SCD-list 5-9 Sept 1997
SCD-list Fri, 5 Sep 1997 Volume 1 : Number 30 In this issue: DCCC Re: Brain fog Re: Asacol & Meds on SCD My Posts Hughson Nut RE:Asacol & Meds on SCD RE: depression Re: Brain fog Re: My Posts Re: Asacol & Meds on SCD RE: Aspartame Re: My Posts Re: depression Re: depression Re: Asacol & Meds on SCD Re: Asacol & Meds on SCD Re: eating away from home Re: Drug Companies (was Asacol & Meds) Re: DCCC Re: My Posts RE: My Posts Re: My Posts Re: My Posts Re: eating away from home Re: eating away from home Re: Carrot Cake Recipe Re: eating away from home Re:CCFA Re: eating away from home Re: eating away from home RE: Glenn's posts unreadable -------------------------------------------------------------------- SCD MAILING LIST ------------------------------------------------------------------- ---------------------------------------------------------------------- Date: Thu, 4 Sep 1997 19:03:42 -0500 From: "Jim Prousalis" <j-pro@mindspring.com> To: "SCD LONG ISLAND" <SCD-list@longisland.com> Subject: DCCC Message-ID: <199709042304.TAA05330@brickbat8.mindspring.com> Debbie Wrote:::: <<<<I have been using Farmer's Cheese (cultured pasteurized Grade A skim milk,cream & salt) since DCCC was impossible to find in this state! Last eve, in a diff grocercy store I saw Breakstone's DCCC with added skim milk. The ingredients are listed as cultured pasteurized Grade A skim milk & natural flavoring. Is this a more acceptable form of DCCC or the two are about the same? Thanks Debbie>>>> Hi Debbie! I noticed that you were looking at the Breakstones DCCC, I hate to say, but NG can't have added liquids to it. Farmers cheese is the same thing as DCCC. Keep on using that as long as it is dry. Good Luck! Jim ------------------------------ Date: Thu, 4 Sep 1997 18:12:29 -0700 From: "Rosset" <plrosset@pacificrim.net> To: <SCD-list@longisland.com> Subject: Re: Brain fog Message-ID: <199709050118.SAA28845@cascade.pacificrim.net> ---------- > From: Dempsey <stellar1@pacbell.net> > To: SCD-list@longisland.com > Subject: Sleep and Brain fog (was: Regular strength coffee) > Date: Wednesday, September 03, 1997 2:05 PM > > -------------------------------------------------------------------- > SCD MAILING LIST > ------------------------------------------------------------------- Denise wrote: I would give anything to be able to control the brain fog I > get. If you or anybody have suggestions for how to get rid of brain Dear Denise, The thing that can give me a dull headache and make me feel sort of down, is too much sweetness. I usually eat 1/2 of a banana at a time. Or just a couple of cookies at a time. I think it must be a blood sugar thing. Have you ever noticed the fog tied in with having had a large dose of sweetness? Lucy ------------------------------ Date: Thu, 4 Sep 1997 23:25:12 -0400 (EDT) From: EllenAdams@aol.com To: SCD-list@longisland.com Subject: Re: Asacol & Meds on SCD Message-ID: <970904232118_1683179360@emout07.mail.aol.com> In a message dated 97-09-04 21:59:51 EDT, you write: << If you are like me, you have a doctor who refuses to acknowledge the extent of diet in controlling Colitis (and possibly chrones-I have no experience there) and know when you need or don't need meds. Obviously, prednisone needs to be tapered off slowly. I have found asacol a mixed blessing. When I took 6 tablets a day, I bled. Now I take only 3 a day (one at a time) and I believe it helps with the diet, but dosen't give me any bad effects. >> But it sounds like, given your experience, you still wouldn't advise someone to stop all their meds during their first week of the diet? The thread was started by someone who stopped taking their asacol because it contains lactose and stopped their questran because it contains sucrose. They thought they were supposed to do these things to be on the diet. I don't argue with anyone making a personal choice as to whether they continue on their medications, I just don't want people to feel they have to stop them to be on the diet. I also don't believe that Elaine was pressured by the medical establishment to include her warnings about not stopping medication without a doctors advice. I think she meant it. She could have just ignored the issue and not commented on it if she did not have strong concerns about it. If she had any desire to please the medical establishment she would not have claimed that the diet can cure these diseases--that claim is more against the status quo than any comment about the need to continue or not continue medication. Ellen ------------------------------ Date: Thu, 4 Sep 1997 19:26:51 -0700 From: "Glenn L. Rung" <backpack@cyberlynk.com> To: "'SCD-list@longisland.com'" <SCD-list@longisland.com> Subject: My Posts Message-ID: <01BCB970.F54BEA00@ppp48mer.cyberlynk.com> Hi folks, Besides Ellen, is anybody having troubles reading my posts. Someone besides Ellen, please reply so I know wheater I have a problem or not. Thanks, Glenn ------------------------------ Date: Thu, 4 Sep 1997 19:46:50 -0700 From: "Glenn L. Rung" <backpack@cyberlynk.com> To: "'SCD-list@longisland.com'" <SCD-list@longisland.com> Subject: Hughson Nut Message-ID: <01BCB970.F6BD2D40@ppp48mer.cyberlynk.com> Hey folks, I just visited Hughson Nut today (the university that I go to is only a = 15 minute drive from Hughson), and they told me that they are selling = five twenty-five pound boxes of nut flower a each day now. That's great = news; let's keep spreading the word. Glenn ------------------------------ Date: Thu, 4 Sep 1997 20:27:54 -0700 From: "Glenn L. Rung" <backpack@cyberlynk.com> To: "'SCD-list@longisland.com'" <SCD-list@longisland.com> Subject: RE:Asacol & Meds on SCD Message-ID: <01BCB971.32A5C920@ppp48mer.cyberlynk.com> ------ =_NextPart_000_01BCB971.32A5C920 Content-Type: text/plain; charset="us-ascii" Content-Transfer-Encoding: 7bit Lucy wrote, Not only did I not respond to Asacol, but I lost a lot of ground during the couple of years I was taking it and almost lost my colon. There is no way of knowing if the Asacol was the problem, but I know I don't trust it. I stopped taking it almost 4 years ago and haven't needed anything but the diet since. A pharmacist once told me that he felt people did bettter on Dipentum than Asacol. They are supposed to be similar drugs made by different companies. Also, there is Azulfadine which has been around for a long time. I was under the impression that the newer drugs were supposed to be better, but I've heard that Azulfadine has bacteria killing properties that the newer ones don't have. Apparently, newer isn't always better. Drug companies have been known to bring out a new expensive drug, when the old one's patent has run out. Rachel said she took Azulfadine during the first year or so on the diet and did well with it. You might ask her about that. Let us know how you do. Lucy Lynn, I've been on azulfadine for three years and I'm doing fine. Glenn ------------------------- Date: Thu, 4 Sep 1997 20:28:00 -0700 From: "Glenn L. Rung" <backpack@cyberlynk.com> To: "'SCD-list@longisland.com'" <SCD-list@longisland.com> Subject: RE: depression Message-ID: <01BCB971.34BD5E80@ppp48mer.cyberlynk.com> ------ =_NextPart_000_01BCB971.34BD5E80 Content-Type: text/plain; charset="us-ascii" Content-Transfer-Encoding: quoted-printable Denise said Just thought I'd share my experience with that last one, since you all are likely to understand. I just returned from a four-day wedding in North-western Washington state. It was out in the boonies at a resort where everything was canned and bottled -- even at this "exclusive" restaurant at the resort! I subsisted on apples, carrots, canned tuna and this "gourmet" fresh guacamole sold at this exclusive gourmet country store that went for $8.95 a jar!!! I was so desperate. The hardest part was not actually gettting the food but trying to eat the food while I was a bridesmaid and was actively trying to coordinate the wedding -- and most of the 4-day weekend's activities were centered around food. The bride had tried to take me into consideration in her planning, but, like most people who don't undersatnd the diet, had lots of veggie salads with pasta, corn and bottled dressings. Ughhh. It was hell. I broke down emotionally (in private, fortunately) at one or two points, from exhaustion in general, but also from malnutrition.=20 Fortunately I have a very understanding husband who was more than there for me and helped go buy the guacamole when I was too dizzy to manage.=20 Sorry, I had to vent all this, it feels like no one else understands how difficult it is to stay on this diet sometimes when away from home.=20 Taking chances on mystery ingredients in restaurants and such. I came home and cooked and cooked and cooked. And ate and ate and ate! Thanks for listening to whomever might be reading this. It sure helps to talk. Denise Hi Denise, My sympathies go out to you. I can't count how many rain checks I've had = to take because of this diet. It's kind of sad for us, but you know how = miserable the alternative can be. Hopefully word of this diet will = spread exponentially so that more people will become aware of the SCD. = I'm sure there are thousands of peolple with our problem that haven't = got a clue as to what to do about it. We just need to keep spreading the = word. I'm hoping someday that this diet will become popular enough for = food manufactures to profit from it so that those of us that don't like = to spend so much time in the kitchen can have an easier time of this. Glenn ------------------------------ Date: Thu, 04 Sep 1997 20:41:00 -0700 From: Dempsey <stellar1@pacbell.net> To: SCD-list@longisland.com Subject: Re: Brain fog Message-ID: <340F7F4B.77CA@pacbell.net> Rosset wrote: > The thing that can give me a dull headache and make me feel sort of down Sounds like what happens to me is quite different, Lucy. Although I do appreciate your response. What I get is not associated with eating or not eating, although it *sounds* like a low blood sugar thing, so far that hasn't been the case. I eat tons of food, protein and very little fruit or honey. Sometimes I wake up with it, sometimes it will hit me during the day. I get spacey and light-headed, and it is hard to concentrate, like I can't quite connect with my brain. I'm not necessarily tired when it strikes me either. I've heard of this symptom associated with fibromyalgia, although I assume it is somehow related to digestion, assimilation problems. Anybody else suffer from this dang-blasted annoying problem? Denise ------------------------------ Date: Fri, 5 Sep 1997 00:10:54 -0400 (EDT) From: BCohen7014@aol.com To: SCD-list@longisland.com Subject: Re: My Posts Message-ID: <970905000846_-498808718@emout13.mail.aol.com> Glen, I am getting your posts fine. Was there a problem? ------------------------------ Date: Fri, 5 Sep 1997 00:04:01 -0400 From: "witkowski" <witkowskis@worldnet.att.net> To: <SCD-list@longisland.com> Subject: Re: Asacol & Meds on SCD Message-ID: <19970905041148.AAA21@a-zcusto> ---------- > From: EllenAdams@aol.com > To: SCD-list@longisland.com > Subject: Re: Asacol & Meds on SCD > Date: Thursday, September 04, 1997 11:25 PM > Dear All, I can only speak of my own experience , but I took my Asacol regularly throughout the first month or two of the diet . Now I take it on an as needed basis. That has been around 4 pills over the last 2 months. This is not a drug like Pred. you do not need to phase off it. But the diet certainly helped me within the first seven days even taking the Asacol. Just imagine how much less of all those bad things your body is already not having to deal with . The small amount of filler added should not slow down your progress to much. It may be that you will just take a smidge longer to see results. Stop taking it when you do not have the big D. and not until . Talk to your doctor . Mine said it was fine to take it on an as needed basis. Take Care, Kay ------------------------------ Date: Thu, 4 Sep 97 22:39:32 MDT From: "Daniel Woods" <dwoods@acs.ucalgary.ca> To: SCD-list@longisland.com (SCD-diet mail list) Subject: RE: Aspartame Message-ID: <9709050439.AA135858@acs5.acs.ucalgary.ca> Hi group, Tim responded to my comments (privately) about aspartame and with his permission, I have posted it here. I thought many others