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SCD-list index page
SCD-list Wed, 20 Aug 1997 Volume 1 : Number 14
In this issue:
Cooling and heating milk for yogurt
"Cookies"
More questions; and some new information
Re: More questions
Re: Acidopholus which one? -Reply
Re: Acidopholus which one? - lesser of two evils
--------------------------------------------------------------------
SCD MAILING LIST
-------------------------------------------------------------------
----------------------------------------------------------------------
Date: Tue, 19 Aug 1997 18:23:01 -0700
From: "Rosset" <plrosset@pacificrim.net>
To: "SCD-list" <SCD-list@longisland.com>
Subject: Cooling and heating milk for yogurt
Message-ID: <199708200129.SAA24351@cascade.pacificrim.net>
Dear Prateeksha,
Another way to cool down the milk or 1/2 &1/2 is to set the hot pan in a
metal bowl of cold water. About 5 min. later, toss that water out, and
start again with more cold water. I haven't timed it, but it seems like it
takes about 15 minutes.
I've also found that the milk heats up faster if you keep a lid on the pan
between stirrings.
Lucy
------------------------------
Date: Tue, 19 Aug 1997 20:37:11 -0700
From: Dempsey <stellar1@pacbell.net>
To: SCD <SCD-list@longisland.com>
Subject: "Cookies"
Message-ID: <33FA6667.781B@pacbell.net>
I am in heaven. I just made some "cookies" from the Honey Almond Crisp
recipe by dropping teaspoonfuls of the mixture into the bottom of
non-stick muffin tins. They only take about ten to twelve minutes to
bake. Also, in case anyone wants to try this, I can't eat dairy so I
substituted olive oil for the butter and they are a little chewier
rather than crispier, but really delicious. I also have made the recipe
with pecans and it came out fantastic. One addition that's different
from the recipe in the book, I added a pinch of salt. Yum.
Denise
------------------------------
Date: Wed, 20 Aug 1997 10:43:46 -0700
From: prateeksha@infoasis.com (Prateeksha Bogardus)
To: SCD-list@longisland.com
Subject: More questions; and some new information
Message-ID: <v01550100b020774ab5d6@[206.40.74.39]>
Hi Everyone.
Questions:
Other than saying in the book, "no seaweed", Elaine does not explain.
I
don't know much about seaweed, but hear that spirulina and perhaps blue
green algae are very good for intestinal disorders. Does anyone know what
the properties of seawood are? Carb or starch? or what? If not carb or
starch; then why is it a no-no?
Also, what bout wheat grass?
Anyone know about ginseng? Isn't it supposed to be strengthening? I get
so weak on this diet that I am looking for ways to supplement it that are
complimentary and will improve my strength and decrease weakness.
Food combining - this week, as an experiment, I have stopped eating fruit
and find my gas problem has subsided considerably; as well as the cramping.
I know that fruit is a source of carbs for me so even more reason for the
interest in ginseng, wheat grass, spirulina, etc.
***
Vanilla Bean Extract - I use quite a bit of this, as the recipes call for
it and to my horror, yesterday I noticed on the bottle of "Crown
Colony"
brand that it contains sugar! So, we have to be very careful of the brand
that we buy...found "Frontier" in a health food grocery store that does
not
contain sugar.
Hughson Nut Co. - yesterday called to place an almond flour order; talked
to "Janet". They have a new p.o. box no.1150. Fax 209 - 883-2973.
Not
listed in the book. They accept check or money order only; however, soon
will have credit card option and we can order by credit card on the
internet soon!
***
I am feeling so much better psychologically since joing the SCD-list group;
don't feel so alone with this diet; and am enjoying the support enormously.
My spirits have really gone up since joining. Thanks everyone for
sharing.
Prateeksha.
------------------------------
Date: Wed, 20 Aug 1997 11:03:22 -0700
From: Dempsey <stellar1@pacbell.net>
To: SCD-list@longisland.com
Subject: Re: More questions
Message-ID: <33FB316A.1E43@pacbell.net>
Hi,
> Anyone know about ginseng?
I have used Siberian Ginseng. It didn't trigger any bad effects for me.
> Food combining - this week, as an experiment, I have stopped eating >
fruit and find my gas problem has subsided considerably;
I found that I had to give up fruit completely in the beginning of the
diet. Now (after six months) I can eat apples and cantelope, I still
can't eat peaches. It's hard to get the courage to add one in to see if
it bothers me or not.
Denise
------------------------------
Date: Wed, 20 Aug 1997 12:28:42 -0700
From: "Rosset" <plrosset@pacificrim.net>
To: <SCD-list@longisland.com>
Subject: Re: Acidopholus which one? -Reply
Message-ID: <199708201934.MAA01453@cascade.pacificrim.net>
Dear Raman,
My book has no mention of "the lesser of two evils" you refer to below.
Here is what I found in the book:
Do not use any product that contains FOS (fructooligosaccharides). This
form of starch (inulin) may feed harmful bacteria as well as "friendly"
bacteria and will defeat the benefits of the diet.
If you are using preparations containing "friendly" bacteria (which
often
contain other ingredients), it is better to use products that contain
lactose (or whey) than FOS.
Let me know if your book actually says something different.
Lucy
----------
> From: RAMAN PRASAD <RAPRASAD@BCBSCT.COM>
> To: SCD-list@longisland.com
> Subject: Acidopholus which one? -Reply
> Date: Tuesday, August 19, 1997 5:38 AM
>
> --------------------------------------------------------------------
> SCD MAILING LIST
> -------------------------------------------------------------------
> The acidophillus doesn't have to be lactose based. The book advised
> against taking supplements containing FOS (fructo-oligo saccharides
> sp?). It went on to say that given the choice between supplements
> (such as acidophillus) that contain FOS or supplements that contain
> lactose, choose the lactose ("the lesser of two evils").
> However, it be would be ideal to use a non-lactose, non-FOS brand
> of acidophillus.
>
------------------------------
Date: Wed, 20 Aug 1997 15:39:42 -0400
From: RAMAN PRASAD <RAPRASAD@BCBSCT.COM>
To: SCD-list@longisland.com
Subject: Re: Acidopholus which one? - lesser of two evils
Message-ID: <s3fb10f1.057@BCBSCT.COM>
I apologize for the confusion, I put "lesser of two evils" in quotes
b/c it sounded cliche. It is not in the book.
(I think I need to get out of this cubicle)
Take care,
Raman
------------------------------
End of SCD-list V1 #14
**********************
SCD-list Thu, 21 Aug 1997 Volume 1 : Number 15
In this issue:
Re: Email from Matthew C. re urgency
Re: Acidopholus which one? - lesser of two evils
Fw: Help! - Urgency
Re: More questions; and some new information
Re: More questions; and some new information
Need advice
Siberian Ginseng/Bee Pollen/Royal Jelly
Barley Grass
hot at night
Re: hot at night
Re: More questions; and some new information
--------------------------------------------------------------------
SCD MAILING LIST
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----------------------------------------------------------------------
Date: Wed, 20 Aug 1997 19:54:21 -0600
From: Partridge <raparch@planet.eon.net>
To: SCD-list@longisland.com
Subject: Re: Email from Matthew C. re urgency
Message-ID: <1.5.4.32.19970821015421.006667bc@mail.planet.eon.net>
All,
if anybody kept a copy of Matthew C's email regarding urgency from a few
days ago, could you send us a copy direct? We inadvertently "trashed"
it!!!
Thanks,
Allan, Barbara and Martine
ALLAN
------------------------------
Date: Wed, 20 Aug 1997 19:07:35 -0700
From: "Rosset" <plrosset@pacificrim.net>
To: <SCD-list@longisland.com>
Subject: Re: Acidopholus which one? - lesser of two evils
Message-ID: <199708210213.TAA22532@cascade.pacificrim.net>
Dear Raman,
"However, it would be ideal to use a non-lactose, non-FOS brand of
acidophilus," is not in the book. What the book does say, is that If we
want to use a "friendly" bacteria supplement it should be in a lactose
or
whey base.
Lucy
----------
> From: RAMAN PRASAD <RAPRASAD@BCBSCT.COM>
> To: SCD-list@longisland.com
> Subject: Re: Acidopholus which one? - lesser of two evils
> Date: Wednesday, August 20, 1997 12:39 PM
>
> --------------------------------------------------------------------
> SCD MAILING LIST
> -------------------------------------------------------------------
> I apologize for the confusion, I put "lesser of two evils" in
quotes
> b/c it sounded cliche. It is not in the book.
>
> (I think I need to get out of this cubicle)
>
> Take care,
> Raman
>
------------------------------
Date: Wed, 20 Aug 1997 19:12:33 -0700
From: "Rosset" <plrosset@pacificrim.net>
To: <SCD-list@longisland.com>
Subject: Fw: Help! - Urgency
Message-ID: <199708210215.TAA22616@cascade.pacificrim.net>
----------
> From: Matthew Cirillo <mcirill@emory.edu>
> To: SCD-list@longisland.com
> Subject: Re: Help! - Urgency
> Date: Tuesday, August 19, 1997 12:54 PM
>
> --------------------------------------------------------------------
> SCD MAILING LIST
> -------------------------------------------------------------------
> I believe that urgency is a result of the area affected-that area near
> the rectum. The muscles there are supposed to react to stool presence.
> Since there is undoubtedly swelling there, the sence of urgency
> prevails. My experience has been that the disease "gravitates" to
the
> descending colon as I get better, and eventually dissipates. It means
> she is on the road to recovery. Stick it out, if at home, so be it.
> Partridge wrote:
>
> > --------------------------------------------------------------------
> > SCD MAILING LIST
> > -------------------------------------------------------------------
> > All,
> >
> > Perhaps there are some who can relate to the following problem and
> > offer us
> > some insight and hopefully the benefit of similar situations.
> >
> > Our daughter (20) has been faithful (and fanatically devoted) to the
> > diet
> > for 19 months (12 months with meds, Salofalk and Prednisone -20mg).
> > She is
> > diagnosed as having Crohns Colitis - Crohns of the colon. In that
> > time her
> > weight has continued to increase, she exercises and her bloodwork is
> > returning to normal. She does not eat any raw fruit and can tolerate
> > some
> > cooked fruits. She eats much of the rest of the diet including
> > nutbreads,
> > pizza, meats and cheese/yougurt. In the spring and early summer she
> > had a
> > colonoscopy and she has no disease in her small intestine, her ileum
> > is free
> > of disease and there is superficial disease in the ascending,
> > transverse and
> > decending colon. There is some disease activity in the last 6 inches
> > involving the sigmoid and the rectum. The problem she faces is one of
> >
> > urgency. This has continued to plague her despite the lack of other
> > symtoms
> > that bothered her in the past. As such, she is very uneasy about
> > getting
> > out, going places and becomes anxious on the days when thing loosen
> > up. She
> > has not had any formed BM, some days are better than others and there
> > is
> > occasional thickening of the stools - but there are still loose. We
> > recieved a good suggestion to keep a diary and note things.
