.. Do what you need to do for yourself if you need to take supplements, vitamins or the drugs that help you, we are all highly individual. However, it is my belief that the SCD really does rehabillitate bowel health over the long term, even without additional measures. It may take a long time. But the basic premise is sound. I know this from having tried many angles of alternative health care and traditional western medicine over many years of debilitation. I think I will remain on an SCD pattern of eating for the rest of my life, because it actually is rather habit forming after being on it so long. And also because my Mom has had Crohns and I think my gut is my "weak link." I will undoubtedly always have to be careful. I can still tell how stress affects my gut, although I haven't had a relapse in many months. I also think it is important to really read the book -- and to re-read the book at some point, because there are things you will understand after being on the diet for awhile that might have not made as much sense in the beginning. There is a lot of science to understand. I wish everybody a great deal of luck to top it all off! Best wishes everybody,
Denise
Date: Wed, 21 Jan 1998 08:36:26 -0500 From: Fiona Grapp <fionag@umich.edu> To: SCD-list@longisland.com Subject: Re: SCD -- Is it enough? Denise - How long were you symptom free before you could start eating everything?
Fiona
Date: Thu, 22 Jan 1998 12:31:26 -0800 > How long were you symptom free before you could start eating >everything? Fiona, First let me be clear that what I mean by being able to "eat everything" is everything that is on the SCD diet. I have not experimented with grains at all, or anything else for that matter, short of the cheats I had over the holidays that did not affect me adversely. But to answer your question, four months. In August I was still not able to eat some things. I might also add that I took medicine to erradicate an amoeba at that time (in August) and that made a big difference for me, helped along the SCD for me in a big way. I think it just shows how unique all our situations are. Best wishes,
Denise
Date: Tue, 3 Feb 1998 23:33:04 EST Hello Michelle, I have some of the same questions that you do regarding the SCD diet. I came out of eight years of Crohn's remission in september and went on the SCD diet and Pentasa in october. My daily bouts of loose stools and D. stopped almost immediately. I am staying strictly on the diet, but am not limiting the quantities of any permitted foods, ie. as much fruit, honey, yoghurt, nuts, meat, vegetables etc. as I can eat. I seem to tolerate everything. The pains from inflammation have subsided substantially, but are still present occasionally. I was very anemic, but have been very aggressive with iron, b-12, folic acid, and a host of vitamins. My blood levels improved quite a bit in two months but still have a way to go. I have a stricture that is too small to allow a scope through and finally, may be developing my first fistula. I really hope that isn't the case. My feelings on all this is that I will give nutrition (SCD) and modern medicine 100% each a chance to get me to the best overall health I can have. Stopping eight years of D. is surely an improvement and I contribute that exclusively to SCD. According to Elaine Gottschall that should also improve blood levels. I expect it is the Pentasa that has helped reduce the pain of inflammation this quickly. But it may not be enough. We'll see. I've always been a firm believer in modern medicine. But I chose to go on the SCD diet because it makes so much sense. We are all learning as we go. I think the restrictions of the diet is a small price to pay for the chance it may bring renewed health. Good luck!