would find this information useful. > Hello, > > I read one of your postings on the SCD-list (a great list, > thanks for being a part of it) that made a reference to Monsanto > developing aspartame. While I in no way wave a flag for it, > aspartame was not developed by Monsanto (the poison company). > It was developed by G.D.Searle & Company (the Metamucil company), > which, after going public with NutraSweet, was purchased by > Monsanto and is now a wholly-owned subsidiary. Monsanto actually > led the fight against FDA approval, not for health reasons though, > I don't think. They were the manufacturers of saccharin. > Well, well, well. Pretty much business as usual it seems, > even with public health issues. > > Again, I'm in no way supporting the massive production and > consumption of aspartame, I just thought you might be interested > in this bit of corporate history. Oh, and by the way, aspartame > had been rejected many times by the FDA but was finally approved > while Reagan was president. Reagan had a buddy/strong political > supporter named Donald Rumsfeld (sp.) who happened to be > president/CEO of ... G.D.Searle & Company. (But I'm sure that > had nothing to do with anything.) > > Here's to honey. > > Hope all is well with you, > > Tim Thanks... Dan. *************************************************************** * Dan Woods The University of Calgary * * dwoods@acs.ucalgary.ca Calgary, AB, CANADA, T2N 1N4 * *************************************************************** ------------------------------ Date: Fri, 5 Sep 1997 07:27:43 -0400 (EDT) From: EllenAdams@aol.com To: SCD-list@longisland.com Subject: Re: My Posts Message-ID: <970905072742_153194943@emout04.mail.aol.com> In a message dated 97-09-04 23:30:02 EDT, you write: << Besides Ellen, is anybody having troubles reading my posts. Someone besides Ellen, please reply so I know wheater I have a problem or not. >> This one came through fine (even for me!) It was all the earlier ones I couldn't read (they came through as an unreadable attachment) Ellen ------------------------------ Date: Fri, 5 Sep 1997 07:32:21 -0400 (EDT) From: EllenAdams@aol.com To: SCD-list@longisland.com Subject: Re: depression Message-ID: <970905073220_-864870592@emout07.mail.aol.com> In a message dated 97-09-04 23:39:13 EDT, you write: << Hi Denise, My sympathies go out to you. I can't count how many rain checks I've had to take because of this diet. It's kind of sad for us, but you know how miserable the alternative can be. Hopefully word of this diet will spread exponentially so that more people will become aware of the SCD. I'm sure there are thousands of peolple with our problem that haven't got a clue as to what to do about it. We just need to keep spreading the word. I'm hoping someday that this diet will become popular enough for food manufactures to profit from it so that those of us that don't like to spend so much time in the kitchen can have an easier time of this. >> On this one I received your post AND an attached file that I couldn't read (That I assume is a copy of the text). Maybe it is AOL causing the problem. Ellen ------------------------------ Date: Fri, 5 Sep 1997 07:40:40 -0400 (EDT) From: EllenAdams@aol.com To: SCD-list@longisland.com Subject: Re: depression Message-ID: <970905074039_-767786943@emout10.mail.aol.com> In a message dated 97-09-05 00:21:07 EDT, you write: << Sometimes though, when I feel depressed, I realize what I mostly am is tired. That is the biggest drag, is dealing with low energy. I personally feel that half the time people talk about depression, it's really deep, "bone level" fatigue. Don't get me wrong, though, I'm not saying all depression is this. I just mean sometimes it's hard to figure it out. >> I agree. When I get depressed, a couple of good night's sleep makes a big difference in my outlook. I don't have any reserves these days so it is too easy to get pushed over the edge and exhausted without really realizing it. I think that was the source of my problem this time. Ellen ------------------------------ Date: Fri, 5 Sep 1997 09:18:54 -0230 (NDT) From: "Neil G. Bishop" <nbishop@calvin.stemnet.nf.ca> To: SCD-list@longisland.com Cc: SCD-list@longisland.com Subject: Re: Asacol & Meds on SCD Message-ID: <Pine.OSF.3.91.970905091138.30348A-100000@calvin.stemnet.nf.ca> Hi again, I'll just mention this again as there seem to be more and more concern about Asacol surfacing. I've had serious problems with Asacol in the past (as recently as two weeks ago), the more I used the worse I felt. I am now using NOVO-5 ASA from NOVOPHARM and as I'm weaning off Prednisone, I have tried a little extra NOVO-5 when symptoms reoccur -- it seems to work fine without the discomfort and increase in symptoms. It's a generic form of Asacol made without lactose. Your pharmacist should be able to get you a product profile(to screen for lactose) if there is another generic brand available in your area. Good luck, Neil ------------------------------ Date: Fri, 5 Sep 1997 07:53:10 -0400 (EDT) From: EllenAdams@aol.com To: SCD-list@longisland.com Subject: Re: Asacol & Meds on SCD Message-ID: <970905075307_1750290757@emout04.mail.aol.com> In a message dated 97-09-05 03:52:23 EDT, you write: << Also, there is Azulfadine which has been around for a long time. I was under the impression that the newer drugs were supposed to be better, but I've heard that Azulfadine has bacteria killing properties that the newer ones don't have. Apparently, newer isn't always better. >> Azulfadine does have bacteria killing properties that Asacol does not. Azulfadine is in a sulfa base and sulfa has antibiotic-like properties. Asacol was developed to deliver the active ingredient without the sulfa base because many are allergic to sulfa (personally, sulfa makes me nauseous). I believe Bactrim is an example of a broad-base sulfa drug in common use. They work better than antibiotics for certain types of things and I think, as a class, were a precursor to antibiotics. I don't know how the sulfa base works with the active ingredient though and whether you actually get the benefit of the sulfa by taking it (it may be that the sulfa was used as a delivery mechanism, like the enteric coating on asacol--to get it past your stomach and dissolving in the ph of the bowel). Ellen ------------------------------ Date: Fri, 05 Sep 1997 08:21:23 -0400 From: Matthew Cirillo <mcirill@emory.edu> To: SCD-list@longisland.com Subject: Re: eating away from home Message-ID: <340FF943.BF52097D@emory.edu> You know, fasting for a day works wonders for your system. Especially if you gear yourself up for it psychologically, you will find that you can easily make it through the day. It works as a last resort. Even three days is doable (I've done it) and the first day is the hardest. Or else, you can bring a few muffins or other non-perishables. You can then stuff yourself when you get back home! ACB wrote: > -------------------------------------------------------------------- > SCD MAILING LIST > ------------------------------------------------------------------- > >I was thinking just the other day about how I'm > >going to handle our annual corporate retreat. All the executives go > off > >together for 3 days. All of our time is scheduled in various group > >activities and two big activities are eating and drinking. Dinner > menus are > >preplanned--no choices > > This is true, it's not easy. My office had a retreat planned and I > think I got > so stressed out worrying about it that it caused a flare. I had heard > that the > menus were all pre-ordered with little choice and that usually people > go out > drinking and socializing and what not. This made me even more > aprehensive. I > had planned to go and bring my own food in a cooler. I called the > hotel and > requested a mini fridge in my room. I was just going to eat cold > food and > deal with it. It was only going to be 2 days. Finally I felt so sick > that I > told my boss I had to stay behind because I wasn't feeling well and > didn't want > to be far from home. I kept going to work, but didn't participate in > the > retreat. I hope that I can go the next time. > > >PS. How do others deal with these kinds of situations? How do you > prevent > >well meaning people from poisening you? ;-) > > It's hard. I told my friend's mother about it in detail, yet when I > went for > dinner, she thought she was so good at adhering to my diet but she > used bottled > barbeque sauce on the bbq ribs and the vegies were cooked crispy, when > I need > them well done. I ate it anyway, because I didn't want to be rude or > make a > scene. So, it's not easy, but it can be done. I think if I had > spoken to her > ahead of time and found out what she was making I could have told her > not to > put any sauce on mine and that I need my vegies boiled. We need to be > more > assertive and less afraid of offending people I think. > Anna ------------------------------ Date: Fri, 5 Sep 1997 08:38:03 -0400 (EDT) From: EllenAdams@aol.com To: SCD-list@longisland.com Subject: Re: Drug Companies (was Asacol & Meds) Message-ID: <970905083801_419029328@emout04.mail.aol.com> In a message dated 97-09-05 03:52:23 EDT, you write: << Drug companies have been known to bring out a new expensive drug, when the old one's patent has run out >> This could happen but it would be an accident of timing. The full drug development cycle takes 10-12 years and costs about $400 million. It would be difficult to time the events to work out this way, and of little advantage to the pharma company. Providing the same active ingredient in a different base is a way to leverage the time and cost of development if it offers a way to broaden their existing market. (For example, percodan and percocet) If they can get them both out, under patent, at the same time then they will, because it will expand their overall marketplace and they seek to establish a firm hold on that marketplace during the patent period. Once a drug goes off patent, the generics erode 66% of the marketplace. A drug company would not hold an approved product off the market waiting for any specific event. The patent clock on that product is already running when they go into the FDA approval process. Each day on the market within patent can mean $1 Million in revenue to them so they rush their products to market. One other interesting aside to all this is that the generic versions are often in a different base and this can affect one's tolerance of the drug. A friend of mine had a reaction to the generic equivalent of Elavil, but the doctor may try her on the original product since it is in a different base. Asacol and Asulfazine are the same active ingredient in two completely different bases. Asacol is more often prescribed these days since many cannot tolerate the sulfa base in Asulfazine, but there are probably those who are better served by the sulfa formulation. By the way, the good news in all this is that the IBD community provides a reasonable marketplace--about 2 million of us in the US marketplace. This means that it is cost effective for companies to seek approval of products for our indications. The government has "Orphan" drug programs to try to incentivize industry to produce products for the small markets but it is still a difficult thing to make a business case for. Oh, one final comment. Don't imagine that the pharma companies are out there doing original research seeking a cure for IBD. If they find a cure it will merely be the side effect of their research. They seek patentable chemical combinations and then seek to apply them to a indication with a reasonable marketplace. Rogaine was originally intented as a heart medication but failed to show efficacy. The patches had the side effect of growing hair and that's how they ended up using it for that. If you believe there should be more basic research into the cause and cure for IBD you should financially support organizations like CCFA--they fund basic research into IBD. ::getting down off my soapbox:: (I hope someone finds all this interesting, it is clearly something that interests me. I do technology consulting for the FDA and the pharma industry for a living. I'm not an expert; but something of a well-informed bystander to the decisions they make) Ellen ------------------------------ Date: Fri, 5 Sep 1997 08:08:06 -0500 From: Maureen Stohlmeyer <mstohlme@iastate.edu> To: SCD-list@longisland.com Subject: Re: DCCC Message-ID: <v03102800b035b43456a8@[129.186.242.88]> In my store there is Brick Cheese and Farmer's Cheese. In the book doesn't she say that Brick Cheese is sometimes called Farmer Cheese? In the list of permitted cheeses, Farmer's Cheese isn't listed. Does anyone know if this cheese is OK? Is there a difference between Farmer and Farmer's cheese? The Farmer's cheese in the store is a soft cheese, a little softer than brick cheese. >-------------------------------------------------------------------- >SCD MAILING LIST >------------------------------------------------------------------- >Debbie Wrote:::: ><<<<I have been using Farmer's Cheese (cultured pasteurized Grade A skim >milk,cream >& salt) since DCCC was impossible to find in this state! > >Last eve, in a diff grocercy store I saw Breakstone's DCCC with added >skim milk. The ingredients are listed as cultured pasteurized Grade A >skim milk & natural flavoring. > >Is this a more acceptable form of DCCC or the two are about the same? > >Thanks >Debbie>>>> > >Hi Debbie! I noticed that you were looking at the Breakstones DCCC, I >hate to say, but NG can't have added liquids to it. Farmers cheese is the >same thing as DCCC. Keep on using that as long as it is dry. > >Good Luck! > >Jim -------------------------- Maureen Stohlmeyer Iowa State University College of Agriculture 137 Curtiss Hall Ames, IA 50011 515-294-4763 515-294-5334 FAX -------------------------- ------------------------------ Date: Fri, 05 Sep 97 09:05:35 PDT From: "Kim Endres" <kendres@resdyn.com> To: "LongIsland SCD List" <SCD-list@longisland.com> Subject: Re: My Posts Message-ID: <MAPI.Id.0016.00656e64726573203030303730303037@MAPI.to.RFC822> Glenn, this one was fine, but some of your other posts have attachments that my mail utility is unable to read. It is annoying (because of the warning messages that pop up), but otherwise OK. Kim ---------- > -------------------------------------------------------------------- > SCD MAILING LIST > ------------------------------------------------------------------- > Hi folks, > > Besides Ellen, is anybody having troubles reading my posts. > > Someone besides Ellen, please reply so I know wheater I have a problem or not. > > Thanks, > Glenn > ------------------------------ Date: Fri, 5 Sep 1997 08:07:01 -0700 From: "Glenn L. Rung" <backpack@cyberlynk.com> To: "'SCD-list@longisland.com'" <SCD-list@longisland.com> Subject: RE: My Posts Message-ID: <01BCB9D2.D2647180@ppp53mer.cyberlynk.com> Godd Morning Folks, I'm sorry that some of you were having troubles with some of my posts. = As long as I send mail like this, everybody recieves readable messages. = However, when I use the reply mode in my software or if I try to send a = file, problems occur for some of you. My software is Microsoft Exhange = (it was part of my Microsoft Office package). I'm not all that computer literate, so I really don't know what the = problem is. But I'll I contact my service provider to see if there is = something I can do to fix this problem. Until I do get the problem = resolved I'll reply to your messages by cutting and pasting. That way = all of you should get good posts from me. Thanks for letting me know about the problems you were having with some = of my posts. Glenn ------------------------------ Date: Fri, 5 Sep 1997 09:26:27 -0600 From: "William Laing" <wlaing@telusplanet.net> To: <SCD-list@longisland.com> Subject: Re: My Posts Message-ID: <97Sep5.092424-0600_mdt.280940-10870+253@mail.telusplanet.net> Looks good here glen William laing ---------- > From: Kim Endres <kendres@resdyn.com> > To: LongIsland SCD List <SCD-list@longisland.com> > Subject: Re: My Posts > Date: Friday, September 05, 1997 10:05 AM > > > -------------------------------------------------------------------- > SCD MAILING LIST > ------------------------------------------------------------------- > Glenn, this one was fine, but some of your other posts have attachments > that my mail utility is unable to read. It is annoying (because of the > warning messages that pop up), but otherwise OK. > Kim > > ---------- > > -------------------------------------------------------------------- > > SCD MAILING LIST > > ------------------------------------------------------------------- > > Hi folks, > > > > Besides Ellen, is anybody having troubles reading my posts. > > > > Someone besides Ellen, please reply so I know wheater I have a problem or > not. > > > > Thanks, > > Glenn > > > ------------------------------ Date: Fri, 05 Sep 1997 11:30:51 -0700 From: Dempsey <stellar1@pacbell.net> To: SCD-list@longisland.com Subject: Re: My Posts Message-ID: <34104FDB.2234@pacbell.net> Hi Glenn, Your last post asking if we could read your posts came through the clearest. I could read the others, but the format was such that the page was about twice as wide as my computer screen so I had trouble reading the sentences, they were so long. The last post was just fine though, so if you did anything special, I would urge you to keep doing that! Denise EllenAdams@aol.com wrote: > > -------------------------------------------------------------------- > SCD MAILING LIST > ------------------------------------------------------------------- > In a message dated 97-09-04 23:30:02 EDT, you write: > > << Besides Ellen, is anybody having troubles reading my posts. > > Someone besides Ellen, please reply so I know wheater I have a problem or > not. > >> > > This one came through fine (even for me!) It was all the earlier ones I > couldn't read (they came through as an unreadable attachment) > > Ellen ------------------------------ Date: Fri, 05 Sep 1997 11:37:45 -0700 From: Dempsey <stellar1@pacbell.net> To: SCD-list@longisland.com Subject: Re: eating away from home Message-ID: <34105179.48EF@pacbell.net> If I tried to fast for a day at this point, I would probably pass out or at the very lest feel extremely weak! If I let my hunger deficit get too bad, it can take me hours, sometimes days to recover. Glad to hear it works for you though. It would be a great convenience if I could just "not eat," as I've actually tried to do out of desperation sometimes, with rather unfortunate results! We're all different, I guess. Denise Matthew Cirillo wrote: ------------------------------------------------------------------- > You know, fasting for a day works wonders for your system. Especially > if you gear yourself up for it psychologically, you will find that you > can easily make it through the day. It works as a last resort. Even > three days is doable (I've done it) and the first day is the hardest. Or > else, you can bring a few muffins or other non-perishables. You can > then stuff yourself when you get back home! ------------------------------ Date: Fri, 5 Sep 1997 14:41:27 -0400 (EDT) From: EllenAdams@aol.com To: SCD-list@longisland.com Subject: Re: eating away from home Message-ID: <970905144017_83636445@emout09.mail.aol.com> In a message dated 97-09-05 14:35:13 EDT, you write: << If I tried to fast for a day at this point, I would probably pass out or at the very lest feel extremely weak! >> Me too! I start fading if a meal is late! E ------------------------------ Date: Fri, 5 Sep 1997 15:00:12 -0400 (EDT) From: EllenAdams@aol.com To: SCD-list@longisland.com Subject: Re: Carrot Cake Recipe Message-ID: <970905145417_1145177954@emout18.mail.aol.com> Awhile ago, Barb Partridge posted the recipe below as a solution to the soggy carrot cake dilemma. I just tried it and had terrific results. Folding in the beaten egg whites adds air and provides a structure for it so it stays light (like merinque). I didn't have the orange rind or frozen orange juice (but now I'm ready to buy them special to make it again). I substituted lemon rind and lemon juice--which was good--but the lemon juice wasn't a strong enough substitute for the concentrated juice (I wish now I'd thought to toss in a tsp of orange extract with the lemon juice). Anyway, I made mine in a muffin tin. Just heap it in there--they won't rise higher in the oven--and watch your baking time. It's much shorter with the muffin tins. I froze mine and have been enjoying them out of the freezer--they freeze well. Given that they include no leavening, I think they are even kosher for passover. You don't need the springform pan to enjoy this recipe but you do need a mixer (it would be very difficult to beat the egg whites by hand to stiff peaks). The flavor is more like a light orange bread than carrot. The carrots offer a lovely color and lots of nutrition but don't dominate the flavor at all. When I first read the recipe, I considered adding raisens (thinking carrot cake) but now I'm glad I didn't. If I added something, it might be a little coconut as a variation. Ellen Carrot Cake 6 eggs, seperated 1 cup honey 1 1/2 cups carrots, cooked and pureed 1 Tlbs grated orange rind 1 Tlbs frozen orange juice 3 cups almond flour Preheat over to 325 Beat the egg yolks and honey together. Mix in carrot puree, orange rind, orange juice and almond flour. Beat the egg whites until stiff and fold in. Spoon into a greased loose bottomed 9 inch springform pan. Bake for about 50 minutes or until a skewer inserted into the centre of the cake comes out clean. Cool in the pan for 15 minutes, then turn out onto a wire rack to cool completely. This cake looks great , tastes wonderful alone but it is also very nice served with the Honey Cream Whipped Topping (Page 110 , Breaking the Vicious Cycle). The carrots should be cooked, pureed then measured. If I have a bit left over I just use it in soup. Yes I have made the carrot cake in the book but like you found it somewhat soggy. The recipe for the carrot cake with the pureed carrots in not soggy at all, like I said it is more like a cake texture, moist, and can actually be sliced and served, which is most difficult with the carrot cake in the book. The whole family really enjoyed it. Barb Partridge. ALLAN ------------------------------ Date: Fri, 5 Sep 1997 15:03:04 -0400 From: "Lynn Karakashian"<lynn.karakashian@prudential.com> To: SCD-list@longisland.com Subject: Re: eating away from home Message-ID: <85256509.00686E65.00@njros1ngw04.metro.prudential.com> Hi Everyone, What does everyone do to help them gain weight. I am 95 pounds and am struggling to gain weight and maintain my weight for that matter. Any suggestions would be greatly appreciated. I have tried everything I could possibly think of which are in the boundaries of the diet. Would love to hear your ideas. Lynn stellar1 @ pacbell.net Friday September 5, 1997 02:37 PM Please respond to SCD-list@longisland.com To: SCD-list @ longisland.com cc: (bcc: Lynn Karakashian/EFM/Prudential) Subject: Re: eating away from home -------------------------------------------------------------------- SCD MAILING LIST ------------------------------------------------------------------- If I tried to fast for a day at this point, I would probably pass out or at the very lest feel extremely weak! If I let my hunger deficit get too bad, it can take me hours, sometimes days to recover. Glad to hear it works for you though. It would be a great convenience if I could just "not eat," as I've actually tried to do out of desperation sometimes, with rather unfortunate results! We're all different, I guess. Denise Matthew Cirillo wrote: ------------------------------------------------------------------- > You know, fasting for a day works wonders for your system. Especially > if you gear yourself up for it psychologically, you will find that you > can easily make it through the day. It works as a last resort. Even > three days is doable (I've done it) and the first day is the hardest. Or > else, you can bring a few muffins or other non-perishables. You can > then stuff yourself when you get back home! ------------------------------ Date: Fri, 5 Sep 1997 12:31:53 -0700 From: "Rosset" <plrosset@pacificrim.net> To: <SCD-list@longisland.com> Subject: Re:CCFA Message-ID: <199709051938.MAA05324@cascade.pacificrim.net> ---------- > From: EllenAdams@aol.com > To: SCD-list@longisland.com > Subject: Re: Drug Companies (was Asacol & Meds) > Date: Friday, September 05, 1997 5:38 AM > > -------------------------------------------------------------------- > SCD MAILING LIST > Ellen wrote: > If you believe there should be > more basic research into the cause and cure for IBD you should financially > support organizations like CCFA--they fund basic research into IBD. As long as they continue to reject the Specific Carbohydrate Diet, they will not be seeing any of my money. Lucy ------------------------------ Date: Fri, 05 Sep 1997 14:41:45 -0500 From: Roberta Gelatt <Roberta.Gelatt@normicro.com> To: SCD-list@longisland.com Subject: Re: eating away from home Message-ID: <2.2.32.19970905194145.009c92ac@ntmail.normicro.com> Hello Everyone, Since the summer, when I've had to eat out a lot, I've realized that wait-persons and restaurants can be fairly flexible. For example, I ask for salads without dressing, croutons or cheese, and even if it is a fixed dinner, the person who serves is usually able to serve the salad plain. And I ask for main courses-chicken,beef,fish, to be served plain without sauces, and vegetables too. Even at a fixed-menu event the sauces are often added near the table and can be left off. If the vegetables are not allowed, I've even asked if there are any other vegetables available and there often are. Sometimes, if there seems to be a person in charge of the meal at a group event, I have talked to that person at the beginning of the meal, told her/him my dietary constraints and asked for help. If possible I bring along my own salad dressing in a small container and when I travel I bring along nut muffins -which can last up to 10 days without refrigeration. And then I bring snacks for in-between, like nuts and fruit. I think breakfasts are the hardest to eat with a group because they rarely serve eggs (my staple) or plain fruits, so I usually try to eat that on my own. If it's all breads and muffins, I bring my own. I imagined when I began all this that people around me would think I'm a curiosity, and ask lots of snoopy questions, but they don't. They might say, "Oh are you on a diet?" and then I say yes for a stomach inflammation and that usually ends it. The biggest hurdle for me has been all the sadness I feel inside when I see people eat foods I can no longer eat. I try to give myself a few moments of sadness and then join in the conversation which helps end it. Best to all Roberta ------------------------------ Date: Fri, 5 Sep 1997 15:49:10 -0400 From: "witkowski" <witkowskis@worldnet.att.net> To: <SCD-list@longisland.com> Subject: Re: eating away from home Message-ID: <19970905195706.AAA11770@a-zcusto> ---------- > From: Roberta Gelatt <Roberta.Gelatt@normicro.com> > To: SCD-list@longisland.com > Subject: Re: eating away from home > Date: Friday, September 05, 1997 3:41 PM > Dear All , Yes, yes Roberta, I love to eat out and have never had a problem in fact I think it is easier. Restaurants are very cooperative with me especially when you say a health related condition is the reason. You can not dine at fast food places but you sure can find plenty at family type or fancy places. Even Denny's or Perkins are more than cooperative . They have been very happy to supply me with fruit instead of toast or hash browns. I encourage all of you to get out there and ask, I think you will be pleasantly surprised at how helpful restaurants can be. I have a couple that automatically know not to even bring me bread or croutons on the salad etc. Be brave ask. Take Care, Kay ------------------------------ Date: Fri, 5 Sep 97 14:07:37 MDT From: "Daniel Woods" <dwoods@acs.ucalgary.ca> To: SCD-list@longisland.com (SCD-diet mail list) Subject: RE: Glenn's posts unreadable Message-ID: <9709052007.AA141840@acs5.acs.ucalgary.ca> Hi Ellen You aren't the only one having trouble with Glenn's postings. Until you sent your message, I was about to send him one asking him to use a different Email program. I get his message and what appears to be an inline attachment. It's not your problem from being on AOL. I am on a Unix system. I get junk like this after his message... > ------ =_NextPart_000_01BCB557.B5F8E0A0 > Content-Type: application/ms-tnef > Content-Transfer-Encoding: base64 > > eJ8+IiUWAQaQCAAEAAAAAAABAAEAAQeQBgAIAAAA5AQAAAAAAADoAAENgAQAAgAAAAIAAgABBJAG > ZC5jb20AAwAVDAEAAAADAP4PBgAAAB4AATABAAAAGgAAACdTQ0QtbGlzdEBsb25naXNsYW5kLmNv > bScAAAACAQswAQAAAB0AAABTTVRQOlNDRC1MSVNUQExPTkdJU0xBTkQuQ09NAAAAAAMAADkAAAAA I got a digest of all the SCD postings which was over 2300 lines because of all this junk. I usually print the digests for my wife to read. To get around this problem, I forward the digest mail back to myself, but I first edit out all the junk from Glenn (as well as those unnecessary lines from people repeating someone else's posting which they are replying to). This left me with a file under 800 lines long. Glenn, what email program are you using ? Thanks... Dan. *************************************************************** * Dan Woods The University of Calgary * * dwoods@acs.ucalgary.ca Calgary, AB, CANADA, T2N 1N4 * *************************************************************** ------------------------------ End of SCD-list V1 #30 ********************** SCD-list Sat, 6 Sep 1997 Volume 1 : Number 31 In this issue: RE: research Peanut Butter Cookies Re: eating away from home I'm new on the block... Zuchinni Soup Recipe Re: I'm new on the block... Re: research (veering off topic) Almond Flour Price Reduced! Thank you... Re: research (veering off topic) -------------------------------------------------------------------- SCD MAILING LIST ------------------------------------------------------------------- ---------------------------------------------------------------------- Date: Fri, 5 Sep 97 17:37:14 MDT From: "Daniel Woods" <dwoods@acs.ucalgary.ca> To: SCD-list@longisland.com (SCD-diet mail list) Subject: RE: research Message-ID: <9709052337.AA156182@acs5.acs.ucalgary.ca> Hi Lucy, > > Ellen wrote: > > If you believe there should be > > more basic research into the cause and cure for IBD you should financially > > support organizations like CCFA--they fund basic research into IBD. > > As long as they continue to reject the Specific Carbohydrate Diet, they > will not be seeing any of my money. > Lucy 100% on the money. Let them put money into teaching nutritionists all about the SCD diet, since they are also disbelievers in diet helping IBD. Thanks... Dan. *************************************************************** * Dan Woods The University of Calgary * * dwoods@acs.ucalgary.ca Calgary, AB, CANADA, T2N 1N4 * *************************************************************** ------------------------------ Date: Fri, 5 Sep 1997 19:45:48 -0400 (EDT) From: EllenAdams@aol.com To: SCD-list@longisland.com Subject: Peanut Butter Cookies Message-ID: <970905194426_-299781576@emout19.mail.aol.com> Tonight I tried making peanut butter cookies based on the recipe in Elaine's book and the foreknowledge from this list that they tend to spread out too much on the cookie sheet. I left out the butter (between the peanut butter and almond flour there's plenty of oil), and doubled the baking soda to 1/2 tsp. When I tasted the batter (yes, I risked my life for you guys!) I realized that they needed salt (my peanut butter literally has nothing else in it). I added 1/2 tsp salt and that made a big difference. When I baked them, they came out light and fluffy. In fact, the next time I make them I will probably eliminate the butter, add the salt, and leave the baking soda alone. I hope someone finds this helpful. Ellen ------------------------------ Date: Fri, 05 Sep 1997 18:29:21 -0700 From: Dempsey <stellar1@pacbell.net> To: SCD-list@longisland.com Subject: Re: eating away from home Message-ID: <3410B1F1.6368@pacbell.net> Lynn Karakashian wrote: > What does everyone do to help them gain weight. Lynn, I rely on avocados! For me, these are super food, somehow seem really easy to digest and have a high vegetable fat content. I add them to everything I eat. Unfortunately, since we have to work so hard to get carbs in on the SCD, I rely on fats to pack in more calories. Also though, make sure you are getting as much carbs as possible. Lately I've been eating A LOT of split peas soup. I'm not sure where you are at with the diet in terms of what foods you can and can't eat. If you can handle the cookie recipes, they are a fantastic source of carbs and calories as well. Best regards! Denise ------------------------------ Date: Sat, 6 Sep 1997 00:02:58 -0400 (EDT) From: BCohen7014@aol.com To: SCD-list@longisland.com Subject: I'm new on the block... Message-ID: <970906000257_1261115817@emout20.mail.aol.com> Hi, my name is JoEllen and I am a new participant! I have been enjoying the postings that I have been receiving. I have learned so much and it is nice to have people to share this with. Lucky for me, I found out about Elaine's book about a month ago. I have been on the diet for about 3 weeks and I can hardly believe the difference it has made! Who would have thought that giving up wheat, yeast, starch, sugar, etc. would make such a difference. I must admit that I haven't made any yohurt yet. I am a bit sceptical. I did locate some "Dry Curd Nonfat Cottage Cheese" made by the Louis Trauth Dairy in Newport, KY. The ingred. include: Grade A Pasteurized Cultured SKim Milk, Grade A, Non Fat Dry Milk. I hope this is the correct form. (It is definitely DRY). I have CD and had a resection about 4 years ago. I have trouble with Diarrhea and have been on the full dosage of Pentasa for over a year. I also take vitamins and herbs (UC3J, Marshmellow and Psyllium). Since being on the diet, I no longer have D and have been enjoying fruits, vegetables, cheese! I was wondering if any of you have difficulty being on the diet and cooking for a family. I guess I need to use some imagination. I certainly have also enjoyed the recipes you people share. Would love a copy of the soup you liked so much and any others. I hope to now be an active participant and won't sit back and be silent. Thanks to all of you for your support and for being out there. JoEllen P.S. On Sunday we are going out to dinner to celebrate my son's birthday. I will let you know how it goes. ------------------------------ Date: Sat, 6 Sep 1997 10:17:43 -0400 (EDT) From: EllenAdams@aol.com To: SCD-list@longisland.com Subject: Zuchinni Soup Recipe Message-ID: <970906101741_213574215@emout17.mail.aol.com> JoEllen, I think this is the recipe you were referring to. It was originally posted by prateeksha@infoasis.com (Prateeksha Bogardus) and really turns out great! Hi Everyone, This recipe appeared in the paper yesterday and I tried it today...wonderful. I added pieces of left-over chicken when I added the yogurt. Zucchini Soup with Cinnamon, Cumin and Yogurt 1 pound trimmed zucchini 3 cups or so chicken stock 1 tbsp. butter 2/3 cup chopped onion 1/2 teaspoon cinnamon 1/2 teaspoon ground cumin 1/2 cup homemade yogurt minced fresh cilentro (I used dried) salt to taste lime or lemon wedges if served cold Chop zucchini in large chunks and put in small soup pot. Add chicken broth. Bring to a boil, reduce heat, simmer, covered, about 10 minutes (until zucchini are very tender.) Meanwhile, heat butter in a small, non-stick frying pan. Add onion, cumin and cinnamon, and saute until onion is soft and spices are fragrant. Put both mixtures into a food processor or blender. Puree until smooth, but do not sieve. Add yogurt (and chicken, if desired). Serve hot or chilled, sprinkled with cilentro, if use fresh. If use dried, put in with cumin and cinnamon when sauteeing onion. May wait to add salt at table, individually. Serves 4 as a first course, or 2 as an entree. Bon appitit! Prateeksha ------------------------------ Date: Sat, 6 Sep 1997 07:42:54 -0700 From: "Rosset" <plrosset@pacificrim.net> To: <SCD-list@longisland.com> Subject: Re: I'm new on the block... Message-ID: <199709061446.HAA09990@cascade.pacificrim.net> Dear JoEllen, Welcome to the group! Glad to hear you are doing well. Are you familiar with Mik Aidt's site? It is loaded with tons of interesting SCD information, including recipes. The address to find it is www.inform.dk/djembe/scd/default.html Keep us posted! Lucy ------------------------------ Date: Sat, 6 Sep 1997 11:33:05 -0400 (EDT) From: EllenAdams@aol.com