> >
> > Has anybody gone through the same? Did you notice any particular
> > trend or
> > pattern? Did anything make the urgency better or worse? How long did
> > it
> > last? and what other things did you notice.
> >
> > This is an extremely trialsome time - the urgency is making her a
> > prisoner
> > in her own home. Help would be appreciated.
> >
> > thanks in advance,
> > Allan, Barbara and Martine
> > ALLAN
>
>
------------------------------
Date: Thu, 21 Aug 1997 07:43:18 -0400 (EDT)
From: EllenAdams@aol.com
To: SCD-list@longisland.com
Subject: Re: More questions; and some new information
Message-ID: <970821074317_-1335813738@emout09.mail.aol.com>
In a message dated 97-08-21 00:49:22 EDT, you write:
<< I
don't know much about seaweed, but hear that spirulina and perhaps blue
green algae are very good for intestinal disorders. >>
I don't think algea and seaweed are related. Algea forms on fresh water
ponds (and fresh water acquariums like mine!) Seaweed grows in the ocean and
is a plant. They seem very different to me, but perhaps someone can address
this with greater specificity.
I took algea for a time before I got crohns and was pleased with the results,
but since then have heard differing views on it that made me think it might
be dangerous. I no longer take it. Evidently the harvesting and processing
of the algea is very significant to the safety of the final product and,
since it is an unregulated product, there are no assurances on that process.
Sorry I can't be more specific. It's been a couple of years since I read up
on it.
Ellen
Ellen
------------------------------
Date: Thu, 21 Aug 1997 08:18:22 -0400 (EDT)
From: EllenAdams@aol.com
To: SCD-list@longisland.com
Subject: Re: More questions; and some new information
Message-ID: <970821081819_282671913@emout14.mail.aol.com>
In a message dated 97-08-21 00:49:22 EDT, you write:
<< I have stopped eating fruit
and find my gas problem has subsided considerably; as well as the cramping.
I know that fruit is a source of carbs for me so even more reason for the
interest in ginseng, wheat grass, spirulina, etc.
>>
Were you eating fresh fruit or cooked fruit? You may find that cooked fruit
bothers you a lot less than fresh. Juice may alos be an option. It may be
worth a try since, you are right, you need the carbs so you don't lose any
more weight.
I'm no expert but I looked up a few things. The US RDA for carbohydrates is
about 200-300 mg a day depending on age, sex, level of activity, etc. I
analyzed a sample SCD menu against the RDA levels for calories, fat, protein,
and carbohydrates. It came out as 120% of the calories, 180% of the fat,
180% of the protein, and only 80% of the carbohydrates recommended. It may
be challenging to keep your carbs up on this diet (especially if you have
long term trouble with fruit). If you get only 60 carbs a day or less you
could induce ketosis which means your body will burn body fat for it fuel
needs. There is debate as to whether that's healthy or not, but given that
you are underweight, I'd wager you'd rather not be there!
Here's a rough idea of the carb values of SCD food. This might help you
determine whether you are getting enough carbs in a day and, if not, which
foods you might be able to emphasize:
Fish, check, bacon, pork, lamb, veal, beef, eggs have 0 g. of carbohydrates
Olive oil and butter have 0 g.
1 C cottage cheese has 3 g.
1 C plain yogurt has 15 g.
2 T. peanut butter has 8 g.
1 T. honey has 17 g.
1 med banana has 27g.
1 apple has 19 grams
1 C apple juice has 28 g.
1 C applesauce has 50 g
1 C beans has 30 g. (navy, lima)
1 C spaghetti squash has 9 g.
1 C broccoli/cauliflower has about 6 g.
1 C coconut has 12 g.
Anyway, you can see how in being "specific" about our carbohydrates, it
would
be easy to end up low in carbohydrate. For people with moderate or excess
weight it's not a problem, but for those who are already underweight, and
find themselves losing even more weight, it might be worth consideration.
I hope this is helpful,
Ellen
------------------------------
Date: Thu, 21 Aug 1997 11:26:28 -0400 (EDT)
From: STVESTONE@aol.com
To: SCD-list@longisland.com
Subject: Need advice
Message-ID: <970821112406_955706555@emout17.mail.aol.com>
Hello all
My husband has been on the scd for one month now and is doing good. He was
able to get off of Prednisone and is now lowering his dose of Asacol.
However, he's been plagued with being very hot at night. Even before he was
on the SCD he always gets hot at night but it's not really a fever. Has
anyone ever experienced this and did it ever go away?
To Prateeksha
my husband has enormously reaped the benefits of barley grass. Not only does
it have a lot of vitamins and minerals but it helps to give him energy. We
buy a product called "Just Barley" It has no other additives and comes
in a
powdered form.
I first bought Dr. Hagiwara's Green Magma but found out that it had brown
rice added.
So I drink that one and have found it helps my PMS.
------------------------------
Date: Thu, 21 Aug 1997 09:13:17 -0700
From: prateeksha@infoasis.com (Prateeksha Bogardus)
To: SCD-list@longisland.com
Subject: Siberian Ginseng/Bee Pollen/Royal Jelly
Message-ID: <v01550100b021af221bb2@[206.40.74.41]>
Hi everyone...
more on ENERGY inducers:
"Prescription for Nutritional Healing" by James F. Balch, M.D., and
Phyllis
A. Balch, C.N.C., gives these (see subject) as often dramatically
increasing energy; however, in reading descriptions of these, I have
questions re the following:
Siberian Ginseng - "Ginseng contains thirteen different ginsenosides
(triterpenoid saponins). The most important constituents include:
panacaene, B-elemene and panaxinol, LOW-MOLECULAR WEIGHT STARCHES pectin,
vitamins B1,2,3,5,12, and Bioltin; choline, minerals, SIMPLE SUGARS, traces
of germanium, and flavonoids."
WHAT ARE "LOW-MOLECULAR WEIGHT STARCHES?" AND "SIMPLE
SUGARS?" Can we have
these on the SCD?
Bee Pollen - Also contains "Simple Sugars"
Royal Jelly - "From Montana Pollen"???
Aloe Vera Juice - Any forbidden ingredients in this? Anyone had any
experience with it?
Herbs given to increase energy in this book:
Acacia, cayene, ginkgo biloba extract, gotu kola, guarana. Anyone have any
expereience with these?
Thanks, Prateeksha.
------------------------------
Date: Thu, 21 Aug 1997 09:29:23 -0700
From: prateeksha@infoasis.com (Prateeksha Bogardus)
To: SCD-list@longisland.com
Subject: Barley Grass
Message-ID: <v01550102b021ba86c8c9@[206.40.74.40]>
>--------------------------------------------------------------------
>SCD MAILING LIST
>-------------------------------------------------------------------
>Hello all
>Snip:
>To Prateeksha
>
>my husband has enormously reaped the benefits of barley grass. Not only does
>it have a lot of vitamins and minerals but it helps to give him energy. We
>buy a product called "Just Barley" It has no other additives and
comes in a
>powdered form.
>I first bought Dr. Hagiwara's Green Magma but found out that it had brown
>rice added.
>So I drink that one and have found it helps my PMS.
***
At the risk of sounding even more stupid than I already have, with all my
questions, here's another one on Barley Grass. Is it derived from Barley?
If so, this is a grain and forbidden. So, what is barley grass?
Thanks, Prateeksha.
------------------------------
Date: Thu, 21 Aug 1997 10:31:30 PST
From: ACB <benkea@MAILHOST.PAC.DFO.CA>
To: scdlist2 <SCD-list@longisland.com>
Subject: hot at night
Message-ID: <0530311021081997/A01897/VANHQ1/11B8AA9F1C00*@MHS>
>My husband has been on the scd for one month now and is doing good. He was
>able to get off of Prednisone and is now lowering his dose of Asacol.
>However, he's been plagued with being very hot at night. Even before he was
>on the SCD he always gets hot at night but it's not really a fever. Has
>anyone ever experienced this and did it ever go away?
Hi there,
How long was he on Pred, and did the hotness at night start before or after he
went on pred? I used to get night sweats and hot flashes from Prednisone. It
continued for a few months after going off the Pred and finally it went away
and I got back to normal. Now I don't get hot at night, sweat profusely in my
sleep, or get hot flashes. I believe in my case it was all caused by the
hormone imbalance that the Prednisone induces.
Anna
------------------------------
Date: Thu, 21 Aug 1997 13:52:02 -0400
From: Bill Miller <miller@bedford.net>
To: SCD-list@longisland.com
Subject: Re: hot at night
Message-ID: <33FC8042.F9A25F68@bedford.net>
I concur on this. My doctor always asks about these "night sweats" as
he calls them. If it was me, I'd call my doctor. I would guess that
you might need to go on a slower taper, so the doctor might say to go on
10mg for a few weeks or something to that effect.
Tapering off pred to fast can lead to adrenal failure among other
things. A naturalpath may have some suggestions on suppliments that can
boost adrenal function -- that may be worth a shot if you believe in
that kind of thing.
Congrats on your success so far!
Bill
miller@bedford.net
ACB wrote:
> --------------------------------------------------------------------
> SCD MAILING LIST
> -------------------------------------------------------------------
> >My husband has been on the scd for one month now and is doing good.
> He was
> >able to get off of Prednisone and is now lowering his dose of Asacol.
>
> >However, he's been plagued with being very hot at night. Even before
> he was
> >on the SCD he always gets hot at night but it's not really a fever.
> Has
> >anyone ever experienced this and did it ever go away?
>
> Hi there,
> How long was he on Pred, and did the hotness at night start before or
> after he
> went on pred? I used to get night sweats and hot flashes from
> Prednisone. It
> continued for a few months after going off the Pred and finally it
> went away
> and I got back to normal. Now I don't get hot at night, sweat
> profusely in my
> sleep, or get hot flashes. I believe in my case it was all caused by
> the
> hormone imbalance that the Prednisone induces.
> Anna
------------------------------
Date: Thu, 21 Aug 97 08:34:45 +0800
From: "Tom Cattrall" <tomc@pnn.com>
To: "SCD-list@longisland.com" <SCD-list@longisland.com>
Subject: Re: More questions; and some new information
Message-ID: <199708212155.OAA18532@pnn.com>
On Thu, 21 Aug 1997 08:18:22 -0400 (EDT), EllenAdams@aol.com wrote:
>
>Anyway, you can see how in being "specific" about our
carbohydrates, it would
>be easy to end up low in carbohydrate. For people with moderate or excess
>weight it's not a problem, but for those who are already underweight, and
>find themselves losing even more weight, it might be worth consideration.