Date: Thu, 29 Jan 1998 23:00:49 +0000 I wasn't going to write this until I'm sure that I'm on the right track but here goes (I hope I don't have to eat my words - there's not much else I can eat at the moment! :) ) Anyway, I've been sick for about 3 1/2 years with extreme weight loss, sickness, nausea, unable to eat anything sweet including all fruit, and not much carbohydrate or large amounts of food. For the last few months have been afraid to eat hardly anything, as my bowel and stomach have such a bad reaction. I've been cutting right down on carbohydrates and mainly having vegie juices, and getting pretty weak. I went to a new gastroenterologist a couple of months ago, who recently performed a colonoscopy (my 4th I think, first time with him). I haven't had the result back yet, but he also made an appointment for me at the Allergy Clinic which is attached to one of our main teaching hospitals. It was free, so I figured I'd humour him and go along for the ride, as I couldn't convince him my problem was parasites and/or yeast (both of which have been diagnosed) which has resulted in colitis. I went there three days ago, and the interview lasted just over 3 hours. I was tested for allergies (skin prick test), which came up zilch. Then I saw a doctor, who took my medical history. Lastly I saw a very knowledgeable dietician (to my ears anyway!). The longer I sat there listening, the more upright I sat in my seat. Suddenly I felt renewed hope for orthodox medical practice! I haven't read Elaine's book, but judging by what some people are eating/not eating on this list, I imagine it's something similar to what she talks about (or maybe not). The clinic told me about how all food contains chemicals and can be divided up into three main food groups - ie. Salicylates, Amines and Glutamines, and how some people react against these chemicals and they call this "intolerance" (as opposed to "allergy"). Every food has varying amounts of these chemicals, ranging from low, to moderate, to very high. These intolerances can be very severe, and debilitating in some people, and occasionally require hospitalisation. Other people get through life just feeling unwell and have varying degrees of diarrohea/constipation etc and feel not quite right, and others sail through life and eat all they like without any effect! I felt quite happy with this explanation, and glad they weren't going to tell me that I was making it all up!! and it was only a touch of irritable bowel or some other rubbish. Anyway, I came away loaded up with explanatory books, a food diary to keep for 2 to six weeks, & diets with yummy sweet foods in(!). I thought, well if I eat half this stuff I'm going to end up in hospital! I was a bit hesitant, but it didn't take me long to try out the rice flour pancakes with golden syrup or the Golden Carob Roll, not to mention the soup with more carbohydrates than I'd had in a week! I went to bed the first night thinking I wasn't going to be able to get out of the bloody thing the next day! I had nightmares about plane crashes and being lost in fog....but woke up the next day feeling fine, just a slight headache, nothing like I was expecting. Couldn't believe it. Apart from constipation, no reaction from my stomach or bowel, two parts of my body I would rather not be so intimately acquainted with! Apparently, all sugar has chemicals in it, but the sugars with the lowest chemical makeup, is golden syrup, maple syrup, and white sugar. Honey is very high in natural chemicals, along with all jams, fruit flavourings, chocolate, mints, peppermints, and lemon butter. In the moderate range is molasses and raw sugar. Apparently because white sugar is refined it's had most of the chemicals removed. All fruit varies in its chemical makeup and ranges from low, moderate, high to very high. Lowest are pears (ripe and peeled - lots of salicylate in the rind) and is the only fruit permitted in initial stages of the diet. This approach ranges over a wide variety of vegies as well. Now I understood why I would eat some things which were ok for me but combined with food which weren't ok and made me feel ill, so I would put all those foods on the prohibited list. Meanwhile physically I feel fairly good, and emotionally I feel over the moon. Of course tomorrow's another story, but if I can get through to the middle of next week without a flare I know this is my problem, and my search will be over! If not it'll be a double dose of anti-depressants and a straight-jacket - I'll keep you all posted. Jackie
Date: Sat, 31 Jan 1998 18:28:37 +0000 Fiona wrote:<<You mentioned that they gave you books. Can you
tell us the titles and
authors? I'd like to read them to see if it makes sense for me>>