To: SCD-list@longisland.com Subject: Re: research (veering off topic) Message-ID: <970906113303_184329575@emout20.mail.aol.com> In a message dated 97-09-06 08:14:44 EDT, you write: << > > Ellen wrote: > > If you believe there should be > > more basic research into the cause and cure for IBD you should financially > > support organizations like CCFA--they fund basic research into IBD. > > As long as they continue to reject the Specific Carbohydrate Diet, they > will not be seeing any of my money. > Lucy 100% on the money. Let them put money into teaching nutritionists all about the SCD diet, since they are also disbelievers in diet helping IBD. >> I wasn't aware that the CCFA had "rejected" the SCD. I thought it was generally accepted that diet influences the symptoms of IBD. As I understand it, the only major point on which Elaine and the establishment differ is the question of whether the diet cures the disease and I think this is a matter of semantics. If the diet can make us symptom-free then we perceive it as a cure, yet we all know that it may not be gone forever. Personally, I'm thrilled with the results I've gotten with the SCD. It's made a huge difference for me in only a short time. On the other hand, I'd rather the true causes of this disease be understood and resolved. I'd rather live in a world where children don't suffer with this--at all, not for a minute. I hope for a future where IBD, like polio, is better known as a childhood vaccine than a disease. Biotechnology is advancing rapidly. The pieces to the overall puzzle of human physiology are being figured out. I want there to be researchers pulling those pieces together to figure out how to eradicate IBD. From my observations, I'm glad the CCFA exists and I support their mission. They provide a lot of outreach and support services, as well as fund research. I may or may not agree with how they select grantees, how they allocate their funds across programs, etc. but I support their work and recognize that they are working hard to do a responsible job with a difficult mission and limited funds. Despite the fact that I didn't have a choice about joining the IBD community, now that I'm here, I feel impelled to contribute as I can to the community. A lot of people helped me through my early dark months with this disease--many from the crohns-colitis bulletin board. I try to stop by and write answers to basic questions in order to give back some of the early support I received. I offer support by phone and email to various people in my area who know me through friends of friends. I'm the only executive in my company who is publicly, chronically ill. I offer mentorship and support to employees in a similar situation, and am working to change many of the company policies to better support people with chronic illnesses. I'm not strong enough to participate in the CCFA walk-a-thon, but several of my staff do and I contribute money because that is what I can do. So I'll just say that I would encourage each person to be a fully active member of the IBD community in whatever ways you are able (whether you choose to support CCFA or not). The support you offer on this list is obviously one aspect of that. If the diet approach is the solution you wish to support you could contact the CCFA and ask whether they would be willing to locate and fund a grantee to validate the beneficial effects of the SCD if we are able to raise enough money for such a venture. Checks could be designated toward that purpose. Perhaps that is too ambitious as an initial venture. Maybe just ask whether they would be willing to publish an informational brochure on the diet and provide it to newbies who contact them for information. I'm merely advocating that everyone should not only take care of themselves, but also take action to support the broader IBD community (I'm sure many of you already do this in various ways). Whatever approach or organization you believe in--support it in some way. For me, offering support to others redeems my experience with this disease--makes it worthwhile, and giving financial support to CCFA allows me to feel that I am doing what I can toward a cure. I believe that, as a group, we can improve the quality of life for all of us. Ellen ------------------------------ Date: Sat, 6 Sep 1997 12:41:49 -0400 (EDT) From: EllenAdams@aol.com To: SCD-list@longisland.com Subject: Almond Flour Price Reduced! Message-ID: <970906124149_-266121395@emout10.mail.aol.com> I just ordered a new box of almond flour from Hughsons (via email--Thanks Dan!) and they told me that "Due to the increased demand for the almond flour we have lowered our cost to $3.25 a pound." I thought this was such good news, that I'd pass it on. (My order came to a total of $96 for 25lbs shipped to Virginia). Ellen ------------------------------ Date: Sat, 6 Sep 1997 14:13:29 -0400 (EDT) From: BCohen7014@aol.com To: SCD-list@longisland.com Subject: Thank you... Message-ID: <970906141328_-1267227670@emout09.mail.aol.com> Lucy, Thanks so much for the info. on the web site. JoEllen ------------------------------ Date: Sat, 6 Sep 1997 16:26:00 -0500 From: Rachel Turet <rachel@longisland.com> To: SCD-list@longisland.com Subject: Re: research (veering off topic) Message-ID: <l03010d00b03778cc5d44@[199.171.4.137]> Dear Ellen, How I wish it were true that CCFA in any way supported the SCD. You're right, the IBD community should be united in finding a cure for this horrible disease. Unfortunately, unless things have changed drastically since I was last involved in CCFA ( I also stopped supporting them some time back), their last stance that I was aware of, involving the diet was that it lacked scientific basis and that they would neither support or help to promote the SCD. All the scientific proof I've ever needed was the healing I found by following the diet. If you've seen evidense that CCFA has in any way changed their position in this please let me know. Thanks, Rachel ------------------------------ End of SCD-list V1 #31 ********************** SCD-list Sun, 7 Sep 1997 Volume 1 : Number 32 In this issue: A Fruit Treat... Re: Brain fog Re: Brain fog Re: Yoghurt Re: Yoghurt Re: Brain fog( idea) Re: A Fruit Treat... CCFA support for SCD Re: CCFA support for SCD Re: CCFA support for SCD -------------------------------------------------------------------- SCD MAILING LIST ------------------------------------------------------------------- ---------------------------------------------------------------------- Date: Sat, 6 Sep 1997 20:13:44 -0400 (EDT) From: BCohen7014@aol.com To: SCD-List@longisland.com Subject: A Fruit Treat... Message-ID: <970906201341_567944221@emout16.mail.aol.com> Today I was shopping at the mall with my daughter and I was famished! I thought, now what can I eat that is legal on the diet! At the food court is a place called "Frullati Cafe". They have fruit drinks. I thought well, it doesn't hurt to ask. And to my surprise they had a drink that I could drink! They just blend together a banana and fresh orange juice (I saw them squeeze it) and blended it with ice.! It was really good and I thought I would pass this on to all of you. Keep the helpful informtion coming......JoEllen ------------------------------ Date: Sat, 6 Sep 1997 20:23:56 -0500 From: hullc@mindspring.com (C. S. Hull) To: SCD-list@longisland.com Subject: Re: Brain fog Message-ID: <v01510102b037b0c0b7b7@[209.86.32.210]> >-------------------------------------------------------------------- >SCD MAILING LIST >------------------------------------------------------------------- >Rosset wrote: >> The thing that can give me a dull headache and make me feel sort of down > >Sounds like what happens to me is quite different, Lucy. Although I do >appreciate your response. > >What I get is not associated with eating or not eating, although it >*sounds* like a low blood sugar thing, so far that hasn't been the >case. I eat tons of food, protein and very little fruit or honey. >Sometimes I wake up with it, sometimes it will hit me during the day. I >get spacey and light-headed, and it is hard to concentrate, like I can't >quite connect with my brain. I'm not necessarily tired when it strikes >me either. I've heard of this symptom associated with fibromyalgia, >although I assume it is somehow related to digestion, assimilation >problems. Anybody else suffer from this dang-blasted annoying problem? > >Denise Hi Denise, Your description of your symptoms describes my brain fog too. I've described it as having fog in my synapses. It is quite distressing when I don't even feel like reading or writing or thinking deeply, especially since I am writing a book and it is essential that I have a clear head to do it. I've taken a leave to do some work on my house; painting, plumbing, etc. so it hasn't really been a problem yet. I've wondered if it isn't related to the yogurt somehow. I've been cutting back on it, from four or five big servings a day to three small ones. I missed the conversation on people who might not tolerate the yogurt well. Is there a group experimenting with this? Thanks. Carolyn ------------------------------ Date: Sat, 6 Sep 1997 20:35:45 -0700 From: prateeksha@infoasis.com (Prateeksha Bogardus) To: SCD-list@longisland.com Subject: Re: Brain fog Message-ID: <v01550100b03764a96d37@[206.40.74.48]> >-------------------------------------------------------------------- >SCD MAILING LIST >------------------------------------------------------------------- >>-------------------------------------------------------------------- >>SCD MAILING LIST >>------------------------------------------------------------------- >>Rosset wrote: >>> The thing that can give me a dull headache and make me feel sort of down >> >>Sounds like what happens to me is quite different, Lucy. Although I do >>appreciate your response. >> >>What I get is not associated with eating or not eating, although it >>*sounds* like a low blood sugar thing, so far that hasn't been the >>case. I eat tons of food, protein and very little fruit or honey. >>Sometimes I wake up with it, sometimes it will hit me during the day. I >>get spacey and light-headed, and it is hard to concentrate, like I can't >>quite connect with my brain. I'm not necessarily tired when it strikes >>me either. I've heard of this symptom associated with fibromyalgia, >>although I assume it is somehow related to digestion, assimilation >>problems. Anybody else suffer from this dang-blasted annoying problem? >> >>Denise > >Hi Denise, > > Your description of your symptoms describes my brain fog too. I've >described it as having fog in my synapses. It is quite distressing when I >don't even feel like reading or writing or thinking deeply, especially >since I am writing a book and it is essential that I have a clear head to >do it. I've taken a leave to do some work on my house; painting, plumbing, >etc. so it hasn't really been a problem yet. > > I've wondered if it isn't related to the yogurt somehow. I've been >cutting back on it, from four or five big servings a day to three small >ones. I missed the conversation on people who might not tolerate the >yogurt well. Is there a group experimenting with this? Thanks. Carolyn Denise, Carolyn, you write that you eat tons of food, protein and very little fruit and honey; I am wondering if your "brain fog" could come from not enough carbs? On this diet, we do have to really take care that we are getting enough...I don't think I do sometimes and am considering eating squash or zucchini, etc. for breakfast in addition to the yogurt and dry curd cottage combination, since I, too, can't tolerate much honey and very little fruit at this point (almost 3 mos. on diet). I think I'll run an experiment for the next week and have at least one vegetable high in carbs for breakfast in addition to my usual, and see if my "light headedness" and propensity to lie down a lot decreases! Also, the past 10 days or so, I have been having dull headaches! Will let you know if things change after having the added carbs for breakfast. Prateeksha ------------------------------ Date: Sat, 6 Sep 1997 20:42:20 -0700 From: prateeksha@infoasis.com (Prateeksha Bogardus) To: SCD-list@longisland.com Subject: Re: Yoghurt Message-ID: <v01550101b0376ff91597@[206.40.74.47]> >-------------------------------------------------------------------- >SCD MAILING LIST >------------------------------------------------------------------- >>-------------------------------------------------------------------- >>SCD MAILING LIST >> >Dear Rachel, I made the yogurt yesterday the way you explained your method (in the electric oven, using only the light bulb for warming the yogurt) and it works great! Only problem, I also had to prop the door open, because it was heating up too much; but then I found that even with the tiniest thing in my kitchen being used as a wedge to hold the door open, too much heat was escaping and the thermometer (mouth) dropped below 100...so, I covered the door with a beach towel and stuck masking tape on the counter top and oven top to hold the heat...I kept checking it and it stayed at 106 degrees without moving! A friend came over and saw my oven section of my stove covered with a beach towel and was sure I'd "gone over the edge!" Isn't this fun? Any ideas how to keep the heat in without cozying the oven? Prateeksha > > ------------------------------ Date: Sun, 7 Sep 1997 13:55:36 -0500 From: Rachel Turet <rachel@longisland.com> To: SCD-list@longisland.com Subject: Re: Yoghurt Message-ID: <l03010d00b038a86b6a9c@[199.171.4.147]> Dear Prateeksha, Thanks for a great laugh. All you needed was one of those visor things taped to the oven door, that people use for tanning and you could have made up a great story about experimenting with indoor tanning. Try a lower wattage light bulb (60-75 watts) and see if that helps. I'm so glad your yogurt came out great. I don't think anything beats this process for large amounts of delicious yogurt. Rachel ------------------------------ Date: Sun, 07 Sep 1997 12:17:05 -0700 From: Dempsey <stellar1@pacbell.net> To: SCD-list@longisland.com Subject: Re: Brain fog( idea) Message-ID: <3412FDB1.5156@pacbell.net> Hello brain fog friends. It's comforting to know there are a few others who know what I am referring to! In the last few days I've been trying something my husband recommended to me that seems to be helping. I say seems, because although it *has* been helping, it's too soon to say it's because of what I've been doing or coincidence, but I'm ready to share. My husband (who is in the medical field) had the idea that I could possible have a mineral deficiency because of my absorbtion problems (re: IBS) and because I get the brain-fog, which seems to mimic low-blood sugar swings in spite of eating a lot of food (by the way Prateeksha, thanks for the carbs reminder. I try to eat lots of split pea soup and lima beans, apples, seem to get enough carbs). I've been taking a mineral supplement that seems to have stabilized my energy levels and the brain fog has been non-existent since I started to take them (for the last four days, which is significant for me). If you want to try, make sure you get a calcium-magnesium supplement that is calcium and magnesium *citrate,* not carbonate. This is apparently very important because the citrate comes from vegetable sources and is much easier to absorb by the body. I used to take Calc./Mag. supplements but never noticed a difference until I took the citrate form. I hope this info. helps someone else too and I wish us all luck in figuring this problem out. Denise ------------------------------ Date: Sun, 07 Sep 1997 12:35:37 -0700 From: Dempsey <stellar1@pacbell.net> To: SCD-list@longisland.com Subject: Re: A Fruit Treat... Message-ID: <34130209.75F5@pacbell.net> Hi JoEllen, Welcome to the group and thanks for the tip! I tried doing the fruit smoothie thing at the mall recently and had a problem with the bananas not being as ripe as we are supposed to have them (with black spots on them, no trace of green). It sure would be great to have a thing to be able to eat at the mall! Best wishes, Denise ------------------------------ Date: Sun, 07 Sep 1997 13:07:59 PDT From: "T G" <tguar@hotmail.com> To: SCD-list@longisland.com Subject: CCFA support for SCD Message-ID: <19970907200759.24720.qmail@hotmail.com> I'm not sure if the CCFA supports the diet or not, but earlier in the year the Chrohn's and Colitis Foundation of Canada printed a review of Elaine's book in their monthly newsletter. I think I still have this article in the form of a write document somewhere if anyone is interested in reading it. My impression of the article was that they felt more scientific research was needed before they could recommend the diet because they felt there were holes in Elaine's theory but they didn't say anything about putting forward the money to fund this research. If it doesn't come from them, where else could it possibly come from?? Take care, Tina ______________________________________________________ Get Your Private, Free Email at http://www.hotmail.com ------------------------------ Date: Sun, 7 Sep 97 15:47:53 CDT From: ted.kyle@vantis.com (Ted Kyle) To: SCD-list@longisland.com Subject: Re: CCFA support for SCD Message-ID: <9709072047.AA07280@swansong.amd.com> hi it's a lame excuse for CCFA to say they won't spend any money for reseaching the SCD diet just because they think there are holes in Elaine's theory, the drug companies dont know how most of the medicines that are in use actually work, including the asacol my son takes, they may have an educated guess, but they still don't know for sure. and if the theory is wrong but the diet works, that's enough for for me, although i would welcome the knowledge of how it works since that could lead to an improvement in the treatment of IBD diseases. finally, the SCD diet doesn't have to work for 100% of all IBD sufferers to be recommended, asacol comes with information on two trial studies, one in which 49% of those taking asacol were helped, and another in which 74% were helped. no drug or therapy is 100%. i am going to write my congressman and my two senators and urge them to set aside a small sum of money to research this diet. perhaps a large HMO would be interested since this disease must be costing a lot of money, perhaps a foundation could help. i know one 60,000 patient HMO has recently completed a study on using the ZONE diet to treat diabetics, they hope to save some bucks, the news will be out this october i think, perhaps they would be interested in doing a similar study with SCD. i have been looking at PubMed for articles on colitis and have found two that i would like to hear from the rest of you on. one study in japan found that a western style diet, specifically margarine and bread, was a big factor in IBD in japan (i dont know the extent of IBD in Japan) the second study, published in 1979, recommended chelation therapy for sufferers of colitis due to patients having excessive levels of copper in their livers and there was a specific chemical (not copper) that was an indicator. i have read a lot about chelation only because my wife was on her way to heart problems (her mom died of it, her two oldest brothers died of it in their forties etc...) of course now our biggest concern is our son's colitis. finally, i am struck by the number of IBD sufferers that get auto- immune type diseases too. perhaps those at CCFA think that colitis is an auto-immune disease, if fact after my son's diagnosis with colitis my ex-boss told me he had colitis too, and that his brother has lupus, an auto-immune disease. he told me that it so happens that in austin texas where we live there is one of two doctors treating lupus with diet and other alternative therapies and getting success. i plan to pursue this lead. ted ------------------------------ Date: Sun, 7 Sep 1997 17:33:28 -0500 From: Rachel Turet <rachel@longisland.com> To: SCD-list@longisland.com Subject: Re: CCFA support for SCD Message-ID: <l03010d01b038dae34602@[199.171.4.154]> Dear Ted, I admire your "take action" attitude. I would be happy to follow your lead. Please advise me where to send letters. As for the auto-immune connection, I have spondylitis, UC and fibromyalia, all considered auto immune. We are 2 sisters (I'm the oldest) & 2 brothers. One brother has severe scoriatic arthritis (supposedly, scoriacis is the skins form of arthritis) and my sister has rhuematoid arthritis. These are also considered auto immune. Thank the powers that be, my baby brother is disease free. Rachel ------------------------------ End of SCD-list V1 #32 ********************** SCD-list Mon, 8 Sep 1997 Volume 1 : Number 33 In this issue: Cracking Knee Joint Re: Brain fog Minerals and Brain Fog Re: CCFA support for SCD Tzatziki Re: Cracking Knee Joint Re: Cracking Knee Joint Cracking Knee Joints Re: eating away from home Some very dairy questions Request for information Veggie Carbs Re: CCFA support for SCD Re: Brain fog( idea) Re: Brain fog( idea) Flour Re: research (veering off topic) Re: research (veering off topic) psyllium use Re: research (veering off topic) -------------------------------------------------------------------- SCD MAILING LIST ------------------------------------------------------------------- ---------------------------------------------------------------------- Date: Sun, 7 Sep 1997 20:09:51 -0500 From: hullc@mindspring.com (C. S. Hull) To: SCD-list@longisland.com Subject: Cracking Knee Joint Message-ID: <v01510102b0390056f2d1@[207.69.154.83]> Hi All, Question...does anyone else hear their knees crack? What does this mean? I also have had joint pain in my thumb at times. I know this is related to my diet, perhaps to lack of vitamins and/or minerals. Yes, I am taking my vitamins. But everytime I try to take the minerals I react to the honey, I think. Also, my doctor gave me an awful time when I wanted a B12 shot to boost me into the high-normal range as Elaine suggested. She said she would do it only once. So I did it once (after testing in normal range) and haven't been back in eight months. Thanks. Carolyn ------------------------------ Date: Sun, 7 Sep 1997 20:14:50 -0500 From: hullc@mindspring.com (C. S. Hull) To: SCD-list@longisland.com Subject: Re: Brain fog Message-ID: <v01510101b038fba2d80b@[207.69.154.83]> >Denise, Carolyn, > >you write that you eat tons of food, protein and very little fruit and >honey; I am wondering if your "brain fog" could come from not enough carbs? >On this diet, we do have to really take care that we are getting >enough...I don't think I do sometimes and am considering eating squash or >zucchini, etc. for breakfast in addition to the yogurt and dry curd cottage >combination, since I, too, can't tolerate much honey and very little fruit >at this point (almost 3 mos. on diet). >I think I'll run an experiment for the next week and have at least one >vegetable high in carbs for breakfast in addition to my usual, and see if >my "light headedness" and propensity to lie down a lot decreases! Also, >the past 10 days or so, I have been having dull headaches! > >Will let you know if things change after having the added carbs for breakfast. > >Prateeksha Hi Prateeksha, I think eating enough (specific) carbohydrates are a challenge for me, but I don't tolerate them well. When I first started the diet I could hardly keep -any- food in me and was losing weight like crazy. When I got really desparate, read the beginning diet instructions over again and started over, it became a long, patient, effort just to keep my tummy from rumbling, maintain my energy, and keep me from getting D. (which I am still working on), etc. I've introduced fruits very slowly, and just can't seem to tolerate them yet. Same with very much variation on vegetables. I still suspect honey, although I am doing ok with it in almond bread. Even eggs give me D. Cheese is still a problem. Has anyone else been this sensitive for this long? or is it just me? I am much, much better. My reactions seem to be less severe, which I take to be an improvement, and a matter of time before my system can handle it. I eat butternut squash and hamburger for breakfast, lunch and dinner. I vary it with chicken, fish, zucchini, raw tomatoes, avacado, cooked apple, yogurt, almond bread (made with apple and butternut squash). I've been on the diet (almost properly) for about eight months and can't quite shake the D. in the AM. Some days are better than others. Gets worse, apparently during menstruation. I'd be interested in specific carbohydrate