>
I have been underweight all my life. Before starting the SCD I was eating a
"healthy"
whole grain, legumes rich diet. Even though I ate like a horse, I was losing
weight.
Since starting the diet, I've gained over 30 much needed pounds and am now
holding at a
reasonable weight.
It is now obvious that just because I was eating all of that food, it wasn't
being used
by my system. A modest quantity of carbohydrates that my body can use are a lot
better
than vast amounts that are just going through.
Unfortunately, my Crohn's hasn't improved much so I am contemplating surgery.
Tom
------------------------------
End of SCD-list V1 #15
**********************
SCD-list Fri, 22 Aug 1997 Volume 1 : Number 16
In this issue:
Re: More questions; and some new information
Re: More questions; and some new information
Re: More questions; and some new information
Re: hot at night
Re: hot at night
Hot at night
Barley Grass
Re: hot at night
Re: the SCD diet and frequency of elimination
Re: More questions; and some new information
DHEA
book review
Re: DHEA
Supplements
Re: the SCD diet and frequency of elimination
Re: More questions; and some new information
osteoporosis and prednisone
die-off duration
peanut butter recipe not in book
Re: More questions; and some new information
Re: Hot at night
Re: the SCD diet and frequency of elimination
Re: die-off duration
Re: peanut butter recipe not in book
Re: DHEA
Re: More questions; and some new information
Alternative Medicines
Natren yogurt starter
Re: die-off duration
--------------------------------------------------------------------
SCD MAILING LIST
-------------------------------------------------------------------
----------------------------------------------------------------------
Date: Thu, 21 Aug 1997 20:08:14 -0500
From: Rachel Turet <rachel@longisland.com>
To: SCD-list@longisland.com
Subject: Re: More questions; and some new information
Message-ID: <l03010d01b022963367b6@[199.171.4.140]>
Dear Tom,
I'm sorry to hear that your crohn's isn't much improved. I guess that if
there's anything positive to be gleaned from your letter, at least the scd
has increased your weight, hopefully making you stronger, if indeed surgery
becomes the only option. How long have you been on the diet and what has
your experience been with it?
Rachel
------------------------------
Date: Thu, 21 Aug 97 20:54:26 +0800
From: "Tom Cattrall" <tomc@pnn.com>
To: "SCD-list@longisland.com" <SCD-list@longisland.com>
Subject: Re: More questions; and some new information
Message-ID: <199708220353.UAA26056@pnn.com>
On Thu, 21 Aug 1997 20:08:14 -0500, Rachel Turet wrote:
>--------------------------------------------------------------------
>SCD MAILING LIST
>-------------------------------------------------------------------
>Dear Tom,
>I'm sorry to hear that your crohn's isn't much improved. I guess that if
>there's anything positive to be gleaned from your letter, at least the scd
>has increased your weight, hopefully making you stronger, if indeed surgery
>becomes the only option. How long have you been on the diet and what has
>your experience been with it?
>Rachel
>
I've been on the diet over 18 months. Before I heard about the diet, I had
already
discovered that eliminating sugar and sweets from my diet pretty much controlled
the diarrhea. But my main problem now is pain and a tendency towards obstructions
in the area of my terminal Ileum which is very narrow for 6 to 12 inches of
length. I've
had 3 stays in the hospital for obstructions in the last 3 years, 2 of them since
I started the
diet.
Elaine was surprised by my story and said that usually the pain was the first
thing to
get better on the diet.
Anyway, my last (and only) resection was 30 years ago this month. If I can get
another 30
years from a surgery, I'd be happy. With what I know now, I'd like to think I
could stay
healthy indefinitely. It's not like I am desparately ill or anything, more like
I'm just sick
of being sick. Never really well enough to get on with life, but not so sick that
I'm spending
all my life in bed or a hospital. I definitely feel better prepared for surgery
at my current
weight of 160 rather than under 130. At 6' 1", I'm still on the slender side
but at least have
some reserves.
Tom
------------------------------
Date: Fri, 22 Aug 1997 07:17:05 -0500
From: Rachel Turet <rachel@longisland.com>
To: SCD-list@longisland.com
Subject: Re: More questions; and some new information
Message-ID: <l03010d00b023325241e7@[199.171.4.140]>
Dear Tom,
Thanks for letting us know you situation. I guess it would make sense that
certain symptoms would be much easier to ease than others. Narrowing caused
by scar tissue (I'm assuming) would seem impossible to get rid of without
surgery, but as you say, once thats gone, with what you know, keeping whats
left should be much easier. Please keep us posted.
Wishing you the best,
Rachel
------------------------------
Date: Fri, 22 Aug 1997 07:43:53 -0400 (EDT)
From: EllenAdams@aol.com
To: SCD-list@longisland.com
Subject: Re: hot at night
Message-ID: <970822074353_1850764507@emout08.mail.aol.com>
In a message dated 97-08-22 06:11:26 EDT, you write:
<< How long was he on Pred, and did the hotness at night start before or
after he
went on pred? I used to get night sweats and hot flashes from Prednisone.
It
continued for a few months after going off the Pred and finally it went away
and I got back to normal. >>
I get the hot flashes and night sweats too. I have crohns but have never
taken prednisone. I think it's the disease process that causes them rather
than the drug.
Ellen
PS For me it goes through phases. Bad for awhile then gone for awhile.
------------------------------
Date: Fri, 22 Aug 1997 08:04:58 -0500
From: Rachel Turet <rachel@longisland.com>
To: SCD-list@longisland.com
Subject: Re: hot at night
Message-ID: <l03010d02b0233e0100bb@[199.171.4.134]>
I've gotten the flashes/sweats in the past as well. Been on and off preds
too although not in over 2 years. My own theory is that a damaged digestive
system works very very hard to accomplish what a healthy one does
automatically. I found that after eating too much at one sitting, I'd sweat
profusely. It was as though my entire body was just working overtime to
process what I'd eaten. Has anyone else experienced this?
Rachel
------------------------------
Date: Fri, 22 Aug 1997 10:34:14 -0400 (EDT)
From: STVESTONE@aol.com
To: SCD-list@longisland.com
Subject: Hot at night
Message-ID: <970822103236_723017918@emout19.mail.aol.com>
Hi there
Thanks for your encouragement. My husband does get the hotness and night
sweats after he's gone off prednisone. I'm glad to hear it will be getting
better.
I heard the supplement DHEA helps the adrenal gland to function so I'm going
to look into that.
------------------------------
Date: Fri, 22 Aug 1997 10:42:11 -0400 (EDT)
From: STVESTONE@aol.com
To: SCD-list@longisland.com
Subject: Barley Grass
Message-ID: <970822104203_774300867@emout02.mail.aol.com>
To Prateeksha
Regarding your question about barley green. The leaves of the young barley
plant are juiced into powder. The plant is very young and hasn't produced
grain yet.
Lois in LA
(I keep forgetting to put my name, sorry)
------------------------------
Date: Fri, 22 Aug 1997 08:59:35 -0700
From: Dempsey <stellar1@pacbell.net>
To: SCD-list@longisland.com
Subject: Re: hot at night
Message-ID: <33FDB767.6B0B@pacbell.net>
I found that after eating too much at one sitting, I'd sweat
> profusely. It was as though my entire body was just working overtime to
> process what I'd eaten. Has anyone else experienced this?
> Rachel
I definitely have had that experience! Sometimes after a big meal, I
would especially start sweating across my abdomen and stomache.
Denise
------------------------------
Date: Fri, 22 Aug 97 11:09:12 CDT
From: ted.kyle@vantis.com (Ted Kyle)
To: SCD-list@longisland.com
Subject: Re: the SCD diet and frequency of elimination
Message-ID: <9708221609.AA03946@swansong.amd.com>
hi
how soon (if ever) does the frequency of eilimination diminish (once one
starts the SCD diet.)
do bowel movements get normal at some future time after starting
the SCD diet ?
ted
------------------------------
Date: Fri, 22 Aug 1997 09:42:49 -0700
From: prateeksha@infoasis.com (Prateeksha Bogardus)
To: SCD-list@longisland.com
Subject: Re: More questions; and some new information
Message-ID: <v01550102b0230dffa11a@[206.40.74.34]>
To Ellen:
Hi, thanks for your response. I have been eating in the recent past, just
cooked fruit, but that didn't work either...also I find my stool is much
softer and loose when I eat even the cooked fruit...so I have stopped all
fruit...for now and it seems to help a lot. Wonder if others have found
the same symptoms as I have with fruit, even cooked, give me gas, cramping,
and very loose stools?
Also, juice does the same thing! Even veg. juice...think it might be the
high concentration. When I water down the bottled Welch's grape juice, it
seems to be okay.
Your comment "if you get only 60 carbs a day or less you could induce
ketosis which means your body will burn body fat for its fuel needs" really
struck home with me...think that's why I have been losing weight since on
this diet and this probably contributes a lot to my extreme fatigue, as
well...not getting enough carbs...so since getting your email, I have
consciously tried to eat more of the higer carb foods on the diet and I
must say, my energy is somewhat better and I have very recently gained l/2
lb.!!!!!
This has been very helpful, Ellen. Thanks again.
Prateeksha
------------------------------
Date: Fri, 22 Aug 1997 10:36:32 PST
From: ACB <benkea@MAILHOST.PAC.DFO.CA>
To: scdlist2 <SCD-list@longisland.com>
Subject: DHEA
Message-ID: <7132361022081997/A01899/VANHQ1/11B8B2A41C00*@MHS>
>Thanks for your encouragement. My husband does get the hotness and night
>sweats after he's gone off prednisone. I'm glad to hear it will be getting
>better.
>
>I heard the supplement DHEA helps the adrenal gland to function so I'm going
>to look into that.
I used DHEA to help me get off Pred too. It was prescribed to me by a
Naturopathic Physician in Kent, Washington who was known to have a lot of
expertise in treating IBD successfully. I think the key is to ensure you get a
pharmacy grade quality of the DHEA rather than the stuff off the health food
store or drugstore shelves. The quality is completely different. Another ND
told me how he prescribed it to someone and it helped them but then they
decided to get the cheaper off the shelf stuff and they got worse again. I
can't say for sure whether it helped me or not because I was on the diet at the
same time and I believe it was either the diet or a combination of the diet and
DHEA that helped me get off Pred for good. Before that, nothing I did would
allow me to get off it and my dose kept going higher and higher. All I can say
is it's worth a try. My advice is to first get the book by Ray Sahlian
(spelling may be wrong) called DHEA a practical user guide (or something to
that effect). Educate yourself on the subject. I found it in my local library.
It's a fairly new book and it is very well written, and easy to read. The
author interviews many other doctors who have used DHEA in their practice. It
explains what DHEA can and can't do, based on research studies, and scientific
facts. I highly recommend it.