Hi Fiona, The books they gave me are written themselves at the Allergy Unit and only one is available here in Sydney major bookstores - Friendly Food (a recipe book). The other a booklet is called Salicylates, Amines and Glutamate and one called The Simplified Elimination Diet. If you give me a couple of days, I'll get together the basic outline for you. I got a bit sick yesterday, as I'd started using soy milk and tofu again. They say that soy is ok, but -some- people may be allergic to it. I've stopped using it (since lunch time yesterday) and feel heaps better again. It's only been 4 1/2 days but my colon has settled down a lot, and I don't feel ill (very unusual considering what I've been eating). I can still feel my colon but it doesn't feel inflamed anymore, I guess also it may take a while for the tissue to heal because it's no longer being "attacked" by the food chemicals. I've also started having more normal BM's (today). I had a pancake made with allergy free pancake mix and golden syrup late yesterday had no effects. I still can't believe I could have been so sick from food intolerances! I'm starting to put a little weight on as well. I've made some rice and sago vanilla ice-cream (I just cooked and high-speed-blended the white rice and sago together with vanilla and a teaspoon of golden syrup) and froze it and I'm going to have it tonight with another pancake - I admit it I'm turning into a food-a-holic!. I feel as though I've been let out of a cage! Seriously though, it's great to be able to eat and not end up in varying stages of sickness because of food. I really was getting to the stage where I thought I'd just stay in bed and drink water and juices until I got better! I'm still not 100% convinced, it's hard after 31/2 years of chronic illness, but the results are better than anything I've done in the past (except fasting, when I wasn't eating at all so no food was affecting my bowel). I did have some good effect with the yeast free diet but that was because I was eating a lot less carbohydrates (almost none) and therefore the food was passing through more quickly and had less time to sit there and irritate the lining of my bowel. Also I still had to drinks gallons of water a day to go to the toilet (when I didn't have diarrohea). The yeast free diet is similar to this except even more things in the vegie dept. are prohibited in this diet initially, but other things can be eaten (such as refined sugar and lots of potatoes and carbs). Between 2 and 6 weeks, if I feel a lot better, I can start to reintroduce foods, one at a time, and see if I have a reaction. They give you little capsules with very concentrated amounts in them to try and you wait for three days and see what happens. Another plus is that I'm actually getting starting to feel hungry again. My partner keeps thinking someone's going to knock him over the head and he'll wake up. He's suffered as much as me in some ways, not bodily but emotionally, seeing me so sick, not to mention putting up with my constant moaning and groaning! I forgot to mention in my initial posting that when my gastro. recommended I go there, he said was telling me about another very sick female patient, who some days was too ill to get out of bed, and she felt almost 100% better since going on this diet. Of course I wouldn't believe she could be as sick as me! Also he said that 1 in 2 of his IBD patients are relieved of their symptoms with this. I hope I'm in the right half! Jackie
Date: Sat, 31 Jan 1998 08:51:14 -0500 Dear Jackie,
In an earlier posting you metioned that you've not read Elaine's book. I
highly recommend that you do. It has given a lot of people a lot of
releif
from their IBD. It disallows a lot of the food you mention, but I still
think you would find the book of major interest.
Before I was finally diagnosed with UC (probably about 10 or 11 years
ago),
I ate evrything because I didn't know that food was causing my distress.
When I started to realize that there might be a connection, I started to
try to change my diet, but because I had no knowledge of what I should
or
shouldn't eat, it was a disaster. I was literally hemmoraging to death.
Finally when I was hospitalized, they put me on a bland diet. A lot of
what
you mention was on it and it did seem to quiet things down a bit. I
lived
on pancakes, white rice, white sugar and the likes. When you read
Elaine's
book you will find that these things actually feed the disease. I was
very
skepital going into the diet and would certainly have not even tried it
if
I hadn't spoken to someone who had crohns and had miraculous results on
the
diet. I'll be on the diet for 3 years on May 1st. In the first year I
had
an occasional symptom, mostly when I had inadvertantly strayed a bit
(resteraunt or a well meaning hostess). In the past 2 years I've been
totally symptom free.
If you are interested, and have a problem locating the book, please let
me
know.
Rachel
Date: Tue, 3 Feb 1998 20:13:22 +0000 I'm feeling better every day on this diet (the elimination diet to do with salicylates, amines etc), can't believe it!! and it's only been just over a week. Hopefully, one day I'll be able to say "bowel?? what bowel?". I've also found a website where the book "Friendly Food" which deals with food intolerances to do with chemicals in food, if anyone's interested in having a look: http://www.magna.com.au/~quantum/general/friendly_food.html There is also a section entitled: Intestinal Parasites May Be Responsible for Chronic Illness by a Dr Leo Gallard. And a section dealing with Fibromyalgia which I think someone with this disease enquired about info on. The website seems is aimed at people only with chronic fatigue syndrome, not sure why as it's helped me a lot and that's not what I have.... Jackie