tips, too. Maybe I should try eating butternut squash for a snack. Not very appetizing sounding, but it might be worth a try. Recipe anyone? Best wishes, Carolyn ------------------------------ Date: Sun, 7 Sep 1997 20:23:43 -0500 From: hullc@mindspring.com (C. S. Hull) To: SCD-list@longisland.com Subject: Minerals and Brain Fog Message-ID: <v01510103b0390358a7b1@[207.69.154.83]> Re: >>>Hello brain fog friends. It's comforting to know there are a few others who know what I am referring to! Denise, thanks for your mineral suggestion. I'll try it. What dosage are you taking? Hope it continues to work for you ---and for our---well being. Carolyn ------------------------------ Date: Sun, 7 Sep 1997 22:19:48 -0400 (EDT) From: EllenAdams@aol.com To: SCD-list@longisland.com Subject: Re: CCFA support for SCD Message-ID: <970907221448_-333007950@emout15.mail.aol.com> In a message dated 97-09-07 16:08:21 EDT, you write: << My impression of the article was that they felt more scientific research was needed before they could recommend the diet because they felt there were holes in Elaine's theory but they didn't say anything about putting forward the money to fund this research. If it doesn't come from them, where else could it possibly come from?? >> It could come from designated contributions made by those who believe in the diet. Of course, this assumes that there is a researcher who proposes to validate Elaine's findings, but perhaps CCFA knows of someone with this interest. I believe there are about 200 people on this diet (or at least there are about 200 people calling Hughson's for almond flour for this diet). If everyone chipped in $100 that would be $20,000. If CCFA was willing to match those contributions out of their general fund, then it starts to add up. In fact, maybe Elaine would be willing to be a major contributor since she would stand to benefit from the validation of the diet's success. I like the point that someone else made pointing out that large HMOs stand to benefit from a validation of a diet approach to treatment of IBD. They could save a lot of money. Maybe they'd be willing to match our funds as well (they would therefore pay 50% of the costs, but the actual cost to them would be much less.) In addition, there are some government grant programs that are willing to match funds raised in the private sector. If all of this worked out, we'd have a $200,000 study. I'm not arguing that this is the optimum way to go about this. I'm just trying to point out that even a small group of people can make big things happen. Ellen ------------------------------ Date: Sun, 7 Sep 1997 22:38:09 -0400 (EDT) From: EllenAdams@aol.com To: SCD-list@longisland.com Subject: Tzatziki Message-ID: <970907223727_2084139069@emout01.mail.aol.com> Tzatziki is the yogurt based sauce that is served on gyro sandwiches. It's highly versatile. I made some to serve with lamb chops, and then used the remainder as a salad dressing. If you cut the cucumber in slices instead of small pieces, it would be a nice cucumber salad in and of itself. I've also seen it served as a cold cucumber soup. Fresh dill makes all the difference in my view. If you are wondering what to do with the rest of it, use it on poached salmon or toss it in with zuchinni sauted with onions. Tzatziki 3/4 cup yogurt or yogurt cheese 2/3 cup peeled, seeded, cucumber (you can grate it, slice it, mince it, depending on the end result you are seeking!) 1/2 small onion--thinly sliced 1/2 tsp minced garlic minced fresh dill--I guess about a tsp (the actual recipe also calls for a tsp of olive oil but I don't use it) Mix it all together in advance and let the flavors get to know one another in the fridge. * * * * * * * * * * While I'm at it, I'll add the poached salmon. A quick and easy favorite of mine (my housemate thinks it's gourmet!) Poached Salmon A piece of salmon filet about 6-8 inches long, 1/2-3/4 " thick Dry white wine Fresh Dill Capers (butter is optional) Put the salmon in a microwave dish, skin side down. Splash a little white wine over it so the liquid covers the bottom of the dish (if you are out of wine, a little water and some butter works well too). Mince some fresh dill and sprinkle it generously over the salmon. Sprinkle some capers* on it too. Cover with Saran Wrap and microwave on high for 5-6 minutes. The thinner parts of the salmon may making popping noises--that is the oil in the salmon popping--take care to let it calm down a bit when you take it out of the oven (I ended up with bits of salmon on my ceiling once). It's better to undercook than overcook and the cooking time is mostly a matter of the thickness. It's never turned out badly for me though, so I don't think it's that sensitive to having the cooking time just right. I hope you like it! *Capers are neither specifically allowed nor disallowed in Elaine's book. Don identified them as the berries from an evergreen shrub. To my view, that would make them most similar to juniper berries which are used to make gin--which is allowed. Capers are usually packed in brine--which is essentially salt water. They add a lot of flavor but are essentially a garnish. If you consumed a tablespoon of them that would be a lot. If you prefer to skip the capers, the salmon is still good. (Personally, I eat capers but they have always been a part of my diet and never bothered me. If you've never had them before, I'll certainly understand if you are leery of trying them!) By the way, if you just poach the salmon with the dill, the tzatziki would make a nice sauce/relish with it. Ellen ------------------------------ Date: Sun, 7 Sep 1997 23:29:43 -0400 (EDT) From: EllenAdams@aol.com To: SCD-list@longisland.com Subject: Re: Cracking Knee Joint Message-ID: <970907232557_-366620504@emout16.mail.aol.com> In a message dated 97-09-07 23:05:28 EDT, you write: << Question...does anyone else hear their knees crack? What does this mean? >> Yes. My knees crack or crackle when I stand up. I don't know what it means. Luckily, for me, it's not painful! ;-) Ellen ------------------------------ Date: Mon, 8 Sep 1997 06:41:55 -0500 From: Rachel Turet <rachel@longisland.com> To: SCD-list@longisland.com Subject: Re: Cracking Knee Joint Message-ID: <l03010d00b039947caab2@[199.171.4.154]> Dear Carolyn & Ellen, I've just always assumed that my joint problems stem from the form of arthritis that is a very common "bonus" that comes with having IBD. Rachel ------------------------------ Date: Mon, 8 Sep 1997 10:42:04 -0500 From: "Jim Prousalis" <j-pro@mindspring.com> To: "SCD LONG ISLAND" <SCD-list@longisland.com> Subject: Cracking Knee Joints Message-ID: <199709081442.KAA25332@brickbat8.mindspring.com> Hi Carolyn! I have noticed this type of problem when I was first diagnosed with Crohn's. I noticed that it was in alot of spots. When I shake peoples hand I notice it in my wrists. I even notice it in my elbows once in a while. I do get arthritis type feelings in my hands every now and then, mostly in my thumbs. I am glad I have a very caring wife and an understanding wife. She sees when it hurts me at times and rubs where it aches. She is terrific throughout this awful disease. I don't know what I would do with out her. She is the best thing that happened to me other than this diet. Good Luck! Jim ------------------------------ Date: Mon, 8 Sep 1997 11:45:18 -0400 From: "Lynn Karakashian"<lynn.karakashian@prudential.com> To: SCD-list@longisland.com Subject: Re: eating away from home Message-ID: <8525650C.00563643.00@njros1ngw04.metro.prudential.com> Thanks for you response Denise. I will try your suggestion about avacados in my diet. As for the pea soup, I have still been having alot of trouble with veggies, so I am sure the pea soup will present problems and therefore I am going to stay away from it, at least for a while that is. Again, thanks for the suggestion. I will certainly give it a shot to see if my body will tolerate it. Will let you know how I make out. Lynn stellar1 @ pacbell.net Friday September 5, 1997 09:29 PM Please respond to SCD-list@longisland.com To: SCD-list @ longisland.com cc: (bcc: Lynn Karakashian/EFM/Prudential) Subject: Re: eating away from home -------------------------------------------------------------------- SCD MAILING LIST ------------------------------------------------------------------- Lynn Karakashian wrote: > What does everyone do to help them gain weight. Lynn, I rely on avocados! For me, these are super food, somehow seem really easy to digest and have a high vegetable fat content. I add them to everything I eat. Unfortunately, since we have to work so hard to get carbs in on the SCD, I rely on fats to pack in more calories. Also though, make sure you are getting as much carbs as possible. Lately I've been eating A LOT of split peas soup. I'm not sure where you are at with the diet in terms of what foods you can and can't eat. If you can handle the cookie recipes, they are a fantastic source of carbs and calories as well. Best regards! Denise ------------------------------ Date: Mon, 8 Sep 1997 11:07:27 -0500 (CDT) From: Elizabeth Liener <exuliz@exu.ericsson.se> To: SCD-list@longisland.com, SCD@MAELSTROM.STJOHNS.EDU Subject: Some very dairy questions Message-ID: <199709081607.LAA08896@b01d04.exu.ericsson.se> Good morning all, A couple of questions which I'd appreciate help with: 1) How long can the homemade yoghurt stay fresh in the refrigerator once it's been "cooked"? More than a couple of days? 2) Is Friendship Farmer's cheese ok to use? It's got skim milk, cream and salt. 3) I've not yet tried to make the yogurt. I'm extremely intolerant to dairy at this time. In addition, I cannot tolerate pro-biotic formulas at all either. They make my symptoms worse. I will try the yoghurt once I find a good stable 100-110 degree location to cook it. Though, I worry. What if I can't tolerate it, and I can't take pro-biotics? How do I get the "good" bacteria in me? Kind regards, Liz ------------------------------ Date: Mon, 08 Sep 1997 17:25:14 +0100 From: hazel.pelham@bbc.co.uk (Hazel Pelham) To: SCD-list@longisland.com ('SCD LIST') Subject: Request for information Message-ID: <1997Sep08.171549.1772.1406547@pu-smtp.radio.bbc.co.uk> Dear All, I have been subscribed to this list for about 2 weeks and I am so impressed with the support and encouragement that you all give to each other. I am studying to become a Nutrition Consultant in England and would like to pick your collective brains for information of two different sorts. Firstly, is there anyone in the UK on this list? I know of several other practitioners in this country who are keen to try this diet with their client's but who are struggling to find suppliers for several of the SCD staples. A good example of this is the farmer's cheese. If there is anyone out there who can help? I would be happy to pass this information to other nutritionists. I would love to speak to someone in this country who has successfully used the diet. Secondly, as part of my studies I am writing a dissertation on the Nutritional Management of Crohn's Disease. I was interested in Ted's message which mentioned some relevant papers. If anyone has information on papers that relate to diet and Crohn's I would be really grateful. I will be on email at work on hazel.pelham@bbc.co.uk until 16 September when I am leaving work to set up my nutrition practise. Having suffered 7 years of Crohn's, I have been 99% symptom free for the last 7 years using a variety of diets, so it really can work. Good Luck and Good Health to you all. Hazel Pelham ------------------------------ Date: Mon, 8 Sep 1997 11:27:30 -0500 (CDT) From: Elizabeth Liener <exuliz@exu.ericsson.se> To: SCD@MAELSTROM.STJOHNS.EDU, SCD-list@longisland.com Subject: Veggie Carbs Message-ID: <199709081627.LAA08904@b01d04.exu.ericsson.se> Hi again, Are some veggies higher in carbs than others? If so, does anyone know where a breakdown of different veggie/carbohydrate ratios can be found? Thanks alot, Liz ------------------------------ Date: Mon, 08 Sep 1997 19:07:19 +0200 From: Odd Oivind Bergstad <oddb@stovner.vgs.no> To: SCD-list@longisland.com Subject: Re: CCFA support for SCD Message-ID: <1.5.4.32.19970908170719.0068dad8@vgs.sn.no> At 13:07 07.09.97 PDT, you wrote: >My impression of the article was that they felt more scientific