Anna
------------------------------
Date: Fri, 22 Aug 97 11:58:54 MDT
From: "Daniel Woods" <dwoods@acs.ucalgary.ca>
To: SCD-list@longisland.com (SCD-diet mail list)
Subject: book review
Message-ID: <9708221758.AA58370@acs5.acs.ucalgary.ca>
Hi Prateeksha,
> "Prescription for Nutritional Healing" by James F. Balch, M.D.,
> and Phyllis A. Balch, C.N.C."...
This is a very good book and I recommend it to everyone.
> Siberian Ginseng
I have been using Korean Red Ginseng vitamins and I have found
these to give a energy boost.
Thanks... Dan.
***************************************************************
* Dan Woods The University of Calgary *
* dwoods@acs.ucalgary.ca Calgary, AB, CANADA, T2N 1N4 *
***************************************************************
------------------------------
Date: Fri, 22 Aug 1997 11:02:02 PST
From: ACB <benkea@MAILHOST.PAC.DFO.CA>
To: scdlist2 <SCD-list@longisland.com>
Subject: Re: DHEA
Message-ID: <1502021122081997/A02059/VANHQ1/11B8B2C20100*@MHS>
Please note, in my previous message when I said: "I highly recommend
it." I
meant the BOOK to educate yourself, not necessarily the DHEA.
Anna
------------------------------
Date: Fri, 22 Aug 1997 13:14:43 -0500
From: Maureen Stohlmeyer <mstohlme@iastate.edu>
To: SCD-list@longisland.com
Subject: Supplements
Message-ID: <v03102808b023875e9667@[129.186.242.88]>
Does anyone on the SCD have a particular brand of vitamin supplement they
like?
--------------------------
Maureen Stohlmeyer
Iowa State University
College of Agriculture
137 Curtiss Hall
Ames, IA 50011
515-294-4763
515-294-5334 FAX
--------------------------
------------------------------
Date: Fri, 22 Aug 1997 11:08:09 PST
From: ACB <benkea@MAILHOST.PAC.DFO.CA>
To: scdlist2 <SCD-list@longisland.com>
Subject: Re: the SCD diet and frequency of elimination
Message-ID: <4709081122081997/A02093/VANHQ1/11B8B2C80800*@MHS>
>how soon (if ever) does the frequency of eilimination diminish (once one
>starts the SCD diet.)
Ted, it's different for everyone, but you should expect some improvement in the
first month of the diet. Stay away from anything laxative until diarrhea
subsides. This means avoid raw fruits and vegies, cooked fruits, nuts and
seeds. When the diarreah calms down you can gradually introduce these things
one at a time, starting with stewed fruits. If the diarrhea comes back, you
have to wait longer before trying them again.
>do bowel movements get normal at some future time after starting
>the SCD diet ?
I remember when I was so sick for so long, I could hardly remember what a
formed bowel movement was like. I remember thinking to myself "will I ever
have a normal bm again?". It was hard to imagine that I would, after having
diarreah or loose stool continuously for over a year. The fact is, the diet
slowly got rid of the diarreah and eventually I was down to one formed bm per
day, just as if I never had a disease at all. I never thought I'd see that
day, but it came. So keep the faith. There is definately hope.
Anna
------------------------------
Date: Fri, 22 Aug 97 13:17:36 MDT
From: "Daniel Woods" <dwoods@acs.ucalgary.ca>
To: SCD-list@longisland.com (SCD-diet mail list)
Subject: Re: More questions; and some new information
Message-ID: <9708221917.AA83968@acs5.acs.ucalgary.ca>
Hi Tom,
> Since starting the diet, I've gained over 30 much needed pounds
> and am now holding at a reasonable weight.
I certainly hope to gain this much while on the SCD ;)
> Unfortunately, my Crohn's hasn't improved much so I am
> contemplating surgery.
Surgery is definitely an individual decision to make. Not one
to be taken litely. If you have gained weight on the diet, what
is so bad now with CD that you think you need surgery to help
alleviate (not cure) your symptoms ?
I have had two surgeries (Mar/86, Nov/95) and in both cases I felt
I had no other choice. I had a perforated ulcer in '86, and
my wife was 5 months pregnant in '95. In '95 I knew my wife
would need me in good health to help with the baby, so I could
not afford to wait a few more months.
Beware what the doctors, or tests, say however before deciding
on surgery. My upper barium test before my last operation only
showed one area of constriction. What they found during the
operation were *four* sections that "needed" to be removed. They
had to call in another surgeon to deal with the bowels being linked
together, which had to be separated. So nothing is easy...
I only found the SCD diet book one month before my last operation.
I tried it but found it was too late as things were too bad at
that time. I was not on the internet to find any support groups.
After the operation, diet was the last thing on my mind. I had
even bought 25 lbs of almond flour, fully prepared to go back
on the diet after the operation. It has been frozen the whole
time, and I am using it now. I re-started the diet in June/97
after having lost 10 more pounds and my GI "suggesting" that I
should be put on nightly tube-feedings. No thanks, I'd rather
have slow steady gain via the SCD diet. I've had the maximum
lower bowel removed from my body already.
This support group helps a lot. If my story helps anyone,
this makes me feel like I have accomplished something positive
being forced to deal with CD.
Sorry for the length...
Thanks... Dan.
***************************************************************
* Dan Woods The University of Calgary *
* dwoods@acs.ucalgary.ca Calgary, AB, CANADA, T2N 1N4 *
***************************************************************
------------------------------
Date: Fri, 22 Aug 97 13:22:03 MDT
From: "Daniel Woods" <dwoods@acs.ucalgary.ca>
To: SCD-list@longisland.com (SCD-diet mail list)
Subject: osteoporosis and prednisone
Message-ID: <9708221922.AA109908@acs5.acs.ucalgary.ca>
Hi group,
Does anyone else on this list suffer with osteoporosis as a
result of prednisone use ?
Thanks to *trusting* doctors (how naive I was), I have been
told that I have the bones of an 80-year old. I am 33 now.
Thanks... Dan.
***************************************************************
* Dan Woods The University of Calgary *
* dwoods@acs.ucalgary.ca Calgary, AB, CANADA, T2N 1N4 *
***************************************************************
------------------------------
Date: Fri, 22 Aug 97 13:26:03 MDT
From: "Daniel Woods" <dwoods@acs.ucalgary.ca>
To: SCD-list@longisland.com (SCD-diet mail list)
Subject: die-off duration
Message-ID: <9708221926.AA71872@acs5.acs.ucalgary.ca>
Hi group,
Elaine comments that many people notice a relapse around 2-3
months into the diet, where I am now. What does this involve ?
Does it mean D. for unknown reasons (regardless of not
introducing new foods), more gas, bloating ?
I understand this is attributed to "die-off" of the bad yeast
and bacteria who no longer have sugar to feed on. How long
does it normally last ? Can anyone comment to me on this !
Thanks... Dan.
***************************************************************
* Dan Woods The University of Calgary *
* dwoods@acs.ucalgary.ca Calgary, AB, CANADA, T2N 1N4 *
***************************************************************
------------------------------
Date: Fri, 22 Aug 97 13:28:48 MDT
From: "Daniel Woods" <dwoods@acs.ucalgary.ca>
To: SCD-list@longisland.com (SCD-diet mail list)
Subject: peanut butter recipe not in book
Message-ID: <9708221928.AA84110@acs5.acs.ucalgary.ca>
Hi Anna,
You commented that your book does not add nut flour to the
peanut butter recipe. My book is the third revision (Sept/95)
of "Breaking the vicious cycle", and it does not have in there
either. It must have been changed in the fourth revision,
which I believe was May/96.
Thanks... Dan.
***************************************************************
* Dan Woods The University of Calgary *
* dwoods@acs.ucalgary.ca Calgary, AB, CANADA, T2N 1N4 *
***************************************************************
------------------------------
Date: Fri, 22 Aug 1997 15:58:26 -0700
From: "Elaine & Margo" <hedgehogs4@enter.net>
To: <SCD-list@longisland.com>
Subject: Re: More questions; and some new information
Message-ID: <199708221955.PAA28234@mail.enter.net>
how do i get off this mailing list?
----------
> From: Tom Cattrall <tomc@pnn.com>
> To: SCD-list@longisland.com
> Subject: Re: More questions; and some new information
> Date: Thursday, August 21, 1997 5:54 AM
>
> --------------------------------------------------------------------
> SCD MAILING LIST
> -------------------------------------------------------------------
> On Thu, 21 Aug 1997 20:08:14 -0500, Rachel Turet wrote:
>
> >--------------------------------------------------------------------
> >SCD MAILING LIST
> >-------------------------------------------------------------------
> >Dear Tom,
> >I'm sorry to hear that your crohn's isn't much improved. I guess that if
> >there's anything positive to be gleaned from your letter, at least the
scd
> >has increased your weight, hopefully making you stronger, if indeed
surgery
> >becomes the only option. How long have you been on the diet and what has
> >your experience been with it?
> >Rachel
> >
>
> I've been on the diet over 18 months. Before I heard about the diet, I
had already
> discovered that eliminating sugar and sweets from my diet pretty much
controlled
> the diarrhea. But my main problem now is pain and a tendency towards
obstructions
> in the area of my terminal Ileum which is very narrow for 6 to 12 inches
of length. I've
> had 3 stays in the hospital for obstructions in the last 3 years, 2 of
them since I started the
> diet.
>
> Elaine was surprised by my story and said that usually the pain was the
first thing to
> get better on the diet.
>
> Anyway, my last (and only) resection was 30 years ago this month. If I
can get another 30
> years from a surgery, I'd be happy. With what I know now, I'd like to
think I could stay
> healthy indefinitely. It's not like I am desparately ill or anything,
more like I'm just sick
> of being sick. Never really well enough to get on with life, but not so
sick that I'm spending
> all my life in bed or a hospital. I definitely feel better prepared for
surgery at my current
> weight of 160 rather than under 130. At 6' 1", I'm still on the slender
side but at least have
> some reserves.
>
> Tom
>
------------------------------
Date: Fri, 22 Aug 1997 16:00:35 -0700
From: "Elaine & Margo" <hedgehogs4@enter.net>
To: <SCD-list@longisland.com>
Subject: Re: Hot at night
Message-ID: <199708221957.PAA28484@mail.enter.net>
take me off this mail list|
----------
> From: STVESTONE@aol.com
> To: SCD-list@longisland.com
> Subject: Hot at night
> Date: Friday, August 22, 1997 7:34 AM
>
> --------------------------------------------------------------------
> SCD MAILING LIST
> -------------------------------------------------------------------
> Hi there
>
> Thanks for your encouragement. My husband does get the hotness and night
> sweats after he's gone off prednisone. I'm glad to hear it will be
getting
> better.
>
> I heard the supplement DHEA helps the adrenal gland to function so I'm
going
> to look into that.