Date: Sat, 31 Jan 1998 08:50:26 -0800 Dear Rachel and SCD list, The SCD diet has worked well for me. Elaine is a genius and has quite simply come up with a palatable paleo diet, which in reality, almost everyone should be on.(for maximum health) Wheat and other grains stress out the immune system of all hominids, not just IBD victims. I have also tried it on my son, with the following problems: He has tested very allergic to casein (milk protein) so how can I put him on the dairy acidophilus? I also can't do the yogurt/dry curd cottage cheese/ etc. Years of leaky gut from antibiotics have created antibodies in his blood to dairy. What I have done so far with him is adapt the SCD diet to make it even more paleo, no dairy products, no dairy acidophilus. Even the non-dairy Natren are in a legume base, other non dairy acidophilus are in a malto-dextro base.[dextro sounds like sugar?] I have him on a different pro-biotic called Soil Based Organisms. This is a fomula of some acidophilus with also some soil bacteria. Think about it, paleo man got a lot more soil (or dirt) in his diet. I watched a show on TV showing some hunter gatherer tribes in the Amazon and they lived/ate filth and looked completely happy and healthy. There are no dishwashers or other sanitation there ---- the human body historically has gotten a lot more soil based bacteria in it. I would prefer him to be on nothing, a totally natural diet, I have him on these (SBOs) out of sheer desperation. I find if I take him off the soil based, the diarrhea comes right back. The soil based help get rid of the diarrhea and he seems to digest better. (How would you like to clean up diarrhea 5 times a day!!) Also, there is new research in the UK coming out in the prestigious LANCET Magazine in February linking the MMR vaccine to Crohns disease. The measles vaccine lodges in the lymph nodes of the intestines and creates disease/havoc. Many (not all) people with Crohns may have very high measles titers in their blood from the MMR vaccine. Many kids labelled as "autistic" have brain damage because they can't digest (measles in bowel's lymph nodes inflaming bowel) and the brain is not nourished, whence the so-called autism or brain damage. In the UK a group of parents are suing the MMR vaccine mfg as their kids were born normal and regressed into autism following the MMR. Dr Wakefield showed pictures of the bowels of the MMR victims and they were like hamburger. I believe my son may have this, but so much of this info is cutting edge and I have already exhausted my funds on doctors. Even alternative docs can't help us so far. A person who gets Crohns later in life may have had a booster shot (?) with measles in it?? Of course I am not saying that MMR is the only cause of Crohns, just one of many. Anyway, would appreciate ANY help and ideas for my son. He was born completely normal, bright eyed and bushy tailed, became an absolute wreck from vaccines/antibiotics. Thank you to all on the List!! Moira
Date: Tue, 3 Feb 1998 09:51:27 -0500 Dear All,
Date: Tue, 3 Feb 1998 09:44:44 -0600 To Rachel, I too have had wonderful success with the SCD, so much so that am now contemplating the addition of some non-SCD item to my diet. I continue to value the list because, even though I don't participate much. I like the idea that I can refer an IBD sufferer who is at the end of their rope (as I was) to this e-mail community. Discussion here is generally cordial and insightful; and always empathetic and suportive. This tone is set, in no small measure, by the posts one Rachel Turet. The support gained by lurkers and participants is more than you know. So a warm thank you to you Rachel! Enjoy your moment in our spotlight. You deserve it. Tim
>-------------------------------------------------------------------- ------------------------------
Date: Wed, 21 Jan 1998 23:50:29 EST Hi Sanford, I have been on the scd since august '97 and also experienced very low energy since then. I found that I was not actually eating enough food, period, but also, not enough carbos because of all the scd restrictions. Two weeks ago, I was consulting with an acupuncturist about other issues and she suggested I see a naturopath she recommended due to that person's expertise on "The Zone" diet. The "Zone" is a carefully calibrated food program in which you make sure that each meal has a particular and consistent balance among carbos, protein and fat/other. Her only reason for suggesting I look at it is to make sure my scd meals have that important balance. I found the naturopath's advice very helpful and have been measuring my legal scd foods for each meal since and can already tell a difference in my energy, even tho' I still have digestive symptoms. A very quick run-down of the program is that you need to make each meal consist of 40% carbos, 30%protein and no more than 30%fat/other (i.e. like tomatoes, lettuce and scd-mayo on a "sandwich"). A "standard" meal is what is called a "3-block" meal: you eat 3 blocks of carbo, 3 of protein and 3 of fat/other (there are restrictions on how much of fat/other is fat rather than other, naturally!) A "block" is equal to 9 grams of carbo, which seems to usually come close to abt 1 1/4 or 1 1/2 cup of any given legal vegetable, and abt. 1-11/2 oz of protein (i.e.meat/fish), or 7 grams of protein. The "fat" part usually is given as abt 1/3 tsp for one block. So you can figure that a 3 block meal is abt 3-4 cups of veges and 3-4.5 oz of protein with the allowed 1 tsp of fat. But on the scd, since we get no complex carbos or processed foods, I let myself have more fat than that and I'm now maintaining my historical set point of weight. I also mix my veges so I don't have to eat 3-4 cups of the same veg. at one meal. You might want to pick up the book just to flip through it or, ask
around for
a naturopath or dietician/ nutritionist who know the "Zone"
well and can help
you balance your intake. It's still early days on this
"block" plan for me,
but using it and the scd seems to slowly be building my energy. (I also
only
eat cooked foods, no raw fruit, veges or nuts and no yogurt yet).