research >was needed before they could recommend the diet because they felt there >were holes in Elaine's theory but they didn't say anything about putting >forward the money to fund this research. If it doesn't come from them, >where else could it possibly come from?? > At least there will soon be a survey on Internet bout SCD. Together with Mik, Anna and some other people I am working on the questions. Maybe the resoult will make CCFC more positive..? best wiches Odd Oivind ------------------------------ Date: Mon, 8 Sep 1997 10:01:47 -0700 From: prateeksha@infoasis.com (Prateeksha Bogardus) To: SCD-list@longisland.com Subject: Re: Brain fog( idea) Message-ID: <v01550100b0397cf50e1a@[206.40.74.47]> >-------------------------------------------------------------------- >SCD MAILING LIST >------------------------------------------------------------------- > Hi Denise, Thanks for the info on Calcium/Mineral supplements. I looked at contents of my current calcium/mineral supplement and it does have listed "calcium (from citrate & carbonate)". What brand do you use where you get only the calcium citrate? Prateeksha Hello brain fog friends. It's comforting to know there are a few others >who know what I am referring to! In the last few days I've been trying >something my husband recommended to me that seems to be helping. I say >seems, because although it *has* been helping, it's too soon to say it's >because of what I've been doing or coincidence, but I'm ready to share. >My husband (who is in the medical field) had the idea that I could >possible have a mineral deficiency because of my absorbtion problems >(re: IBS) and because I get the brain-fog, which seems to mimic >low-blood sugar swings in spite of eating a lot of food (by the way >Prateeksha, thanks for the carbs reminder. I try to eat lots of split >pea soup and lima beans, apples, seem to get enough carbs). I've been >taking a mineral supplement that seems to have stabilized my energy >levels and the brain fog has been non-existent since I started to take >them (for the last four days, which is significant for me). If you want >to try, make sure you get a calcium-magnesium supplement that is calcium >and magnesium *citrate,* not carbonate. This is apparently very >important because the citrate comes from vegetable sources and is much >easier to absorb by the body. I used to take Calc./Mag. supplements but >never noticed a difference until I took the citrate form. I hope this >info. helps someone else too and I wish us all luck in figuring this >problem out. > >Denise ------------------------------ Date: Mon, 8 Sep 1997 12:03:12 -0500 (CDT) From: Elizabeth Liener <exuliz@exu.ericsson.se> To: SCD-list@longisland.com Subject: Re: Brain fog( idea) Message-ID: <199709081703.MAA08997@b01d04.exu.ericsson.se> Twin Labs makes a calcium citrate/magnesium supplement. I get mine at the health food store (Whole Food). Regards/Liz > From SCD-request@longisland.com Mon Sep 8 11:58 CDT 1997 > Mime-Version: 1.0 > To: SCD-list@longisland.com > From: prateeksha@infoasis.com (Prateeksha Bogardus) > Subject: Re: Brain fog( idea) > Date: Mon, 8 Sep 1997 10:01:47 -0700 > Reply-to: SCD-list@longisland.com > Content-Type> : > text/plain> ; > charset="us-ascii"> > Content-Length: 2030 > > -------------------------------------------------------------------- > SCD MAILING LIST > ------------------------------------------------------------------- > >-------------------------------------------------------------------- > >SCD MAILING LIST > >------------------------------------------------------------------- > > > Hi Denise, > > Thanks for the info on Calcium/Mineral supplements. I looked at contents > of my current calcium/mineral supplement and it does have listed "calcium > (from citrate & carbonate)". What brand do you use where you get only the > calcium citrate? > > Prateeksha > > > Hello brain fog friends. It's comforting to know there are a few others > >who know what I am referring to! In the last few days I've been trying > >something my husband recommended to me that seems to be helping. I say > >seems, because although it *has* been helping, it's too soon to say it's > >because of what I've been doing or coincidence, but I'm ready to share. > >My husband (who is in the medical field) had the idea that I could > >possible have a mineral deficiency because of my absorbtion problems > >(re: IBS) and because I get the brain-fog, which seems to mimic > >low-blood sugar swings in spite of eating a lot of food (by the way > >Prateeksha, thanks for the carbs reminder. I try to eat lots of split > >pea soup and lima beans, apples, seem to get enough carbs). I've been > >taking a mineral supplement that seems to have stabilized my energy > >levels and the brain fog has been non-existent since I started to take > >them (for the last four days, which is significant for me). If you want > >to try, make sure you get a calcium-magnesium supplement that is calcium > >and magnesium *citrate,* not carbonate. This is apparently very > >important because the citrate comes from vegetable sources and is much > >easier to absorb by the body. I used to take Calc./Mag. supplements but > >never noticed a difference until I took the citrate form. I hope this > >info. helps someone else too and I wish us all luck in figuring this > >problem out. > > > >Denise > > > ------------------------------ Date: Mon, 8 Sep 1997 18:33:21 +0400 (GMT) From: macneil <macneilc@cbnet.ns.ca> To: SCD-list@longisland.com Subject: Flour Message-ID: <199709081433.SAA21385@highlander.cbnet.ns.ca> Hi ALL! Has anyone in Canada ordered the almond flour from Hughson Nut Co.? What price did you pay? I ordered the pecan meal from Dutch Valley in Pennsylvannia last fall and , although it still was a good price, I had to pay a hefty brokerage fee at this end- east coast of Canada. The almond price is great at Hughson-- here it's close to 10.00/lb. Melissa prefers it to the pecan- loks more 'normal'. The Coping With Prednisone book sounds very informative- I recently saw the authors interviewed on TV and they seem to cover all aspects of side-effects. Cathy ------------------------------ Date: Mon, 8 Sep 97 15:44:40 MDT From: "Daniel Woods" <dwoods@acs.ucalgary.ca> To: SCD-list@longisland.com Cc: dwoods@acs.ucalgary.ca (Dan Woods) Subject: Re: research (veering off topic) Message-ID: <9709082144.AA107076@acs5.acs.ucalgary.ca> Hi Ellen, > ..... I'd rather the > true causes of this disease be understood and resolved. I'd rather live in a > world where children don't suffer with this--at all, not for a minute. I > hope for a future where IBD, like polio, is better known as a childhood > vaccine than a disease. Don't we all ! If IBD is in any way genetic (and we can only speculate), I dread the possibility of my children ever getting CD/UC. The best I can do is control what and how they eat, avoiding overuse of sugar especially. Like they say, "everything is ok... in moderation of course". > Despite the fact that I didn't have a choice about joining the IBD community, I already shared my personal opinions on why I got IBD on an earlier posting. Hindsight is a wonderful thing, like in the stock market. I just heard a very interesting quote yesterday. "Life is a hard teacher, the test comes first, then followed by the lesson". > now that I'm here, I feel impelled to contribute as I can to the community. I contribute by sharing my personal experiences. In this forum, I can open up whereas I normally keep my condition very private. I rarely discuss it with co-workers unless I think it can help someone. I don't complain about my IBD, I deal with it (I believe you and Rachel also commented on being stoic). I am sure you have noticed my posts on the crohns-colitis newsgroup, and I comment on the very negative side-effect of prednisone which has left me with osteoporosis at 33 (again hindsight). So if this helps people look at things more openly, I'll share what I normally keep to myself. P.S. You're welcome (Hughson email address). I checked and the cost is about the same except that I have the Canadian exchange rate to worry about, plus possible duty taxes. So I guess I'll try harder to find a local supplier. Thanks... Dan. *************************************************************** * Dan Woods The University of Calgary * * dwoods@acs.ucalgary.ca Calgary, AB, CANADA, T2N 1N4 * *************************************************************** ------------------------------ Date: Mon, 8 Sep 97 15:46:49 MDT From: "Daniel Woods" <dwoods@acs.ucalgary.ca> To: SCD-list@longisland.com (SCD-diet mail list) Cc: dwoods@acs.ucalgary.ca (Dan Woods) Subject: Re: research (veering off topic) Message-ID: <9709082146.AA103064@acs5.acs.ucalgary.ca> Hi Rachel, I also stopped supporting CCFC (Canada) due to their strong bent towards only a medical (ie: prescription drugs) solution. I always prefer taking a natural approach to things. Diet and vitamins, done properly, do not have side-effects. Prescription drugs always have side-effects. My personal experience with doctors is that they were only taught to look at symptoms, prescribe the drug which is supposed to alleviate them (and hope it works). These will usually work for some time, until the side-effects start appearing. And then doctors say (my words) "Oh! Well now we'll prescribe this drug, and that drug, and these drugs in combination, and so on. IMHO, they should have more of a preventative approach to medicine, and not a reactive one. However, we all know that there's no money in it for them, or pharmaceutical companies (sorry Ellen), to follow this approach. Is it not cheaper in the long run to service your car on a regular basis, instead of a big repair bill down the road ? Why is that any different for us ? It surprises me that insurance companies won't cover the cost of vitamins and minerals (even prescribed), but they any prescription drug is ok. My need for extra Calcium and vitamin D are a direct result of osteo (prednisone side-effect), yet I must still pay for them. Does that make sense ? Thanks for letting me vent... Thanks... Dan. *************************************************************** * Dan Woods The University of Calgary * * dwoods@acs.ucalgary.ca Calgary, AB, CANADA, T2N 1N4 * *************************************************************** ------------------------------ Date: Mon, 8 Sep 97 16:05:37 MDT From: "Daniel Woods" <dwoods@acs.ucalgary.ca> To: SCD-list@longisland.com (SCD-diet mail list) Cc: dwoods@acs.ucalgary.ca (Dan Woods), SCD@MAELSTROM.STJOHNS.EDU (IBD-diet mail list) Subject: psyllium use Message-ID: <9709082205.AA83210@acs5.acs.ucalgary.ca> Hi group, Got a question for anyone ! JoEllen mentioned using Psyllium, even though she had D. prior to starting the diet. I recall (I believe) Denise saying that she sometimes used it to help with constipation. And doesn't Metamucil use this ingredient (natural fibre). I have been using it also as I was told it would help. Now I am wondering if perhaps it is more to help constipation and should not be used when stools are loose. Any comments ? Thanks... Dan. *************************************************************** * Dan Woods The University of Calgary * * dwoods@acs.ucalgary.ca Calgary, AB, CANADA, T2N 1N4 * *************************************************************** ------------------------------ Date: Mon, 8 Sep 1997 19:11:21 -0500 From: Rachel Turet <rachel@longisland.com> To: SCD-list@longisland.com Subject: Re: research (veering off topic) Message-ID: <l03010d01b03a43390453@[199.171.4.144]> >Thanks for letting me vent... > Dear Dan, Anytime. I do have to say that in recent years the insurance companies have been taking baby steps in the direction of alternative meds. Chiropractors are probably the first being allowed to submit for payment on what was once considered purely alternative. Insurance companies have begun to realize that paying for some adjustments beats the hell out of paying for back surgery followed by intensive physical therapy. Who knows, maybe someday they'll see the light, even if their motivation is having to pay less for this type of treatment. Rachel ------------------------------ End of SCD-list V1 #33 **********************
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