------------------------------
Date: Fri, 22 Aug 1997 16:03:06 -0500
From: Rachel Turet <rachel@longisland.com>
To: SCD-list@longisland.com
Subject: Re: the SCD diet and frequency of elimination
Message-ID: <l03010d00b023aee79ec1@[199.171.4.134]>
just as if I never had a disease at all. I never thought I'd see that
>day, but it came. So keep the faith. There is definately hope.
>Anna
Dear Anna,
Amen!
Rachel
------------------------------
Date: Fri, 22 Aug 1997 16:08:38 -0500
From: Rachel Turet <rachel@longisland.com>
To: SCD-list@longisland.com
Subject: Re: die-off duration
Message-ID: <l03010d01b023afb3ceae@[199.171.4.135]>
Dear Dan,
Not everyone relapses and those who do, do so to varying degrees. My own
experience in the first 6 months was occasional D and occasional urgency &
blood. Never to the degree that I had any of those things pre-SCD and for
the last 2 years I've been virtually symptom free.
Rachel
------------------------------
Date: Fri, 22 Aug 1997 16:22:45 -0400 (EDT)
From: B4FL@aol.com
To: SCD-list@longisland.com
Subject: Re: peanut butter recipe not in book
Message-ID: <970822162202_-1369698476@emout02.mail.aol.com>
Anna,
My book does not list nut flour as an ingredient for the peanut butter
cookies either. I have made them according to the book, without any nut
flour, and believe it or not, they turn out great. They are one of my son's
favorites along with the peanut butter balls and the new cookie recipe that
was sent out with the coconut in it.
Barb
------------------------------
Date: Fri, 22 Aug 1997 16:32:51 -0400
From: Benito Rey <brey@interlog.com>
To: SCD-list@longisland.com
Subject: Re: DHEA
Message-ID: <33FDF773.3B40@interlog.com>
ACB wrote:
>
> --------------------------------------------------------------------
> SCD MAILING LIST
> -------------------------------------------------------------------
> Please note, in my previous message when I said: "I highly recommend
it." I
> meant the BOOK to educate yourself, not necessarily the DHEA.
> Anna
Well regarding DHEA what I would say is that I highly DO NOT
recommend it !!!.
I am not a doctor, it's only my personal experience.
A good week end for everybody
Benito
--
------------------------------
Date: Fri, 22 Aug 1997 17:04:54 -0400 (EDT)
From: EllenAdams@aol.com
To: SCD-list@longisland.com
Subject: Re: More questions; and some new information
Message-ID: <970822170158_-1067291765@emout08.mail.aol.com>
In a message dated 97-08-22 13:00:29 EDT, you write:
<< my energy is somewhat better and I have very recently gained l/2
lb.!!!!! >>
I'm soooo glad!! That's wonderful news! I'm so pleased that the idea was
helpful to you.
Ellen
------------------------------
Date: Fri, 22 Aug 1997 17:08:55 -0400 (EDT)
From: EllenAdams@aol.com
To: SCD-list@longisland.com
Subject: Alternative Medicines
Message-ID: <970822170755_17227406@emout05.mail.aol.com>
Prateeksha,
I'm replying to your post soliciting people's experiences with various
alternative medicines. I think it's great that you are reading up and
seeking information but I hope that you're planning to only try one at a
time. The reason is because it'll be difficult to know what's helping or
hurting you if you try too many new things at once, and they could also
interact in some way.
I'm sure you've already thought of this but I figured I'm mention it anyway.
Ellen
------------------------------
Date: Fri, 22 Aug 1997 14:52:18 -0700
From: "Rosset" <plrosset@pacificrim.net>
To: "SCD-list" <SCD-list@longisland.com>
Subject: Natren yogurt starter
Message-ID: <199708222156.OAA00549@cascade.pacificrim.net>
Dear Yogurt Making People (the brigade),
I'm thinking of trying the Natren brand yogurt starter "old world
formula."
Has anyone tried it yet? Reading the instructions on the back of the jar,
they say do NOT boil the milk, bring to 180F and maintain that temperature
for 5 min. Does anyone know why they would say not to boil the milk? I
always heat it until it at least starts to boil, or overflows all over the
place (the second I turn my back).
Thanks,
Lucy
------------------------------
Date: Fri, 22 Aug 1997 14:45:20 -0700
From: "Rosset" <plrosset@pacificrim.net>
To: <SCD-list@longisland.com>
Subject: Re: die-off duration
Message-ID: <199708222156.OAA00544@cascade.pacificrim.net>
Dear Dan,
I wouldn't worry about a huge setback happening now that you are at the 2-3
month point. I believe I came down with a cold for a few days, after a
couple months. That is the only cold I've had since being on the diet
almost 4 years. Any setbacks I've had with bleeding, etc., have gone away
within a couple days without medication.
Hopefully you'll be gaining weight and feeling well soon.
Lucy
----------
> From: Daniel Woods <dwoods@acs.ucalgary.ca>
> To: SCD-diet mail list <SCD-list@longisland.com>
> Subject: die-off duration
> Date: Friday, August 22, 1997 12:26 PM
>
> --------------------------------------------------------------------
> SCD MAILING LIST
> -------------------------------------------------------------------
> Hi group,
>
> Elaine comments that many people notice a relapse around 2-3
> months into the diet, where I am now. What does this involve ?
> Does it mean D. for unknown reasons (regardless of not
> introducing new foods), more gas, bloating ?
>
> I understand this is attributed to "die-off" of the bad yeast
> and bacteria who no longer have sugar to feed on. How long
> does it normally last ? Can anyone comment to me on this !
>
> Thanks... Dan.
>
> ***************************************************************
> * Dan Woods The University of Calgary *
> * dwoods@acs.ucalgary.ca Calgary, AB, CANADA, T2N 1N4 *
> ***************************************************************
------------------------------
End of SCD-list V1 #16
**********************
SCD-list Sat, 23 Aug 1997 Volume 1 : Number 17
In this issue:
Re: Natren yogurt starter
salad dressing
Re: More questions; and some new information
Re: More questions; and some new information
Re: Siberian Ginseng/Bee Pollen/Royal Jelly
Re: Barley Grass
yogurt success
--------------------------------------------------------------------
SCD MAILING LIST
-------------------------------------------------------------------
----------------------------------------------------------------------
Date: Sat, 23 Aug 1997 07:26:45 -0500
From: "jcorless" <jcorless@dhc.net>
To: <SCD-list@longisland.com>
Subject: Re: Natren yogurt starter
Message-ID: <199708231409.JAA06409@dhc.net>
Lucy,
We bought some of the Natren brand starter "old world formula" this
summer
to take on vacation with us. I guess I didn't really read the instructions
and after reading your note I checked and it does state don't boil. This
is what I found works for me:
Bring the milk or 1/2 & 1/2 to boil
cool
mix 2 teaspoons of yogurt starter with 4 teaspoons of cool milk and stir
pour into the remaining milk
Works great and I have not had any trouble. Nice and thick if you use 1/2
& 1/2.
Jim
----------
> From: Rosset <plrosset@pacificrim.net>
> To: SCD-list <SCD-list@longisland.com>
> Subject: Natren yogurt starter
> Date: Friday, August 22, 1997 4:52 PM
>
> --------------------------------------------------------------------
> SCD MAILING LIST
> -------------------------------------------------------------------
> Dear Yogurt Making People (the brigade),
> I'm thinking of trying the Natren brand yogurt starter "old world
formula."
> Has anyone tried it yet? Reading the instructions on the back of the jar,
> they say do NOT boil the milk, bring to 180F and maintain that
temperature
> for 5 min. Does anyone know why they would say not to boil the milk? I
> always heat it until it at least starts to boil, or overflows all over
the
> place (the second I turn my back).
> Thanks,
> Lucy
>
>
>
------------------------------
Date: Sat, 23 Aug 1997 11:07:57 -0700 (PDT)
From: Tom Robinson <tomr@vader.inow.com>
To: SCD-list@longisland.com (scd-li)
Subject: salad dressing
Message-ID: <199708231807.LAA19546@vader.inow.com>
For those of you that like honey-mustard salad dressing, I've found
that my wife and I really like about 2 tablespoons of mustard and
1 tablespoon of honey (more or less to taste) mixed with 1/2 cup of
yoghurt.
Tom
--
----------------------------------------------------------------
Tom Robinson <tomr@inow.com>
----------------------------------------------------------------
------------------------------
Date: Sat, 23 Aug 1997 11:57:06 -0700 (MST)
From: Sheila Shea <ratany@azstarnet.com>
To: SCD-list@longisland.com
Subject: Re: More questions; and some new information
Message-ID: <v03007809b0247fc8d7a6@[169.197.36.184]>
>Also, what bout wheat grass?
Wheat grass is very healing for the liver and for open wounds, sores, and
ulcerations among other things. Ann Wigmore has written a book by that
title and is available in most health food stores.
One drinks the juice of the grass which is a simple sugar. The grain or
seed of the wheat is to be avoided on the diet.
I feel it would be ideal for the SCD and one begins to take it in small
amounts ie 1 or 1/2 oz at a time.
>
>Anyone know about ginseng? Isn't it supposed to be strengthening? I get
>so weak on this diet that I am looking for ways to supplement it that are
>complimentary and will improve my strength and decrease weakness.
Ginseng is very strengthening and is for the mental center too. I would
suggest calling GAIA herbs in Boston and asking about their excellent
tinctures some of which are to energize the system. I read over their whole
catalogue yesterday because I am looking for clean products for intestinal
health. 1800-831-7780
Yerba Mate is a strengtener and does contain some caffeine.
Kind Regards,
Sheila Shea
Tucson AZ------------------
Always interested in Intestinal Health and Colon Hydrotherapy issues.
http://www.sheilas.com
Listserv on Intestinal Health now available.
Go to: http://listserv.azstarnet.com/cgi-bin/lwgate/INTEST_HEALTH/
to subscribe or unsubscribe
------------------------------
Date: Sat, 23 Aug 1997 12:19:12 -0700 (MST)
From: Sheila Shea <ratany@azstarnet.com>
To: SCD-list@longisland.com
Subject: Re: More questions; and some new information
Message-ID: <v0300780bb02485ea4881@[169.197.36.184]>
>I don't think algea and seaweed are related. Algea forms on fresh water
>ponds (and fresh water acquariums like mine!) Seaweed grows in the ocean and
>is a plant. They seem very different to me, but perhaps someone can address
>this with greater specificity.
I believe marine and fresh water algaes are related. The marine algae are
the seaweeds from the oceans or salt water. The fresh water algaes are from
lakes or hydroponics and are called spirulina, chlorela, blue-green. I
don't know their carb makeup ie simple vs complex sugars however I feel
they are very healthy for the intestinal walls. I have taken marine algae
for over 10 years.