Good
luck, Liz
Date: Thu, 22 Jan 1998 00:00:19 EST Jane, My husband and I have both experienced very low levels of energy (me when I was pregnant) and couldn't seem to find anything that would help. Then we were introduced to liquid minerals marketed by Equinox International. We had tried other minerals to no avail, but this stuff really helped a lot! My baby became more active in the womb (actually did not stop moving for about 3 days) and I got a little concerned. I talked to my doc and he said that was fine, I probably was needing those minerals. Needless to say, I got the energy I needed to carry me through the third trimester. My husband has been up and down due to UC, but the minerals also help to boost his energy. We did become representatives to market this product along with their other fine products, but that is not why I am telling you about it. It matters not to me whether you decide to take it or not, I'm just sharing my own experience. Val
I recently accidently came across a guy, a Phd, who works at the
London School of Hygiene and Tropical Medicine who sent me an
abstract on new research linking Blastocystis and IBD from 'Medline'.
I think it's fairly recent. The research was conducted in Pakistan
and London. Thought some of you may have been diagnosed with this
particular parasite so here goes: Significantly increased IgG2 subclass antibody levels to Blastocystis hominis in patients with irritable bowel syndrome. Am J Trop Med Hyg 1997 Mar;56(3):301-306 By Hussain R, Jaferi W, Zuberi S, Baqai R, Abrar N, Ahmed A, Zaman V Blastocystis hominis is a common intestinal parasite of
humans in the tropics whose pathogenic role is in
dispute. Its presence has been reported in a variety of
intestinal disorders resembling irritable bowel syndrome
(IBS) such as diarrhea, anorexia, and flatulence. We
have therefore investigated a possible link between IBS
and blastocystosis by determining IgG antibody levels to
B. hominis in patients with IBS. Levels of IgG
antibodies were significantly elevated in patients with
IBS compared with asymptomatic controls (P < 0.0001, by
Student's t-test) in both B. hominis stool
culture-positive and stool culture-negative IBS
patients. When IgG antibodies were divided into their
respective subclasses, only IgG2 levels were
significantly increased in IBS patients compared with
asymptomatic controls, indicating that the predominant
response in these patients may be directed to
carbohydrate antigens. The diagnostic usefulness of this
test in IBS patients remains to be established because
these data are only suggestive of a possible link
between B. hominis and IBS. However, we hope that this
antibody test will help in elucidating the controversy
that surrounds the role of B. hominis as a pathogen at
present.>
Has anyone been diagnosed with this particular parasite (I'm
not sure which it is)?
Jackie
Date: Fri, 23 Jan 98 12:05:42 CST hi, doctors for the most part will only do what the FDA says they should, but the researchers are not totally ignoring the bacteria connection. for example, just recently Sartor in The American Journal of Gastroenterlogy (1997 Dec;92(12Suppl):5S-11S ) stated the three theories for the etiology of IBD 1) reaction to a presistent intestional infection 2) exsistence of a defective mucosal barrier to luminal antigens 3) a dysregulated host immune respones to ubiquitous antigens ALL three are related to some kind of bacteria/protozoa/yeast etc ... in a similar vein Dr Hanauer, Univeristy of Chicago, who "discovered" UC refered a patient to a Dr McCann and this Dr McCann successfully repopulated the patient's bowel with friendly E. Coli strains which caused a four year state of remission. that was reported in 1994, (sadly, nothing more as been published on this technique since.) so orthodox medicine is coming around, slowly, but not before it's proved to "death". ted