The Wachter's Organic Sea Products Co. out of San Francisco, 65 years in
business, has the best quality marine algae and now I notice they are
putting rice bran, oat bran, FOS, and cereal solids in some of their
products. I don't buy those anymore.
Kind Regards,
Sheila Shea
Tucson AZ------------------
Always interested in Intestinal Health and Colon Hydrotherapy issues.
http://www.sheilas.com
Listserv on Intestinal Health now available.
Go to: http://listserv.azstarnet.com/cgi-bin/lwgate/INTEST_HEALTH/
to subscribe or unsubscribe
------------------------------
Date: Sat, 23 Aug 1997 12:27:17 -0700 (MST)
From: Sheila Shea <ratany@azstarnet.com>
To: SCD-list@longisland.com
Subject: Re: Siberian Ginseng/Bee Pollen/Royal Jelly
Message-ID: <v0300780cb02487068b6d@[169.197.36.184]>
>Bee Pollen - Also contains "Simple Sugars"
Bee pollen is considered a protein and good for immune disorders,
infections, energy, and a very efficient source of protein.
>
>Royal Jelly - "From Montana Pollen"???
Royal jelly is most likely similar to raw honey in compostion and gives
extraordinary energy. it is the food of the queen bee! Small amounts go a
long way and it is expensive.
cayenne
is considered good for healing wounds, sores, and ulcerations however if
one is internally inflammed and takes it they feel a burn. It's fighting
fire with fire. I think comfrey leaf tea or cold infusion of the root and
marshmallow are better for inflammation. Cayenne is a stimulant but you
have to deal with the 'fire.'
ginkgo biloba extract
Claims to get more oxygen to the brain and help memory. is usually blended
in formulas with astragulus, ginseng, gotu kola, etc to tonify the body and
give energy. See Gaia
gotu kola
It' a green leaf and over time imparts great endurance.
guarana
I used g for a long time. It's a big stimulant, lots of caffeine, but it
got me up and running after a long bout with staph infection where I was so
weakened. However, it is from a pod and looks like a starch. I mixed it
with raw honey and ate a few tsp at a time.
Kind Regards,
Sheila Shea
Tucson AZ------------------
Always interested in Intestinal Health and Colon Hydrotherapy issues.
http://www.sheilas.com
Listserv on Intestinal Health now available.
Go to: http://listserv.azstarnet.com/cgi-bin/lwgate/INTEST_HEALTH/
to subscribe or unsubscribe
------------------------------
Date: Sat, 23 Aug 1997 12:31:35 -0700 (MST)
From: Sheila Shea <ratany@azstarnet.com>
To: SCD-list@longisland.com
Subject: Re: Barley Grass
Message-ID: <v0300780db02488e8fc96@[169.197.36.184]>
>At the risk of sounding even more stupid than I already have, with all my
>questions, here's another one on Barley Grass. Is it derived from Barley?
>If so, this is a grain and forbidden. So, what is barley grass?
>
>Thanks, Prateeksha.
Same as wheat grass. The grass is the simple sugar and the most healing
part of the plant. Barley grass is grown from the seed until the grass is
6-7" high and then cut for juicing. No grain.
One source of barley grass is from the link below. Make sure it is free of
brown rice and is totally pure.
http://hacres.com
Kind Regards,
Sheila Shea
Tucson AZ------------------
Always interested in Intestinal Health and Colon Hydrotherapy issues.
http://www.sheilas.com
Listserv on Intestinal Health now available.
Go to: http://listserv.azstarnet.com/cgi-bin/lwgate/INTEST_HEALTH/
to subscribe or unsubscribe
------------------------------
Date: Sat, 23 Aug 1997 14:52:32 -0500
From: jhubbard@ghg.net (Joe Hubbard)
To: 'SCDList' <SCD-list@longisland.com>
Subject: yogurt success
Message-ID: <01BCAFD4.44B26200@max7-36.ghg.net>
Hello!
Well, my attempt to make yogurt with 1/2 and 1/2 instead of milk was a =
success. It came out very thick and absolutely delicious. It is almost =
like putting whipped cream on my strawberries! =20
Now if I could just find some UN-sweetened coconut I could make some =
cookies. As for vanilla...I buy clear, imitation vanilla extract. It =
does not list sugar as an ingredient, but it does say it contains "other =
artificial flavorings". I hope that is not a code word for something =
nasty.
Carla
------------------------------
End of SCD-list V1 #17
**********************
SCD-list Sun, 24 Aug 1997 Volume 1 : Number 18
In this issue:
Yogourmet--Dishwasher Safe??
--------------------------------------------------------------------
SCD MAILING LIST
-------------------------------------------------------------------
----------------------------------------------------------------------
Date: Sat, 23 Aug 1997 21:26:10 -0400 (EDT)
From: EllenAdams@aol.com
To: SCD-list@longisland.com
Subject: Yogourmet--Dishwasher Safe??
Message-ID: <970823212609_-1570183871@emout01.mail.aol.com>
I bought the yogourmet yogurt maker (and an extra container). I'm not sure
whether the container can be washed in the dishwasher. Has anyone tried
that? Did it warp?
Ellen
------------------------------
Date: Wed, 20 Aug 1997 17:44:07 -0400
From: "Geoff Stewardson" <gsteward@foxnet.net>
To: <SCD-list@longisland.com>
Subject:
Message-ID: <19970820174024.0ff8f5a8.in@mail.baynet.net>
This is a multi-part message in MIME format.
------=_NextPart_000_0000_01BCAD90.A8E7F140
Content-Type: text/plain;
charset="iso-8859-1"
Content-Transfer-Encoding: quoted-printable
Could someone please tell me how to unsuscribe from the group. I know =
you are all tired of doing it but I can't find it anywhere in the over =
nine-hundred "unread" messages that I have received from you guys.
_______________________
Geoff Stewardson
gsteward@foxnet.net
Thunder Bay, Ontario
------=_NextPart_000_0000_01BCAD90.A8E7F140
Content-Type: text/html;
charset="iso-8859-1"
Content-Transfer-Encoding: quoted-printable
<!DOCTYPE HTML PUBLIC "-//W3C//DTD W3 HTML//EN">
<HTML>
<HEAD>
<META content=3Dtext/html;charset=3Diso-8859-1 =
http-equiv=3DContent-Type>
<META content=3D'"MSHTML 4.71.1008.3"' name=3DGENERATOR>
</HEAD>
<BODY bgColor=3D#ffffff>
<P><FONT color=3D#000000 face=3DArial size=3D2>Could someone please
tell =
me how to=20
unsuscribe from the group. I know you are all tired of doing it =
but I=20
can't find it anywhere in the over nine-hundred Úquot;unreadÚquot;
=
messages that=20
I have received from you guys.</FONT></P>
<P><FONT color=3D#000000 face=3DArial=20
size=3D2><BR><BR><BR>_______________________<BR><BR>Geoff
=
Stewardson<BR><A=20
href=3D"mailto:gsteward@foxnet.net">gsteward@foxnet.net</A><BR>Thunder
=
Bay,=20
Ontario</FONT> </P></BODY></HTML>
------=_NextPart_000_0000_01BCAD90.A8E7F140--
------------------------------
End of SCD-list V1 #18
**********************
SCD-list Mon, 25 Aug 1997 Volume 1 : Number 19
In this issue:
scd diet for non-sufferer
Re: scd diet for non-sufferer
Question about SCD
Re: Question about SCD
2 Discussion Groups
acidophilus question
pectin question
Re: Barley Grass
Re: Yerba Mate as a strengthener
Re: Yogourmet--Dishwasher Safe??
Rejected by Custodian
--------------------------------------------------------------------
SCD MAILING LIST
-------------------------------------------------------------------
----------------------------------------------------------------------
Date: Sun, 24 Aug 1997 19:27:22 -0500
From: rdodge@mail.utexas.edu (richard dodge)
To: SCD-list@longisland.com
Subject: scd diet for non-sufferer
Message-ID: <v01540b01b0267938185b@[128.83.249.99]>
Hello everybody: I've tried the diet for 2 1/2 months so far, although
it's not me but my adult son who is suffering from CD--if the dx is
correct. He's in a good period and not wanting to try the diet (taking
low-dose Asacol).
I've tried many recipes and think I'm getting the hang of it. For me the
eating isn't bad--I'm breaking some food vices by throwing myself into
this; the food prep has been tricky but doable--I've been a little sloppy,
but not much, or otherwise it wouldn't be a fair test; the social dimension
has sometimes been trying. e.g. I went to a "fixed price" restaurant
with
some people and asked to just try the pasta sauce (one of several courses)
without the pasta and was told off by the owner/chef; when one of my
friends tried to intercede it got worse. Luckily I kept my cool, but it
gave me some first-hand experience with a situation someone in this group
had warned about.
I'm not quitting yet, but have discovered I had to make some modifications
because the diet exacerbated a problem with constipation and hemorrhoids.
I'm writing to tell you all thanks for letting me join you. My whole sense
of how to be realistic and helpful to my son has hopefully improved since I
started conversations with people on the IBD list and scd list. And you
guys have been significantly nicer to me, which counts for a lot! My
experience is that it's a very big shock to the family when someone's dxed
with IBD, as well as to the sufferer. From my own point of view only, I
will say that it changed me considerably. I've discovered once again that
life is a marathon and not a sprint; qualities of kindness and courage from
others have been incredibly sustaining, and this group in particular makes
me grateful for the help. You've been like those folks handing out little
cups of gatorade along the wayside of major races.
I wanted to check in and tell you I appreciate you because Sept. 1 I'm
going into a disciplined work schedule (I work at home so this is all
self-generated and monitored) and may decide I have to withdraw for awhile
from subscribing to this list.
I unsubscribed to the Maelstrom address and got a message saying farewell,
sorry you're leaving. I'd been gone for two weeks and when I came back I
just assumed the mailbox had changed, but when I got the message asking why
I was leaving I got confused. What's the scoop? Do we have a schism or
what?
KD in Texas
------------------------------
Date: Sun, 24 Aug 1997 22:10:36 -0500
From: Rachel Turet <rachel@longisland.com>
To: SCD-list@longisland.com
Subject: Re: scd diet for non-sufferer
Message-ID: <l03010d00b026a71652c7@[199.171.4.122]>
Dear KD,
So glad you've found help and support here. Hope your sons health continues
to improve. If you do need to unsubscribe for a while, please resubscribe
when you are able. I'm a little confused by your following message. I don't
know anything about it.subscribing and unsubscring is done directly through
the listserver at longisland.com. As far as I know you're still on until
you decide differently.
Rachel
>I unsubscribed to the Maelstrom address and got a message saying farewell,
>sorry you're leaving. I'd been gone for two weeks and when I came back I
>just assumed the mailbox had changed, but when I got the message asking why
>I was leaving I got confused. What's the scoop? Do we have a schism or
>what?
>
>KD in Texas
------------------------------
Date: Sun, 24 Aug 1997 21:40:45 -0600
From: "Todd Learn" <toddl@telusplanet.net>
To: <SCD-list@longisland.com>
Subject: Question about SCD
Message-ID: <97Aug24.213444-0600_mdt.280793-1468+322@mail.telusplanet.net>
A little history about my disease. About 7 years ago I went to the Dr.
with a large perianal abcess(though I did not that was what it was then).
Following having it drained I was diagnosed with Crohn's in the large
intestine and rectal area. I was told it was quite mild and was put on
Asacol. I was symptom free for six years and the perianal fistula I had
from the abcess closed up. But about 8 months ago I had a major rectal
bleed and was in the hopital for 10 days was put on a tapering dose of
prednisone, asacol, and flagyl(antibiotic). After tapering off the pred I
have felt generally quite well (occasional diarhea and abdominal pain) the
doctor put me on Imuran in hopes of healing up the several perianal
fistulas I now have that continually drain pus and are quite messy.( I have
to put a dressing on them after every BM) THE QUESTION I HAVE IS: HAS
ANYONE OUT THERE WITH SIMILAR CROHN'S WITH PERIANAL INVOLVEMENT HAD ANY
LUCK USING THE SCD?
Have a great day! :-)
Todd Learn
125 Crawford Street
Alberta Canada
T4P 2G4
(403) 346-4355
(403) 318-2353
E-mail: toddl@telusplanet.net
Todd's Climbing Home Page: http://wwwtelusplanet.net/public/toddl
"The human mind, once stretched to a new idea,
never goes back to its original dimensions."
-- Oliver Wendell Holmes
------------------------------
Date: Sun, 24 Aug 1997 22:45:40 -0700 (PDT)
From: Tom Robinson <tomr@vader.inow.com>
To: SCD-list@longisland.com
Subject: Re: Question about SCD
Message-ID: <199708250545.WAA00628@vader.inow.com>
Todd,
Most of my Crohn's is perianal. It has been relatively mild, but was
getting worse. I was diagnosed last fall, and went on the SCD three
months later. My inflammed skin cleared up within a day or two. I sure
wish it had stayed cleared up. But the gas problem I was having did
go away. I have minor gas from time to time, but nothing like I was
having then. So the SCD definitely has helped. I'm trying to figure out
if tweaking the diet, such as abstaining from cheese, etc. would
help even more. So far I haven't been able to tell, but then I haven't
given up dairy for more than a few days at a time yet, either.
Good luck, whatever you decide to do.
Tom
>
> --------------------------------------------------------------------
> SCD MAILING LIST
> -------------------------------------------------------------------
> to put a dressing on them after every BM) THE QUESTION I HAVE IS: HAS
> ANYONE OUT THERE WITH SIMILAR CROHN'S WITH PERIANAL INVOLVEMENT HAD ANY
> LUCK USING THE SCD?
> Have a great day! :-)
>
> Todd Learn
> 125 Crawford Street
> Alberta Canada
> T4P 2G4
> (403) 346-4355
> (403) 318-2353
> E-mail: toddl@telusplanet.net
> Todd's Climbing Home Page: http://wwwtelusplanet.net/public/toddl
>
> "The human mind, once stretched to a new idea,
> never goes back to its original dimensions."
> -- Oliver Wendell Holmes
>
--
----------------------------------------------------------------
Tom Robinson <tomr@inow.com>
----------------------------------------------------------------
------------------------------
Date: Mon, 25 Aug 1997 01:05:34 -0500
From: rdodge@mail.utexas.edu (richard dodge)
To: SCD-list@longisland.com
Subject: 2 Discussion Groups
Message-ID: <v01540b03b026cf762e03@[128.83.219.93]>
Rachel and everybody: I unsubscribed to old list @ Listserve
@Maelstrom.StJohns.edu which I had in digest form and left the one coming
in bit by bit because I thought they were the same. Whatever, I'll keep
listening in for another week and then unsubscribe until I neeeeeed y'all
AGAIN--which I guess is human nature. I get kinda obsessing about how
everybody's doing (like the old woman who lived in the shoe) while not
being in any sort of position to make much of a contribution.
KD in Texas
------------------------------
Date: Mon, 25 Aug 97 08:05:25 -0500
From: Renee Zobkiw <rz@triplesoft.com>
To: <SCD-list@longisland.com>
Subject: acidophilus question
Message-ID: <1339625686-23425648@mailhost.triplesoft.com>
Hi everybody,
I found some acidophilus pills which have "citrus pectin" as an =
ingredient. I know in Elaine's book (on pg. 58) she says "Do not use =
pectin in making jellies..."
Does anyone know if this "citrus pectin" and the pectin Elaine refers =
to are the same thing?
---------
If you're interested, below is the acidophilus pill excerpt which =
explains a bit about why they use citrus pectin...(from this web =
site: http://www.solgar.com/home.html)
Natural citrus pectin cellulose is added as a source of soluble =
dietary fiber to promote the
growth of these beneficial bacteria. Solgar's 40+ Acidophilus =
Vegicaps=AE supply a synergistic
blend of the four beneficial microorganisms L. acidophilus, L. =
bulgaricus B. bifidum and B.
longum, helping to restore and maintain a normal flora in the =
intestinal tract. L. acidophilus and L. bulgaricus reside in the =
small intestine while B. bifidum and B. longum primarily reside in =
the small intestine while B. bifidum and B. longum primarily reside =
in the large intestine. Our specially designed formula is milk and =
dairy free and contains citrus pectin, a soluble dietary fiber.
<renee>
------------------------------
Date: Mon, 25 Aug 1997 10:06:13 -0500
From: "Eric Abergel" <eaberg@PO-Box.McGill.CA>
To: SCD-list@longisland.com
Subject: pectin question
Message-ID: <199708251603.MAA12661@chinook.CC.McGill.CA>
Does anyone know why pectin is not allowed on the scd although it is
found to exist naturally in fruits (citrus, apples, etc.)?
Pectin is a polysaccharide but I don't know whether or not it is
digestible (like a starch) or undigestible (like fiber).
Thanks!!
Eric
@@@@@@@@@@@@@@@@@@@@@@@@@@@@@
Eric & Liz
<<<eaberg@po-box.mcgill.ca>>>
"Be true to your teeth... or they will be false to you"
@@@@@@@@@@@@@@@@@@@@@@@@@@@@@
------------------------------
Date: Mon, 25 Aug 1997 10:20:05 -0700
From: prateeksha@infoasis.com (Prateeksha Bogardus)
To: SCD-list@longisland.com
Subject: Re: Barley Grass
Message-ID: <v01550100b0230619c609@[206.40.74.40]>
To Lois (Los Angeles)
Thanks for the info on Barley Grass. Think I'll try it. I'll let you know
how (if) it increases my energy.
Prateeksha.
------------------------------
Date: Mon, 25 Aug 1997 10:20:16 -0700
From: prateeksha@infoasis.com (Prateeksha Bogardus)
To: SCD-list@longisland.com
Subject: Re: Yerba Mate as a strengthener
Message-ID: <v01550101b02701c1cffe@[206.40.74.34]>
>--------------------------------------------------------------------
>SCD MAILING LIST
>-------------------------------------------------------------------
Hi Sheila,
thanks for your response re wheat grass and ginseng and yerba mate. You
mention that yerba mate does contain some caffein. In the material I have
read, this is erroneous. It contains mateine, which has none of the ill
effects of caffeine.
Regards, Prateeksha
------------------------------
Date: Mon, 25 Aug 1997 10:28:43 PST
From: ACB <benkea@MAILHOST.PAC.DFO.CA>
To: scdlist2 <SCD-list@longisland.com>
Subject: Re: Yogourmet--Dishwasher Safe??
Message-ID: <5743281025081997/A02111/VANHQ1/11B8CA9C2A00*@MHS>
>I bought the yogourmet yogurt maker (and an extra container).
Ellen,
Is it electric, or the thermous type? Sorry, I don't know about the dishwasher
safe aspect. I just wanted to make sure it's electric because we can't use the
thermous type.
Anna
------------------------------
Date: 12 Aug 1997 17:23:14 U
From: "UNIX_GATE" <unix_gate@centerline.com>
To: stellar1@pacbell.net
Cc: SCD-List@longisland.com
Subject: Rejected by Custodian
Message-ID: <9708251714.AA04060@centerline.com>
Mail*Link(r) SMTP RE>Becoming a member of the
--------------------------------------------------------------------
SCD MAILING LIST
-------------------------------------------------------------------
Well, here I am again! So, here are some questions for those of you
who
have been on the diet awhile:
Progesterone - mine has lactose in it; so talked to pharmacy and they
could
only substitute sucrose. My gyn has suggested I go off the natural
progesterone which is made of wild yam (carb or starch?) for 3 months
and
see what happens with the diet (been on 2 mos.). Has anyone had any
experience with this?
Side effects of either irritable bowel syndrome or ulcerative colitis
- two
doctors have given different diagnosis! Vertigo; whelps - dime size,
intermittently appear on different parts of body...bright pink and
stay
anywhere from 1 week to 4 or 5. Itch. Not impetigo, (no cats).
Raw food intolerance - after 2 mos. on the diet, still cannot
tolerate raw
fruits or veggies. Wondering about veggie juice? Like carrot, mixed
veggies. Seems like that would be a great way to get my veggies, as
a
snack, etc. but would the raw juice have the same effect as raw
veggies?
Fruit? I find my body is still too sensitive for oj, apple juice;
but
grape juice is okay and tomato juice (canned).
Food intolerance - Finding I am still quite limited in vegetables I
can
tolerate. I get diarrhea with eggplant; cramping with green beans,
peas,
asparagus. Cannot combine protein with fruits; have to eat fruits
alone
and even then, get gas and sometimes cramping. Does this change?
There has been some improvement and I have been fanatical about
sticking to
the SCD diet; but I had hoped after I read the book, that things
would
improve a little faster than they have.
Fatigue - Find I have to eat more often than 3x a day as I now have
no
energy reserves since being on the diet! Anyone else have this? I
used to
be able to go to the gym and have a mild workout, but since being on
the
diet, have not been once -- have to conserve my energy for work,
cooking
this diet, etc.
Exercise - what do people are on the diet do?
Weight Loss - I have lost about 10 pounds since being on the diet (2
mos)
and my doctor says "no more weight loss!" Down to 112 and 5'3" and
this is
maybe a part of my fatigue. Maybe my body is still adjusting to
change in
diet, no exercise, etc. Has anyone else lost quite a bit of weight
with
this diet?
I have had to start eating fish and chicken...my body is craving it,
after
25 years of being a vegetarian!
Guess that's enough for now...HELP!!!!!!!