Arch Biochem Biophys 1994 Nov 15;315(1):161-169Action of phenolic derivatives (acetaminophen, salicylate, and 5-aminosalicylate) as inhibitors of membrane lipid peroxidation and as peroxyl radical scavengers. By Dinis TC, Maderia VM, Almeida LM Laboratorio de Bioquimica, Faculdade de Farmacia, Universidade de Coimbra, Portugal. The action of the phenolic compounds acetaminophen, salicylate, and 5-aminosalicylate (5-ASA) as inhibitors of lipid peroxidation was studied under conditions suitable for establishing their antioxidant potencies. These phenolic compounds react differently with diphenylpicrylhydrazyl (DPPH) and protect differently sarcoplasmic reticulum membranes against lipid peroxidation induced by Fe2+/ascorbate, as evaluated by the formation of thiobarbituric acid-reactive substances (TBARS) and by the loss of the polyunsaturated fatty acyl chains. 5-Aminosalicylate reacts promptly with DPPH, suggesting a potent radical scavenger activity and was found to be the most active in inhibiting Fe2+/ascorbate-induced lipid peroxidation. These compounds also exhibit peroxyl radical scavenging activity generated by the water-soluble 2,2'-azobis-(2-amidinopropane hydrochloride) azoinitiator of peroxyl radicals, as evidenced by the inhibition of cis-parinaric acid fluorescence decay or oxygen consumption. 5-ASA rapidly scavenges peroxyl radicals in the aqueous phase, producing a concentration-dependent inhibition period similar to Trolox or cysteine, suggesting an antioxidant activity of chain-breaking type. By comparison, the reactivities of acetaminophen and salicylate are significantly weaker, acting essentially as oxidation retardants. Although closely related in structure, the antioxidant efficiencies of the three phenolic compounds are significantly different. The higher antioxidant activity of 5-ASA is putatively related with the p-amine relative to the hydroxyl group, potentially increasing the stability of the phenoxyl radical. Such a stabilization is not possible with salicylate and is decreased in acetaminophen by an electron withdrawing effect of the p-acetyl. PMID: 7979394, UI: 95070159
Date: Fri, 23 Jan 1998 17:39:36 EST Have tried the cheesecake recipe after looking for months for DCCC and finally finding it. It was awful! I did it exactly by the book but found it gritty and tasteless. Any suggestions? And finally a recipe to spice up an evening: Saute some raisons in a little bourbon Hope someone likes this. Brent
Date: Fri, 23 Jan 1998 16:20:41 -0800 Re muscle cramps, I too have these and just today bought potassium tablets as a supplement to my SCD diet as I'm not getting much potassium...no potatoes, no bananas, etc. (no starches, no fruits). We'll see how it works. Re the cheesecake recipe, I make at least one a week and it's wonderful, but I did alter it slightly, after experimenting with several different methods: Instead of 2 cups DCCC, use slightly more (makes it more creamy) about 1/4 cup to 1/2 cup more total. Make sure you are packing it down in the measuring cup. Bake in a glass pie plate. The cheesecake consistency doesn't do well if baked thicker. Instead of 2 teaspoons vanilla extract reduce to 1 teaspoon vanilla extract I use the lemon extract, because it's faster and easier to digest. Really delicious. Good luck, Prateeksha
Date: Sat, 24 Jan 1998 02:32:31 EST
Here's how to make the SCD Cheesecake better: Sanford
Date: Mon, 26 Jan 1998 20:34:28 -0600 Here are two recipes that I really enjoy. They are from the Pillsbury cookbook. Oven Baked Stew 2lbs beef stew meat Heat oven to 250 degrees. In ungreased 3-quart casserole, combine
all
ingredients; mix well. Cover; bake for 5 to 6 hours or until meat and
vegetables are tender, stirring occasionally. Parmesan Squash 1/2 cup chopped green onions Heat oven to 350 degrees. Oil a 3-quart casserole dish. In small
skillet, cook onions in butter until tender; set aside. In large bowl,
combine squash, Parmesan cheese, eggs, honey, dry mustard and pepper;
mix well.