Prateeksha
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To: stellar1@pacbell.net
From: prateeksha@infoasis.com (Prateeksha Bogardus)
Subject: Re: Becoming a member of the new SCD List
Cc: SCD-List@longisland.com
Date: Tue, 12 Aug 1997 14:19:22 -0700
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------------------------------
End of SCD-list V1 #19
**********************
SCD-list Tue, 26 Aug 1997 Volume 1 : Number 20
In this issue:
Re: the SCD diet and ASACOL (how to taper off ?)
Re: acidophilus question
night sweats
Re: the SCD diet and ASACOL (how to taper off ?)
Re: the SCD diet and ASACOL (how to taper off ?)
Re:Dutch Valley Foods, Myerstown, Pa. - Pecan Flour
Medication while on the SCD
--------------------------------------------------------------------
SCD MAILING LIST
-------------------------------------------------------------------
----------------------------------------------------------------------
Date: Mon, 25 Aug 97 20:19:11 CDT
From: ted.kyle@vantis.com (Ted Kyle)
To: SCD-list@longisland.com
Subject: Re: the SCD diet and ASACOL (how to taper off ?)
Message-ID: <9708260119.AA04455@swansong.amd.com>
hi,
i assume that when you follow the SCD diet one must taper off the
ASACOL, and that it is done without the help/advice of a doctor.
my son is on 12 tablets asacol a day and once a day ROWASA enema, and
he is slowly improving. the doctor says later he must go on a maintenance
dose of asacol, forever, at the time i didn't know about this
diet so i didn't ask him about things like, how do you know if you take
too much asacol and what are the indications of such, i figured the doctor
would take care of him, and i was busy absorbing the bad news of him
having UC, it's only been since the 11th of august since we have known
about his disease but it seems like a lot longer.
my question is, what have others done, to taper
off the asacol, and how do you know when to do so?
i really appreciate the information that i have received from the people who
respond on this list, i want to thank all of you who have answered my questions.
ted
------------------------------
Date: Mon, 25 Aug 1997 20:38:36 -0700
From: Dempsey <stellar1@pacbell.net>
To: SCD-list@longisland.com
Subject: Re: acidophilus question
Message-ID: <34024FBC.6980@pacbell.net>
Renee,
I would play it safe and assume that pectin is pectin. I wish I could
answer the "why's" about that but I don't know. Sorry. It is easy
enough to find an acidopholus source without pectin. I take Nature's
Plus "Tri-Dopholus." I got it at the health food store. But Elaine
apparently recommends a brand as well.
Good luck.
Denise
------------------------------
Date: 25 Aug 97 23:58:59 EDT
From: "Mazer, C. & Blank, J." <103120.612@CompuServe.COM>
To: new SCD <SCD-list@longisland.com>
Subject: night sweats
Message-ID: <970826035859_103120.612_JHG43-1@CompuServe.COM>
As an acupuncturist working in public health, I treat people with night sweats
quite frequently. I see a lot of people withdrawing from alcohol and other
drugs; night sweats is a common symptom of this. Also people who are
HIV-positive often experience night sweats. The phenomenon is not at all
limited to these groups, however.
This kind of heat at night is a sign of what is called in Chinese medicine
"yin
deficiency," and is usually pretty easy to treat, either with acupuncture
alone, or in combination with Chinese herbs. (However, until I find out more
about the types of starch in various Chinese herbs, I'd probably tell SCDers to
stick to acupuncture). I would "guess-timate" we get a success rate of
90%.
So, check out your local acupuncturist!
John Blank
------------------------------
Date: Tue, 26 Aug 1997 09:17:24 -0500
From: Rachel Turet <rachel@longisland.com>
To: SCD-list@longisland.com
Subject: Re: the SCD diet and ASACOL (how to taper off ?)
Message-ID: <l03010d00b0289324b533@[199.171.4.122]>
Dear Ted,
I can imagine that you are still reeling from the diagnosis of your son's
illness. I didn't do well with Rowasa, couldn't keep it in long enough for
it to do any good. It's a little early to talk about discontinuing meds but
this was what I did. After I'd been on the diet for 6 months for my UC, it
was obvious that all my symptoms had vanished. A year after I'd been
totally sympton free, I tapered off my meds (azulphadine) one at a time.
This was done without my doctor's knowledge. I figured if I got sick again
I'd just go back on. It is now a year since I've been off meds and I feel
great. I would never advise anyone to go off medication. This is a decision
one would have to make on their own. I've been lucky. In any case, I think
its way to early for you to be thinking about when you have to make this
step, but I hope the day will come for your son very soon when he can be
free of both the medication and the disease.
Rachel
------------------------------
Date: Tue, 26 Aug 1997 10:13:19 -0400
From: "witkowski" <witkowskis@worldnet.att.net>
To: <SCD-list@longisland.com>
Subject: Re: the SCD diet and ASACOL (how to taper off ?)
Message-ID: <19970826141703.AAA29054@a-zcusto>
----------
> From: Rachel Turet <rachel@longisland.com>
> To: SCD-list@longisland.com
> Subject: Re: the SCD diet and ASACOL (how to taper off ?)
> Date: Tuesday, August 26, 1997 10:17 AM
>
> --------------------------------------------------------------------
> SCD MAILING LIST
> -------------------------------------------------------------------
> Dear Ted,
Asacol is not like pred. There is no danger to your body. I take it on an
As per needed basis with my doctor's blessing. So taper down to 8 as you
see improvement then 6 then 4 etc..... you can always go back up if you
need to. Good luck !!!!!
Take Care,
Kay
------------------------------
Date: Tue, 26 Aug 1997 09:33:40 -0700
From: prateeksha@infoasis.com (Prateeksha Bogardus)
To: SCD-list@longisland.com
Subject: Re:Dutch Valley Foods, Myerstown, Pa. - Pecan Flour
Message-ID: <v01550100b02853485174@[206.40.74.59]>
>--------------------------------------------------------------------
>SCD MAILING LIST
>-------------------------------------------------------------------
>Dear Rachel,
It seems to me about two weeks ago or so I read that Elaine does not
recommend this nut company as a source for nut flour, although it is given
in the book as a source.
Is this correct? In going over my notes, I noticed this and I just ordered
30 lbs. of pecan flour which has already been shipped!!!!! Is there
forbidden filler in their pecan flour?
Prateeksha
------------------------------
Date: Tue, 26 Aug 1997 10:08:06 PST
From: ACB <benkea@MAILHOST.PAC.DFO.CA>
To: scdlist2 <SCD-list@longisland.com>
Subject: Medication while on the SCD
Message-ID: <8306081026081997/A01917/VANHQ1/11B8D2880500*@MHS>
>i assume that when you follow the SCD diet one must taper off the
>ASACOL, and that it is done without the help/advice of a doctor.
Ted,
I don't know what you are basing this assumption on since it does not state
this in the book. Elaine says that the doctor will likely taper the meds as
symptoms disappear as a result of the diet. She does not recommend going off
meds right away, or at all for that matter. And she certainly doesn't tell us
to do it without advice or help from a doctor.
I agree with Rachel in saying that it's way too early to think about tapering
or stopping the meds. This should be done after all symptoms are gone. In the
case of Prednisone, it is a super powerful steroid with numerous implications
and side effects on the body, therefore the incentive to get off of it is much
greater. But even this must be done extremely gradually. Sometimes even more
gradually than the doctor tells you. The slower the better. The sooner the
better also. In the case of Asacol, it is totally different than Prednisone
and I would say a lot milder. If the patient finds it is helping, they should
probably stay on it, even while on the diet, to be on the safe side. There is
nothing that says you can't be on meds while on the diet. You may be thinking
that "how will you know if the diet is working if you are also on
meds?" Well,
it's true, you may not know for sure, but it's better to cover all bases. The
patient may be less likely to have setbacks while on the diet if the Asacol is
continued in the mean time. This has been my experience with Asacol. I don't
know about the Rowasa because I haven't used it. I have used Salofalk enemas
which are made of 5ASA (same as Asacol), and I found them useful as well.
Basically, my advice is not to worry about the 5ASA based meds, and to continue
them for a few months at least. When the symptoms go away, you can tell the
doctor, and he likely will tell you to cut down on the meds. He may not say to
go off them, ever, but this decision will be easier to make once the patient
has been symptom free for a long time. I made the mistake of going off all
meds right away, and had a few setbacks. I think it's better to stay on them
for a while, until your body is more healed and then attempt to go off them.
Prednisone is the exception to this rule. In that case, I would try to get off
it as soon as possible, but also slowly. The diet will likely help people get
off any type of meds because it allows the body to heal itself, making the
drugs less and less necessary.
I know all too well that most doctors will not want to cooperate with the diet
because they won't believe in it. This may cause people to go on their own in
terms of medication decisions. I have done this myself before. I switched
from Asacol to Pentasa to Dipentum to Salofalk enemas, back and forth,
according to how I felt at the time, including stopping them altogether for a
while. Sometimes you know your own body better than the doctor does, but when
you're dealing with a child, it's a different story. You are better off
getting some guidance from the doctors, at least until you become more familiar
with the disease process and the effects of the different meds.
In respect to your question about how do you know if you are taking too much
Asacol, I did this at one point. I was taking way more than the doctor told
me, and I began getting severe itching all over the body. This was a sign that
the dosage was too high because it was accumulating in the liver and causing an
allergic reaction of sorts. I discontinued completely for a few weeks until
the itching stopped and then started up again at a lower dose. This is not
likely to happen to most people because the doctors prescribe it based on body
mass I think. It was my own fault that I got that reaction because I was
ignoring the doctor's dosage instructions. This is very uncommon I think, as I
have never heard of anyone else having adverse reactions to Asacol.
I hope this message is not too confusing. Educate yourself on all the drugs
available for IBD so you know what to expect in terms of dangers, side effects,
and benefits. Every time I got a prescription I would have the pharmacist give
me a photocopy of the page out of the Compendium of Pharmaceuticals that they
keep behind the counter for reference. There is also a lot of info on the net
if you search. If you are on the IBDdigest list also, you can search back
issues for topics of interest and see what people had to say about them over
the years. I have found this to be a useful resource. Check both
http://www.inform.dk/djembe/scd/default.html and
http://128.248.251.136
If your doctor is not cooperating with you, find a second opinion, and a third
and fourth if necessary. My first doctor (gastroenterologist) was the type who
would dole out the Prednisone every time I had the slightest problem. I didn't
know any better at the time, so I took it, and got "hooked" so to
speak,
because it was very hard to get off. The only thing that allowed me to get off
the Pred was the SCD. Finally I found another gastroenterologist who listened
to my desire to stay off Prednisone, and I haven't been put on it ever since.
I thank goodness that I got away from that first doctor. Use your own
intuition when it comes to doctors and how you feel about them.
Good luck to you and your son.
Anna
------------------------------
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