Date: Fri, 23 Jan 1998 00:26:47 -0800
> -----Original Message----- Mike Simons makes a good point. The SCD is conspicuously missing from the CCFA pages. The CCFA does not serve itself well by omitting reference on the one hand to such a successful diet, while on the other hand stressing pharmaceutical and surgical remedies. In my humble opinion, this omission exposes a bias toward filling certain pockets instead of a general interest in curing patients. It is easy to see that the CCFA pages reflect a strictly physicians point of view. Those of us who have benefited from the SCD already know the dietary approach is a significant omission in the world of modern medicine. The dietary cure is not popular in the world of mainstream medicine. First because the results are not always repeatable, secondly because a dieting regime is not a money maker for the medical/pharmaceutical industry. The diet based cure actually competes with the pharmaceutical industry. Investors in the pharmaceutical industry could be weary of potentially successful diet based cures that could cut into the return on their investments. A reasonable and a legitimate position to take also for those who make a living treating patients, such as physicians and surgeons. A dietary cure on the other hand could be mostly of interest to patients, the suffering lot of us, and the few good souls (including doctors) who are on the information service circuit. We need to find ways of helping those that help us with diets that work. Money makes the world go round and clearly a patient's interests are financially somewhat different from those who make a living out of treating patients. These are the realities of the present day competitive society in which we live. Elaine Gottschall's SCD and these WEB pages have been a real help in my personal struggle with the disease. Here in these pages is help and support that is simply not available anywhere else. Certainly not at my doctor's office. I have found the SCD Web Library site http://www.inform.dk/djembe/scd/ to be full of helpful information. Needless to say the CCFA site is not one of my favorite bookmarks. Alp Akpinar
Date: Fri, 6 Feb 1998 09:26:51 +0000
>>And what is going through the minds of all these people who
are
"racing for the cure"?? Do they really believe all the
researchers
at the multi-billion dollar drug companies are slaving away day and
night to find something that would put them out of business, so they
could all pack up their bags and close down shop? >> Well said Ronn! Try http://arxc.com/arxchome.htm - great directory with lots of info on alternative medicine PLUS go to Health Hotline - latest info. re drugs co's push to limit availability worldwide of vitamins and natural medicines. OR bypass alternative health directory and go straight to Health Hotline site: Jackie
Date: Fri, 30 Jan 1998 16:03:39 -0500 Dear all, I just opened the mail and you've sent enough money at this point to keep the list alive for the next 4 and 1/2 months. You guys are the best. At this rate we'll have the year paid up in no time. I got something else interesting in the mail. When I was first diagnosed many years ago, I subscibed to the CCFA. I've stopped supporting them ever since I found out that they have no interst in backing or even researching the SCD. However I sent them enough money to keep me on their mailing list til the end of '99. This means that at least once a month I get a letter from them asking for money. I also get a newsletter from them full of stories about how brave people adjusting to life with IBD. I have no interest in learning how to live with it. I want it out of my life. Thank the powers that be that the SCD helps me to accomplish this. So anyways all the years of getting mail from them has finally produced a gift. Along with their letter asking for money, they sent me an accessory that no well dressed IBDer should leave home without. It is a card to be kept in the wallet for emergencies and it reads as follows; I CAN'T WAIT I apoligize for my sarcasm to those of you who beleive that this card
would
be useful to them, but personally I think that the millions that the
CCFA
collects would be put to much better use in finding a cure than by
issueing
a card that I think most shopkeepers would be horrified to be faced
with. I
could just read their thoughts; "oh yeah, sure, you can go stink up
my
bathroom" or worse yet, the totally uneducated ones, "yeah and
just what
kind of horrible disease did you think you were going to leave
behind". It
makes me think of the guy in an airport or train station passing out
cards
that read "I can't support my family, please give me money".
Sorry, but to
me IBD carries enough pain and humiliation without the additional
implications of a card like this. Just my sentiments.
Love Rachel
Date: Mon, 2 Feb 1998 09:00:43 -0800 Mike Simons, The USDA has a Nutrient Database at the following location. You can search on different food items and get a report of the amount of nutrients it contains. It also includes carbs, fat, fiber, etc. http://www.nal.usda.gov/fnic/cgi-bin/nut_s.pl Linda
Date: Thu, 5 Feb 1998 07:29:58 EST It is my understanding that the body will develop allergies to foods
that are
eaten with continued frequency. I used to eat too much chicken and
potatoes
and my allergy tests were 4 on a scale of 4 for allergy for chicken and
potatoes. I stopped eating my allergic foods, gave my body a chance to
clear
out and now I can eat these foods but on a three day alternating
schedule.
The three day time frame supposedly allows my body to not start building
up an
allergen to the foods again. Alternating is fairly easy, I just
remember not
to eat something again for three days. I also have to watch out for
food
families. I can't eat brussel sprouts within three days of eating
broccoli
(same family).
Weight loss: I go to all bones on no flour products or pastas. I had
to find
rice flour breads, waffles and pastas. I am gluten allergic and was
getting
too too thin on no flour products. I am careful to not eat any gluten
flour
product.
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